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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About RuskitD

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    1. RuskitD added a post in a topic Why Is Tuna Making Me Sick?   

      If there is a corn sensitivity, it could be getting you in many ways. Fish are caught and put in a vat of corn based citric acid/water for the trip to land. Many 'tuna in water' really isn't 'water' but vegetable broth. Vegetable either being corn or soy. Then there is the can lining, as mentioned. But I would guess your mayo has corn also.
      I personally have found that since going gluten-free I can eat some things that used to kill my gut. Like citrus no longer bothers me. But then there are things I seemed ok with before gluten-free (and CF) that I can no longer tolerate. My best advice is listen to your body. If it says DON'T, then don't try to force it to say YES.
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    2. RuskitD added a post in a topic Gluten Free Since Sept...but ... Still Sufferring   

      That is what happened to me. In my case, I traced it to corn intolerance also. I found going gluten-free was easy, this is the best day/time in the world to do that, as more companies are careful to label things gluten-free. Its not the same with corn, there are many derivitves of it, hiding under other names, and it is used in/on nearly everything. Going on a clean unprocessed diet is not much help, because, for instance, fresh produce is sprayed with corn, meat processors use corn based cleaners.
      Good luck finding your answer. You might want to look at corn next. Celiac and corn intolerance seem to go hand in hand.
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    3. RuskitD added a post in a topic Fading Fast. And I'm Just Getting Started :(   

      I feel your pain. I went gluten-free, thought, hey, this is no big deal! Then the realization of the corn, dairy, then soy.....
      In my case, just avoiding the actual corn, corn meal, corn starch, etc is not enough. Even the itsy bitsiest bit of citric acid in something makes me gain 10 lbs overnight and takes three weeks to go away. So discouraging! I was healthy two months out of 10, and that was when I only ate from my garden. No garden now.... ugh.

      To address constipation, for those who have it.... make sure you get enough magnesium. That helped me. Then I got a fiber called Heathers Tummy Powder. Nothing like psyllium (which my body began to reject), it actually feels soothing to the guts, instead of violent. Also, I began ground flax meal daily trying to get Omega 3s, and that is helping also.

      I also had to cut out all dairy for 6 months. I got brave enough to try butter again, and have not reacted to it or whipping cream. (the fat of the dairy)

      For insomnia.... this was a duh moment for me. I always slept 10-12 hours a night, before I stopped grains. I now realize I only need 5 hours of sleep at night. I set my alarm to wake me up at 5 am, so I don't oversleep and cause trouble the next night... and I go to bed at midnight. My tossing and turning has stopped, I now sleep when I am in bed. Ahhhh......

      Hang in there, everyone! It has GOT to get better. At least I am hoping it all will.
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    4. RuskitD added a post in a topic I Am Feeling So Helpless   

      Raz, I feel your pain! Although I didn't think gluten was hard. I thought it was a piece of cake. I kept good spirits about it! But that was easy, then, because I suddenly felt so well.
      I shouldn't have gotten used to feeling well I guess.
      Just when I think I have done 'everything right', I get corned again. When people ask me what I eat, I joke... the lawn. I am beginning to feel that is all I will be able to eat.
      Things look even bleaker when you are battling the pain.
      Somedays I don't even bother to eat.... it actually makes me feel better......

      I hope you find your answers!
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    5. RuskitD added a post in a topic Question For Those Who Are Grain Free   

      If I may update? I posted in June. I have been gluten-free since early February 2012, grain free since March. I have not been accidently glutened onceI But by corn, yes, many times. I also gain about 10 lbs (of fluid and inflammation) within a few days of corn exposure (and it can be as teeny of an amount as in a vitamin pill).

      I hadn't lost weight in June, but since then, I have lost 34 lbs.
      Grain free, dairy free.
      I eat lots of coconut oil and eggs. I sometimes don't feel hungry, and I know I am way below the calories I should eat in a day, so I will add extra coconut oil to make up my calories.
      It has seemed to work!
      I just wanted to feel better, even though I needed to lose weight, I'd given up trying. Yet it just melted away. I am normal range body fat for the first time since I was 26! (I'm 51)
      I won't ever even try to add them back to my diet. I see no need ....
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    6. RuskitD added a post in a topic A Freedom Diet? Im So Lost!   

      I wish I could offer you help with the cookbooks or links, but I do not. I just wanted to stop in and offer a HUGE GENTLE HUG. I know it is frustrating to deal with all of this and with a foggy mind on top of it.
      I hope your answers come soon!
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    7. RuskitD added a post in a topic A Little Venting   

      Persei, I feel your pain, literally! I am so sorry you are going though this! We just don't deserve the suffering we are going through!

      I am very much in the same boat as you. My choice of foods is quite limited, mostly due to SEVERE sensitivity to corn, which is in and on nearly every food product in the U.S.
      I will never eat out again or accept an invite to dinner. Shopping takes me minutes since there are so few foods I can trust to consume. I accepted all of that, quite well, I thought.

      I was doing great, for two months. I liked that feeling! Now, its back.....
      I have changed nothing .... not been accidently contaminated.... but now that pain in my midriff is back, the having no desire to eat, because I already ache there. If I eat, I bloat.
      I never cry, but this week I am ready to. How can you do everything 'right' and still be wrong?
      I am not sure.

      Gentle hugs to you. Praying that your health will turn around soon, and last a long time!
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    8. RuskitD added a post in a topic Stress Response Or Accidental Glutening   

      Hi Cindy, I know your post is a month old, but I was wondering the same thing. I came here and did a search before posting. I swear I have not been glutened, or contamainated by other things I am sensitive to, but I am under severe stress and suffering as if I have eaten the wrong thing. I am on day 3, and not feeling a lot better.
      Did you go on to feel better? Did your stress go away first?
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    9. RuskitD added a post in a topic Pls Help Me Find Supplements!   

      So frustrating, isn't it?! I have no reaction to Twinlab Allergy C. I used They are good to list the "no" list on their website of each product.
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    10. RuskitD added a topic in Other Food Intolerance and Leaky Gut Issues   

      Safe Otc Medicines?
      I am in search of OTC medicines that others can take without reacting. I live in a farming area, and harvest is in full swing. Though I have not consumed anything to react to, I am having issues with fluid in my ears and a mild congestion, that I am certain comes from airborne sources.

      I am Celiac with corn/soy/dairy/peanut intolerances. Even the teeniest bit of any of these can cause a week long reaction.

      Specifically, I wonder if anyone with similar intolerances has reacted to name brand Sudafed. It used to be my 'go to' medicine for fluid in my ears. I haven't had the fluid since stopping gluten/corn/soy/dairy/peanut, so I hadn't tried it. I have not had a reaction to a hidden allergen in over two months, and would like to keep that going! I don't want a setback!

      I called the compounding pharmacy, and the minimum order they will make me 90 pills of Sudafed for $100 but insist on using a "filler" that they do not know the source of. (could be rice, corn or tree bark, no guarantees). I do not want to risk that much money and a reaction!

      Please give suggestions to me... what you have found you can take that you don't react to.... by way of cold medications, or allergy meds.
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    11. RuskitD added a post in a topic Weight Loss..constant Struggle   

      You might also 'test' yourself for other foods your body cannot tolerate. I learned that here, at this site, and found many that I reacted to. When I keep those things out of my diet, I can drop 2 lbs a week, easy. I found I am extremely sensitive to corn in any form. A "contaminated" pill or a bit of citric acid (which is usually corn based in the USA, and seldom even listed on a label!) will shoot the scales right back up 5-10 lbs. And I am back to where I started in weight loss.

      It can't hurt to test yourself, then you will know for certain.
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    12. RuskitD added a post in a topic Pity Party, Frustration, How To Lose Weight?   

      nomoregluten, actually, the low carb way of eating has cleared my mind! Stopping gluten began my mind getting clear. But living low carb has really given me back my faculties! I can 'mentally spar' and have a quick wit again!!! It amazes me every day!

      T.H. You hit the nail on the head for me. This has been a process, a journey. Going gluten-free was easy for me. Finding out I was corn/soy/dairy intolerant didn't seem that hard either. Until I get to thinking I need to add something to my diet.
      I fear fresh foods now. It seems nearly everything has been sprayed with something I react to, I am assuming citric acid. But you can't know for certain what it is SINCE THEY DON'T LABEL IT!

      I give up new foods now. I finally surrender. Waving the white flag!!!!! It seems my scales jump, just as you said, about 10lbs over a week's time with getting a reaction to something. This last week it was raspberries. Midriff pain and hardening, bowel trouble, and the headache that lasts.
      If I don't grow it myself, pick it myself, I am not trying another new food! I will just have to supplement my nutrition with pills I guess, and pray it makes up for whats lacking in my diet. Thankfully I have found some I can take that don't make me react.

      My hubsy says its cuz I am higher evolved than those around me. He thinks I am an alien. LOL My body is too evolved to handle the lowly diet of the human race. ROFL
      Guess thats why I come here, to hang out with others who are equal to me.... unique and highly evolved!
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    13. RuskitD added a post in a topic The Honeymoon Is Over   

      I will share my favorite mantra, learned here....
      keep a food diary. You do not have to log how much you ate. Just note everything you put in your mouth. Then log how you feel. Even the slightest 'off' symptom. I made notes all day long on how I felt.

      You may be surprised to learn you have had another food intolerance develope that has nothing to do with gluten.
      I kept my diary, as per suggested here. After reactions, I found it wasn't gluten at all. I developed other intolerances/sensitivities.
      Then cut that food out for 2 or 3 weeks and go back and try it again. You will have your answer quickly on whether or not that food can be tolerated.

      We cannot begin to understand how complex our bodies are. It seems very common that after stopping gluten, and our body adjusts to NOT being poisoned by it, and having to live in PROTECTION FROM GLUTEN mode, that our body decides there are other foods we are putting in there that it just doesn't want.

      When I quit gluten, I munched popcorn and corn chips, thinking this would be simple to live without gluten. Then in less than a month, BAM! I began reacting to it.
      Corn and soy make me 'feel' just like gluten, except I don't get the "D". Soy will make rumbles in the depths of my body, as well as make me feel tired and lethargic. Corn (any form of it) gives me heartburn in 1/2 hour, and then makes me feel exhausted, foggy, despondent for days.

      For your health, please look deeper into what you might be reacting to, and don't just assume its gluten.
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    14. RuskitD added a post in a topic Sudden Adversion To A Food I Can Eat?   

      Everyone, thank you for the posts! I don't feel so weird now. Won't rush off to get my head examined just yet. LOL

      PaulieWog, I have no aversion to it chocolate either, but my body does. I was making my own little cocoa/cane sugar thick chocolate syrup to eat with a spoon for a choco fix. But I got raging heartburn so bad.... I gave it up. Ohhhhhh how nice it would be to have chocolate on my tongue! Have a piece for me... please?

      Other than the chocolate, I refuse to pity myself. I am luckier (so far) that I can still have things many here cannot. Eggs being one!

      Shauna, thank you so much~! I had already decided what you suggested. It feels good to have validation! I figured if my body said NO, then NO is the answer! At this point, it knows more than I do. I listen closely, and give it what it asks for, and keep from it what it doesn't want.

      This can be a wild ride sometimes, figuring what we have to live without, while trying to eat SOMETHING! Yes, I have reacted to fresh, already cut up watermelon from the store. It had no packet in it, and no ingredient on the label other than watermelon, but it did a number on me. I later realized, of COURSE they sprayed it with citric acid to keep it 'pretty'. So, though I don't 'know' I reacted to citric acid, my body knows I ate something very wrong.

      I gave up regular table salt too. I guess the iodine is a corn derivative. Either way, it felt like it was killing me.

      Thank you all!!!!!!!!!!!!!!!!!!!!!!!!!!
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    15. RuskitD added a post in a topic What Else Can Cause Celiac Damage To Villi?   

      GottaSki, you are not losing weight because you are starving. No one should be under 1200 calories a day. You are only taking in 800, and of that, who knows how little your damaged body is taking in? I know its scary, you are afraid you will gain weight if you eat more, but you HAVE to UP your caloric intake or you will not lose weight!

      I was there myself, so I know. After going gluten-free I was not hungry. I wasn't about to eat so much at a meal as to cause stomach distress and bloating, I lived that ALL MY LIFE on gluten! For the first time in my life my stomach didn't hurt and I sure wasn't going to make it feel bad by over-stuffing myself.
      Family said I eat like a bird. So out of curiosity, I joined an online 'diet' site, that allowed me to log every bite of food. After keeping track for two weeks, I averaged 800 calories a day. Some days as low as 500. I thought 'eating until I was satisfied' was an indicator of enough food. But I realized my healing body had no clue what was 'normal', what was 'satisfied'. All it knew was it was sick, and it wanted to repair itself.

      If you are not getting nutrition, how can your body heal? How can your hormones balance? It can't happen. You body needs all the nutrition it can get. With mal-absorption, chances are a great deal of the food you eat isn't even going into your system. You may actually be getting 400 calories a day into your blood stream. Your body would barely exist on that. It would have no energy to heal.... just exist.

      For your health, and for your weight loss goals, you really need to UP your calories. I don't know how tall you are, you can find online calculators to help you. But let me share with you what I did. I added 1000 calories a day, for a month. SCARED TO DEATH I would gain!!!!! I did NOT gain an ounce, I began to lose. I believe it was mostly fluids, but that was good. In starvation mode, your body will bloat. (you may also carry some inflammation in your body it cannot get rid of due to starving) A starving body hangs onto everything it can just to keep going. When it knows it will be given what it needs, that it can count on that nutrition coming it, it quits clinging to fluids, and lets them go. I was not obese, as the charts said! I was filled with fluids.

      After a month, I dropped my calories down to 1200, even tho the calculators said 1500 for me. I stopped losing. UGH! I upped it to 1500 and began losing again.
      I have no idea how much of my intake my body actually absorbs. Part of eating is just having faith that even though you cannot see the changes, you have to believe giving your body what it needs is making it start to work like it should, and that things are healing and adjusting in there. Even though you have no way to see or measure it.

      One thing others here have preached, and I listened, was healthy fats. It was a way to increase my calories without stuffing my stomach to overfull. Coconut oil and avocado every day. Its working !!!! Healthy fats do so much to heal our bodies in so many ways.

      I know you will be scared, but try what I suggested for a month. What have you got to lose? You may in fact gain your health and begin to lose the weight. Clearly, what you are doing now isn't working for you.

      Good luck!!!!
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