This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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I am currently on day 5 after my last glutoning. I can't believe I keep being so careless. It was sunflower seeds that must have had CC. Now I am leary of my sunflower oil but I have not had any issues from that. I am down to just olive and sunflower oil as my only sources of good fats now. I am too scared to try others. My IgG shows I am intolerant to dairy, eggs, almonds, bananas, cranberries and pineapple but not wheats/glutens. Yet I am reacting to everything lately because of my leaky gut. I am off soy, corn, yeast. I am down to like 10 safe foods and I am a prisoner in my own home. I did get a HIDA scan and my GB is fine. I still have sharp pains in that area so I am assuming my liver is bothering me. I have been on Milk Thistle for about 2 weeks and some symptoms have died down but not enough. How long does it take to detox a liver?
This latest gluten illness has been the worst by far. I was in the hospital a couple of times this week. First it was for dehydration then malabsorption. I am not absorbing any of my water/foods and it makes me hypoglycemic and of course makes me lose more weight. This is day 5 and I am still having trouble absorbing my foods/fats. Having lots of C and floaters. Still shaking all the time from low blood sugar. And so weak that I spend most of my afternoons in bed with a killer headache. I can
I am not confirmed Celiac but went gluten free due to a Endoscopy that showed lower intestine damage. 2 Biopsies taken came back negative.
I have been gluten free since 3/2/12 and then started having all sorts of food intolerance issues. I stopped all corn/soy/yeast/dairy/avacados etc and I keep a diary. I have nothing processed. I am down to veggies, fruits and meats in their simple forms. I get poisoned at least every 3 days. I was on a rotation diet but I was getting burned left and right so I stopped and just started eating some safe foods but I still got burned on Tuesday of this week. Yesterday I got my IgG test back and I am sensitive to almonds, eggs, bananas and cranberries but no gluten/wheats. I had stopped eggs and almonds 2 weeks ago but I was having a bit of cranberries and bananas up until yesterday. Today I have not had any, i behaved all day. The only thing that bothered me today are fats. If I don't eat them I get terrible and unbearable pains in my back. So I have been drinking little bits of EVOO here and there with food today to add it back into my diet a bit but my stomach burns when I do it.
I am so terrified of getting sick again. My major symptom is dehydration as soon as I fall asleep, it's like I dry up like a raisin immediately and my kidneys hurt from it so bad. It's like every organ inside me dries up and I can feel it and I get very sore on the inside for days and then I get burned again and its just a nightmare over and over again. Of course this causes insomnia, anxiety and night sweats with cold and hot flashes. I fear I can't live through much more of this. I am down to 100lbs and steadily dropping because I am afraid to eat.
A urine test a week ago confirmed blood in my urine but they thought it was a kidney infection and sent a culture out to the lab that came back negative so that was the end of that. I saw my new GI tuesday and she also noticed blood in my urine. She took 6 viles of blood for more celiac, IgG tests and liver tests. I have a HIDA scan scheduled tomorrow if I can stay unsick until then. I wonder if the radioactive dye will make me sick...
I am also nervous that the EVOO burning may cause me to get sick but I won't really know until I fall asleep tonight. (wierd huh?) I saw my ND yesterday and I was so sick but she made me this remedy that has really helped with my symptoms this time around but its made from arsenic and I am not sure I want to keep going to her and paying for poison to treat my problems. I would have to pay $70 for each dose from her as well.
My question is... Do you think just stopping the cranberries and bananas will stop me from reacting? Or am I doomed? I still rotate my dinners and lunches but I stick to safe similar foods during the morning and snack times because of advise from my ND. Is that bad? Almost every thing i eat is on the IgG test and shows as a safe food.
If my gallbladder is bad and they remove it, will my weird intolerance symptoms change?
My ND instructed me to put a pinch of salt in my water and this is to help maintain electrolytes. I have noticed it works a little better than just regular water but some gatorade would be nice right now but Im too scared to try it.
I am seeing a new GI on monday and I will let her know about the GB dyskinesia and ask for a scan. I have researched it a bit and my symptoms do seem to match. I wonder if my intolerances will go away if I have my GB removed. That would be nice.
No I haven't had an HIDA scan. I just had an ultrasound and everything looked fine. According to the ER the tests I took with the DR last week were all negative. I know my kidney pain is from dehydration. That is my number one symptom when I eat a food intolerance. My mouth drys up, my kidneys hurt and water just goes right through me without being absorbed at all. Then comes the high emotions, the shaking, insomnia, hot/cold flashes and night sweats. These same things happen every time. If I tell a DR this info, it's like it goes in one ear and out the other. My symptoms are pretty quick too because I will know within 20 min of eating something that I am going to have a reaction. I will just start crying for no reason.
I will try and play it real safe tomorrow. I am cutting out every supplement that the ND gave me. If I become intolerant to another food tomorrow I will have to go to the ER again because I am sooo dehydrated. I am adding sea salt to my water and drinking lots of bone broth but it's just not working.
Turns out the HMF probiotics I were given were grown in milk. I can't believe my ND gave me those!! I can't believe I trusted her and didn't check on my own!! So i have been sick again, It took me 2 days to figure out what it was. Yesterday was another ER visit for me because I had a panic attack about how this is the way my life will be forever. I will never get well and I will always have to eat this crazy diet. I walk down the isles of grocery store seeing food after food that I can never eat. I turn down social invites so I don't have to show people my freaky diet.
The ER gave me a shot of Lorazapam and I actually got some much needed rest and was able to relax for a few hours. They gave me an rx but i can't use it because it has a lactose base. Figures!
Im starting to become afraid of food. I bring the fork up to my lips and think, Is this the time that my body will reject this food? I am on my all grains/veggies/fruit diet and I feel so scared that I am running out of foods. It's only a matter of time before I am intolerant to everything. Then what?
I am getting new weird pains in my liver area after I eat. What is that about?!
Once again, I hate my life!!!!
I went to my ND today. She wants me to stop the rotation diet since I seem to be getting worse since I started it. I have to go on an all grain and veg diet since those are the foods that bother me the least. That means quinoa, rice, oatmeal and amaranth for me for awhile. I seem to have trouble digesting proteins. She put me on HCL but only if I eat proteins. She also gave me a live probiotic that I have to keep refrigerated. I was on iFlora but she wants me on the live one. I have to drink 2 protein shakes a day that she gave to me that will make up for the loss of meat in my diet. She agrees with going off eggs and nuts too. I also have to continue my enzymes and L-Glutamine 3x a day along with my bone broth.
She strongly believes that I don't have Celiac and that my problem was caused by over use of steroids/nsaids and PPIs. The PPIs suppressed my acid so much that my stomach doesn't work properly to create enough acid to properly digest food which lead to the leaky gut. HCL is supposed to help with that along with ACV I take before each meal already. She also gave me a dose of some "remedy" that she made for me based on my symptoms.
I think it psychosomatic but I already feel better. (except for my kidneys) I am taking cranberry and D-Mannose 3x a day for that so I hopefully can avoid antibiotics.
Some of the stuff she says does go against what I have read on these forums like the rotation diet and eating all grains for awhile but she really seems to know what she is talking about. She says she has treated many people with leaky gut and alot of kids seem to have it. I feel good about trusting her judgement. It is nice to have some hope in all of this mess. Cross your fingers for me!! Say some prayers too.
I can't take motrin or NSAIDS. I went to a new GP today and she gave me Levsin but I am afraid to take it. Most meds give me dry mouth and sores amoung other side effects. She also said I might have a bladder infection because I have extra white cells in my urine but she is going to wait for the culture to come back before prescribing antibiotics. Now I am definitely scared to take those. What about my gut flora? Not to mention it has to be gluten/dairy/corn and soy free!!!
I think I have cried everyday for the past 2 months. Is this ever going to clear up? I am taking all nuts and eggs out of my rotation diet which takes a huge chunk out so Im really going to start losing weight now. I am so scared this disease is going to kill me in a long drawn out way.
I see my ND tomorrow and I think she has some kind of remedy she has made up based on all of my symptoms. I am feeling discouraged though. Almost like its some make believe fairy tale in a bottle that is suppose to help me. Nothing seems to help and I only get worse each day.
@bubbas mom, how quickly were you able to add back eggs? 1 week? 2 weeks? What other fish? Can I have talapia, tuna or salmon?
My cc issues were from a frying pan that was used with wheat but it has been dealt with. I had been using that pan off and on all month so I am sure it was more than 3 times and now my body is so overtaxed that I can't get it to calm down. I am down to 100lbs and falling!! I can't keep the weight on and it seems everyday I lose another food.
I am trying not to give up but it is so hard. I was sick again last night!! So it was either the melon, peanuts or my smoothie,i am not sure which one though. Is there anything I can do for these aweful cramps! I can't take it anymore!!
Today is another bad day. I got glutened 3 days in a row by CC and I discovered Old Bay and Pears are new intolerances for me. I have been grappling with C&D for the past week. My husband got mad about how strict my rotation diet is, he wanted to add spices to the chicken. He has been sharing dinners with me from the start but I guess its getting to him. At least he gets to eat what he wants at every other meal.
This is one of those days where I just want to throw in the towel and give up. I bet no one would even notice. I hate my life!!
I started the rotation diet last week and I am still having issues. I write everything down and I think I got cross contaminated from a teflon pan a few days ago,so I went out and bought another one. I got sick again. So I brought it back and got an anodized pan, I used it yesterday but I can't tell yet if I am going to get sicker because I am already sick from the other contamination. I know I am having issues with another food intolerance but I just can't put my finger on it. My IgG tests won't be back for another week or so. I already gave up soy/corn/gluten and dairy!! WTH!
I read an article today the microwaving your food causes toxins in the food. Have I just lost another tool I can't use? I have to microwave my leftover food everyday at work. Does this mean I will never heal my leaky gut. I just had to replace all of my teflon pans too. How am I going to warm up my food?? This thing is going to kill me!!
I woke up in another one of those moods. It's like I have one good day then one bad. Yesterday was great, but today I already had D twice. I feel like Im starving to death but I am always eating. At least today I see my new ND. I hope she is worth the $240 I have to shell out of pocket! I am also seeing a nutritionist with the military today, at least that is free.
I feel like Im wasting away, I am down to 103lbs and it never seems to stop. My back and kidneys hurt this morning, not sure what that is about. I think I might of slept funny though. I will tell the ND about it.
I can feel my emotions building up again today. I hope i can get through it.