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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About TJSpin

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    1. TJSpin added a post in a topic Can You Explain This One?   

      Search for "deamidated gliadin". My understanding is that the wheat in the US has deamidated gliadin and that Europe doesn't allow for the import of our wheat. I believe Dr. Davis, from Wheat Belly, stated that on an Underground Wellness podcast.
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    2. TJSpin added a comment on a blog entry Enterolab: A Scientist's Viewpoint   

      [quote name='Skylark' timestamp='1307861997']
      ... there were people in Fine's data who were negative for anti-gliadin and still felt better gluten-free.

      Also, Dr. O'Bryan states that up tp 50% of those tested will test negative with anti-gliadin. That is why they have their new test which test for about 9 or 10 other peptides of gluten. So, he states that even with the saliva test through Cyrex, only those who have a positive test can rely on it. Those with a negative still have to take the blood test because it test for the other peptides.
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    3. TJSpin added a post in a topic Toddler, Should I Do The Endoscopy?   

      This is what you stated earlier: "And she had allergy test at 1 that just showed some egg/peanut sensitivity". I would recommend completely removing any foods that she has any response to. Maybe not a dairy issue at 1 because she hadn't had any yet?? I am not sure how that works. Dairy issues, as others have said, can go hand-in-hand with gluten sensitivity. I thought I heard someone say that up to 50% of those who are gluten sensitive(or maybe it was intolerant??) also have dairy issues. Look into cross-reactive foods and you might find some useful information.

      Just a thought!

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    4. TJSpin added a post in a topic Toddler, Should I Do The Endoscopy?   

      Did you see the results on paper? I would double check to see how many samples they took. They should have taken 4-6 different samples because the false negatives go way up if they take fewer.

      Might want to ask. Also, I heard that the anti-gliadin (I believe it was anti-gliadin) isn't useful for kids under two. They don't produce the anti-biodies like an older child would. I listen to Dr. Thomas O'Bryan a lot and these come from his statements.

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    5. TJSpin added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      A Question About A Dr. Ford Comment About Blood Testing
      What are your thoughts on this post by Dr. Ford regarding the time off gluten and accurate blood testing? Daughter off gluten for 1 month with 2-3 "mistakes". Could the results sitll be far as blood accuracy goes?

      Antibody tests: tTG, EMA, DGP, IgG-gliadin, IgA-gliadin.

      All of these blood tests measure antibody levels
      • 1 reply
    6. TJSpin added a comment on a blog entry Enterolab: A Scientist's Viewpoint   

      Just to add another positive anti-tTTG test from Enterolabs. My 6 year old daughter's test read 19 units with <10 being normal.
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    7. TJSpin added a comment on a blog entry Enterolab: A Scientist's Viewpoint   

      [quote name='Lori2' timestamp='1309641256']
      A year ago, when my celiac panel came back negative, I did the Enterolab stool testing. My anti-gliaden was positive (219, normal less than 10) but I do not have the DQ2 or DQ8 gene. Since I could find no understandable information about anti-TTG, I had to ignore it. How significant is my anti-TTG score of 86 (normal less than 10)? I’m wondering now just what that signifies.Skylark, I want to thank you for the time you spend helping us understand these things. It’s really appreciated.

      Dr. Fasano stated in [url=""]this interview[/url] that "It’s rare, but 2 to 3 percent of the people who are diagnosed with celiac disease are HLA-DQ2/DQ8 negative."
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    8. TJSpin added a post in a topic Enterolab's Anti-Tissue Transglutaminase Antibody Test   

      All I meant is that people dismiss the information. I meant nothing else by the comment and I certainly didn't mean it as a disregard to your opinions! I'm not that kind of person to be that way on a forum post. I was mad when writing because I had just spent money on something that I am now thinking was the wrong choice (that I didn't know at the time of order).
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    9. TJSpin added a post in a topic Enterolab's Anti-Tissue Transglutaminase Antibody Test   

      Oh, and I am aware that there is no test for GS. What I meant is that I probably will not go as far as a biopsy for my 6 year old since those can be false, as well. If I can get "closer" to a positive, then I will be done testing!
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    10. TJSpin added a post in a topic Enterolab's Anti-Tissue Transglutaminase Antibody Test   

      WOW. New to this forum and really stressed about this situation. Thanks for the support! I wasn't asking about anything I had previously asked about. I was asking if I should wait for the Transglutaminace BEFORE I get the blood test at my docs. I guess I will find another forum to post my questions so I don't offend anyone.
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    11. TJSpin added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Enterolab's Anti-Tissue Transglutaminase Antibody Test
      I just ordered the Anti-Tissue Transglutaminase Antibodytest through Enterolabs (did the GS testing so they already had the sample). I am now interested in the Cyrex Labs Array panel 3. Should I wait for the Enterolabs report to come back or do people poo-poo that test, too? I cann't keep "wasting money" if that is what I am doing by ordering these Enterolab tests. I am so fearful that the regular blood test won't be accurate. I am not that worried about testing for celiac but I do want to know about gluten sensitivity! I will (and am) responding the same way.
      • 8 replies
    12. TJSpin added a post in a topic Enterolabs?   

      Thanks, will do!
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    13. TJSpin added a post in a topic Enterolabs?   

      I listen to Dr. Tom O'Bryan and he states that only 1 in 8 have the gastrointestional symptoms- 1 of 8 have the silent signs. This is thearticlefrom the New England Journal of Medicine that got me interested in testing. There seems to be a possible link. Also, I have read that it can be caused by a Vit. B12 deficiency. So, my thought process was that if she had intestional issues, she may not absorb it well enough. Also, I wrote to Cyrex Labs and they thought it was worth testing. Those things were what made me get her tested. I guess I'll have to go with the blood test, then! Thanks for you information, everyone!!!
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    14. TJSpin added a post in a topic Enterolabs?   

      Thanks everyone. I had her tested for gluten sensitivity through Enterolabs because of the ease of the stool test. She's 6 and if I could avoid a blood draw, I would. I am talking to my doc about the blood test but don't we all know how unreliable that is, at least for celiac diagnosis. Is the blood test more reliable for gluten sensitivity testing? Also, being 6 I just wonder how destroyed her intestines could really be? She shows no gut issues but does have tooth enamel issues and geographic tongue. She's the shortest in every class she's in but so are her dad and I. I don't think a removal test would work for her...although we are doing what we can/know to be 100% free of gluten. So, basically, we could be going through all of this worrying for nothing (not that we would eat gluten anyway)?
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    15. TJSpin added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      I got my daughter tested for gluten sensitivity through Enterolabs and she came back positive (73 units, <10=normal). I'm reading a lot about the stool test debates. Is it just that some think it is a test for celiac when it's actually for GS? OR, is it the test altogether? Do some think a positive gluten sensitivity test could actually be negative?

      • 18 replies

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