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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cate K

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  1. Well now I am stumped. I have been going along thinking that there will be no way that my blood work will come back normal. I guess on that I was partially correct. My blood results showed low iron levels, and the presence of AC anti-actin. (My results are in French so I don't have a literal translation). and the fecal test showed high levels of fat. I had thought for sure that the Ac anti-endomysium and the IgA & G would show positive but they came back within normal levels. From what I read about the tests on the internet the presence of AC anti-actin would be more likely to indicate autoimmune hepatitis. My doctor has suggested that I have the biopsy done but for me that means a trip to either Singapore or Thailand. He has no experience whatsoever with Celiac Disease. I guess given the other possible outcomes it is probably worth the trip to obtain a firm diagnosis - one way or the other - but it sure will be one expensive biopsy (I live in Saigon). Any thoughts or experience with this?
  2. Thank you for the info. Have you had any testing done?
  3. THank you - I will check that out. I am going crazy
  4. Hello, Because of all of the trouble I have been having with gluten, I have recently taken it out of my diet. Thus, my daughter is eating the same food I am. How long can she be off gluten before it would affect her blood test. I would like to have her tested after I receive the results of my blood work which will be the middle of March. Should I have her continue to eat toast etc? I have tried to rid my kitchen of gluten containing products, but I would like to make sure her blood work is accurate. Right now she had no definitive symptoms, but complains frequently of a tummy ache. (It happened so frequently that I thought she was saying that so I would let her stay home from school). Please share if you have experience with this. Thank you very much.
  5. Hello All, I am quite new to the world of Celiac Disease. I am currently in the process of having my blood tested and I have to wait until March 16th to get the results. (I am currently living in Vietnam and they had to send the tests away). That means almost 3 more weeks to wait. What I am experiencing now is frightening the daylights out of me. I am not sure if I should keep waiting for the blood results or go to the doctor for a CT scan of my brain. I am hoping that someone who has Celiac can tell me if this is normal. I should add that I just started this morning on a gluten free diet. What is happening is that my brain feels like it is floating above my body. Sometimes I get dizzy and sometimes, when I am looking at something, the picture of what I see sort of "flashes" to the next scene. I am also forgetting the simplest of things (what I had for dinner 2 nights ago, that I left the water running in the sink for the dishes, important things I am supposed to do etc.) This is very unlike me to forget anything. In my head I am, of course, thinking brain tumour. If anyone else has experienced this I would love to hear from you. Is this something that could be typical of Celiac. I have read about "Brain Fog". Thanks for your input. I look forward to hearing from you.
  6. Hello All, I am quite new to the world of Celiac Disease. I am currently in the process of having my blood tested and I have to wait until March 16th to get the results. (I am currently living in Vietnam and they had to send the tests away). That means almost 3 more weeks to wait. What I am experiencing now is frightening the daylights out of me. I am not sure if I should keep waiting for the blood results or go to the doctor for a CT scan of my brain. I am hoping that someone who has Celiac can tell me if this is normal. I should add that I just started this morning on a gluten free diet. What is happening is that my brain feels like it is floating above my body. Sometimes I get dizzy and sometimes, when I am looking at something, the picture of what I see sort of "flashes" to the next scene. I am also forgetting the simplest of things (what I had for dinner 2 nights ago, that I left the water running in the sink for the dishes, important things I am supposed to do etc.) This is very unlike me to forget anything. In my head I am, of course, thinking brain tumour. If anyone else has experienced this I would love to hear from you. Is this something that could be typical of Celiac. I have read about "Brain Fog". Thanks for your input. I look forward to hearing from you.