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isasmommy added a topic in Celiac Disease - Related Disorders & ResearchLupus Or Mctd Or Microscopic ColitisHello everyone, I'm new to the forum and want some input of people that have gone through the testing previously.
I was diagnosed with Celiac two years ago and have been following the gluten-free diet. Over the last year, symptoms have gotten worse: more cramping, extreme fatigue, joint pain, and had been hospitalized with inflamed colon. Had subsequent endoscope/colonoscopy again and had found inflammation in my colon suggestive of colitis. They diagnosed me with microscopic colitis on top of the celiac. So I have been on Entocort for 2 weeks. I had also been referred to Rheumatology after a positive ANA (1:320) because of the joint pain and fatigue that did not seem to go away even when the vitamin D level in my serum increased (initially 10 then went to 30's).
I recently got some test results back for ENA (positive for dsDNA ab, anti-RNP ab, anti-SSA (Ro) ab, anti-cardiolipin ab (both IgG + IgM). The nurse called and said they wanted to schedule an appointment to discuss the test because the doctor believes I have another autoimmune condition and wants to sit down and talk to me. This got me thinking and worried that they think it is Lupus. I have a family history on both sides of autoimmune (crohn's, ulcerative colitis, hypothyroid, RA, lupus--> no body has celiac except me). I am thinking that they will say Lupus and want to get some feedback on others that have gone through this also.
I read the previous post asking about lupus, and read the comments regarding letting my body wait a while after the celiac diagnosis. However, I have been gluten-free for 2 years and now the symptoms are getting worse, I have never felt so tired in my life without wanting to do anything. I used to be a really positive thinker and with lots of energy and now I have turned into a person that is the person that is too tired to do anything and unmotivated. I know the ANA can be false positive for other autoimmune or it can be just normal in people but I tested positive for a bunch of the other antibodies associated with Lupus.
I have looked up all these tests and know what they are testing. I guess what I am looking for is some feedback from anyone that has both Lupus + celiac or the other two (MCTD, microscopic colitis). How did they come to the diagnosis and did it get diagnosed after your celiac?
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