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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About lost36

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    1. lost36 added a post in a topic Progressively Getting Worse...seeing Doctor Tommorow...again   

      I'm still trying to find out whats wrong with me too. When you mentioned about the yellowish subtance with the stool is what got my attention. I have the same thing and havent found many answers on the net about it. Mines has an ammonnia/chemical odor and the only thing that i've found on the net that causes that is Bacteria overgrowth of the small intestines. That can cause a whole host of other symptoms also like , constipation/diarhea, bloating, adomenal pain, gassy and weight loss. Please keep us updated and hope everything goes well.
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    2. lost36 added a post in a topic Starting To Suspect Celiac But I'm African American?   

      Thanks everyone for the replies and helpful info. I'm glad it's not just a racial thing and other african americans do suffer with this. I'm sure I have some European ancestry somewhere especially on my dads side of the family. The weight and muscle loss is the thing that scares me because I fear that the doctors have missed something more serious like cancer. It's hard to go gluten free because i'm so busy with two jobs and everything my wife has in the fridge has gluten.

      I'm also thinking I could be dealing with bacteria infection in my small intestines because my symptoms mimic that also. I remember when I was on three different antibiotics back to back for having two teeth pulled. I didn't finish a couple of courses before starting the other and had awful watery diarrhea at least 10 times a day. I'm taking olive leaf extract and probiotics for now until I see my doctor soon. I think i'm going to ask him for the antibiotic Riflaxin targeted strictly for SIBO. Also I'll remain gluten free for three months to see if that helps also.

      Thanks again everyone.
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    3. lost36 added a post in a topic Progressively Getting Worse...seeing Doctor Tommorow...again   

      I also have the same symptoms. When you mentioned the yellowish gold on the tissue paper I have the exact same thing. Does this have a strange ammonia like odor also? No one can tell me what it is
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    4. lost36 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Starting To Suspect Celiac But I'm African American?
      Hello everyone. I've been plaqued with some very strange symptoms every since feb 2011. I was going though a stressful period and started having loose stools and Diarheah. I would go out with friends and notice the stools were worse with beer. I thought maybe I was coming down with a stomach virus because I wasn't running any fevers, cough or flu like symptoms or nervous stomach. I remembered that I had two mexican burritos and brushed the bowel episodes off on that. My symptoms were watery stools at least 5 times a day, horrible smelling gas, bloating, dull stomach pains under my right rib cage and I started becoming very tired,nausea, restless, and brain fogs. My stools would alternate between greasy, floating light color{goldish) to watery.

      The change in bowel habits went on for a good month and I began to get worried and went to the doc. She did a chest xray, stool test for parasites,HIV, cbc blood work and everything came back fine except she told me my Vitamin D levels were very low and I also had low testosterone. She gave me the ole IBS Dx and stress but just to be safe she sent me to an endocrinologist. The endocrinologist noticed in one of my labs from my PCP that I had raised glucose levels. He ran blood work for Thyroid and diabetes and sent me to have a MRI of my pituatary gland because of the Low T levels. Everything came back normal and my T levels had actually gone up a bit but Vit D was still low and also B12. He put me on Vit D liquid.

      I went back to my PCP and told her I was still having the same problems only I had started losing muscle mass and fat, I went fom 276lbs to 265lbs (6.2 mostly muscle mass). I'm a non smoker, drink a beer on occassion and otherwise healthy. I still had a very big appetite and my job is mainly phsyical so Im sure that contributed to the weight loss also. She sent me to a GI doctor and the GI asked me my symptoms and thought it was crohns because my dad had it. I told her that I didn't feel it was that because I never saw any blood in my stools or had any severe pain or vomit. I asked her about celiac and she told me I couldn't have it because I was African american. I insisted that she give me the blood test. She gave me the blood test for celiac and a colonoscopy and both were normal only one benign polyp in my colon. I was upset with this GI doc because she didn't show any concerns

      Saw A different GI and she first wanted to check for crohns and celiac and she happened to be African american. I told her what the first GI told me about celiacs and she just shook her head. Other test I've had are abdomenal/pelvic CT scan which shows Hiatal hernia and two very small benign cysts on my liver. I had ultrasounds of my liver and gall bladder, Hida scan of my gall bladder, barium xray of the small intestines and endoscopy which showed irritation in the terminal ileum and she took 4 biopsies and was neg for h pylori or celiac. She did labs again and told me every thing looked excellent except I had a low WBC which was 3.1. and B12 was still low. She didn't see any inflammation showing IBD and blood test for celiac again was normal.

      I'm at the end of my rope now and my energy level has diminished a great deal since this first started. I still continue to waste away phsically. My buttocks arse wasting, arms and legs and chest have gotten much smaller. My stools now alternate between normal , loose and watery. New symtoms are exzema, coated tongue, sinus problems and phlegm in throat thats worse with dairy, fingernails grow weird, dry skin, joint and muscle pains, vision loss, and I notice a yellowish oil substance with a strange odor with my bowel movements, nerve twitches, acne on different areas of my body, high blood pressure, high glucose readings that are prediabetic,brain fog, dizzy spells, and headaches. Symptoms were worse when me and my wife would eat out almost eveyday at carrabas and pizza. Pasta is my favorite and when my wife lost her job funds were tight and we didn't eat out as much and symptoms wasn't as bad

      Can someone please give me some insight on where to go from here? Doctors are of no help and I know there are false negatives with this disease. I don't want to use the fact that I am African american to rule celiac out. Im very tired and frustrated as this has been going on for a year. Does my symptoms add up to celacs? Recently I went gluten free and my stools were normal. I only ate meat rice and vegetables for a week. Yesterday my co worker gave me a pecan praline muffin and about 10 min later I started getting hot flashes and dizzy and also had a headache later that evening. That night when I got home I had explosive diarrhea and (sorry to be gross) saw the pecans from the muffins in the stool. Also ate 2 cranberry muffins this morning to see if the same thing happen and it did. Anyone please give me some suggestions.

      Thank you!
      • 6 replies

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