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isasmommy

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About isasmommy

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  1. Ibs

    Hi, I am new to the forums but I had a similar experience. 1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents. 2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD). I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac. 3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use. Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue. Hugs and I hope you feel better.
  2. Hello everyone, I'm new to the forum and want some input of people that have gone through the testing previously. I was diagnosed with Celiac two years ago and have been following the gluten-free diet. Over the last year, symptoms have gotten worse: more cramping, extreme fatigue, joint pain, and had been hospitalized with inflamed colon. Had subsequent endoscope/colonoscopy again and had found inflammation in my colon suggestive of colitis. They diagnosed me with microscopic colitis on top of the celiac. So I have been on Entocort for 2 weeks. I had also been referred to Rheumatology after a positive ANA (1:320) because of the joint pain and fatigue that did not seem to go away even when the vitamin D level in my serum increased (initially 10 then went to 30's). I recently got some test results back for ENA (positive for dsDNA ab, anti-RNP ab, anti-SSA (Ro) ab, anti-cardiolipin ab (both IgG + IgM). The nurse called and said they wanted to schedule an appointment to discuss the test because the doctor believes I have another autoimmune condition and wants to sit down and talk to me. This got me thinking and worried that they think it is Lupus. I have a family history on both sides of autoimmune (crohn's, ulcerative colitis, hypothyroid, RA, lupus--> no body has celiac except me). I am thinking that they will say Lupus and want to get some feedback on others that have gone through this also. I read the previous post asking about lupus, and read the comments regarding letting my body wait a while after the celiac diagnosis. However, I have been gluten-free for 2 years and now the symptoms are getting worse, I have never felt so tired in my life without wanting to do anything. I used to be a really positive thinker and with lots of energy and now I have turned into a person that is the person that is too tired to do anything and unmotivated. I know the ANA can be false positive for other autoimmune or it can be just normal in people but I tested positive for a bunch of the other antibodies associated with Lupus. I have looked up all these tests and know what they are testing. I guess what I am looking for is some feedback from anyone that has both Lupus + celiac or the other two (MCTD, microscopic colitis). How did they come to the diagnosis and did it get diagnosed after your celiac? Thanks!