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dkelley added a topic in Celiac Disease - Friends and Loved Ones of CeliacsNon-Celiac Gluten Free Withdrawals?My 12 Year-Old son was diagnosed with Celiac disease In February of this year. After having the rest of the family tested and receiving negative results we (wife, daughter and myself) decided to have the entire family go gluten free in support of our son. We felt that it would be easier for him if we had a gluten free house and chose gluten free friendly restaurants while dining out. For the 1st 2 months or so things went well for all of us.
The issue is that in the last 2-3 weeks I have not felt well at all. Whenever I eat no matter how much or how little I feel kind of sick within 15-30 minutes. The best way to describe it is that I feel hungry, but that type of hungry when you go too long with out eating. (Does that make any sense?) I can eat more, but I still feel the same way. Could this be a form of withdrawal from not eating gluten? I would have thought that I would feel bad right after the diet change not 2 months later. Does anyone else that has gone gluten free in support of a family member have similar experiences?
I apoligize if this is posted in the wrong section of the forum.
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dkelley added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease12 Year Old Son Diagnosed, No SymptomsMy son was diagnosed with Celiac Disease on 02/07/2012. The diagnosis was based on blood work and a biopsy. He has never suffered any of the normal outward signs of Celiac and was only tested because he has always been small and had a 6 month period where he did not gain any weight. He has now been gluten free for just over 2 weeks and is adjusting well.
The concern that I have is that since he does not have the symptoms, how can I be sure that he is truly not eating gluten? I have read so many comments about the fear of cross contamination, as well as about hidden ingredients in some food. From what I have read most people’s body will tell them that something is off and they can learn from that experience. Does anyone have any advice on how we can be sure he is gluten free? Will we just have to wait for his next blood test in 6 months and hope that his levels have come down?
Thank you for the feedback. I have read many discussions on this forum and I have learned so much.
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