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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ukdan

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    • Birthday January 04

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    • Gender Male
    • Location Essex, UK

    ukdan's Activity

    1. ukdan added a post in a topic Gas And Can't Figure Out The Cause   

      Before you start suspecting other foods and cutting them out give it another day or so. Garlic and chickpeas are both gas producing foods (especially when your stomach is vulnerable) and it can take more than a day to clear from your system.
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    2. ukdan added a post in a topic Fructose Malabsorption   

      I've had similar problems with sugars and have found following a low FODMAP diet helps, I haven't got any links to hand but there is plenty of stuff online if you search for it.

      I've found it is still a bit trial and error as not all foods listed as 'safe' are suitable for me personally but it has helped a lot once you figure out the main culprits of the bloating.
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    3. ukdan added a post in a topic Leg Sweats   

      I'm self-diagnosed but I did find I was the same, not only my legs but all over even with a cold room in British wintertime!

      It has improved since going gluten free so hopefully it will be the same for you.
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    4. ukdan added a post in a topic Anti Anxiety Medication   

      I am also self diagnosed and currently on citalopram- whether you stay on them is entirely up to you and how you feel so I don't personally think anyone can tell you when it is the 'right' time to come off them.

      For me personally I'm giving the diet a chance to settle in before putting my stomach through the withdrawal symptoms but at the end of the day only you know how you feel.

      Hope that helps and all the best for your recovery!
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    5. ukdan added a post in a topic Newbie   

      No, you're not crazy- either that or we both are! Apart from anxiety and dizziness I haven't had many neuro symptoms like yours (although those are related to celiac) but I've had all the stomach problems.

      I have been similarly lumped into the 'ibs' category (pending upcoming biopsy results) but found I have been much better off gluten, dairy and soya. You may also want to look into sugars as well as fructose malabsorption may be an issue seeing as you appear to be quite sensitive at the moment.

      If you feel better without it don't worry what the doctors do or don't label you with, you're not alone!
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    6. ukdan added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Test Results
      I finally got *most* of my results from my bloods (full count, TTG and thyroid) and endo/colonoscopy and was told I had no evidence of coeliac/crohns.

      This should be good I suppose except it doesn't make sense in that coeliac fits all my symptoms and since the tests were done I've been back off gluten and feeling better if not completely 100% yet.

      The doctor then mentions that the biopsy results aren't back yet but he will safely assume, based on all the other results, that they will be clear as well(!)

      Whatever they find in those results (they will get back to me next week) I'm assuming I have gluten intolerance, relatively relieved in the knowledge that no major (if any) damage has been caused.

      Sorry for the venting, just thought I'd say it to people that understand rather than those that keep on saying 'ibs' and 'stress'!
      • 1 reply
    7. ukdan added a post in a topic The Endoscopy   

      I wasn't put to sleep for mine but they gave me a mild sedative and local anaesthetic and apart from the initial 'swallowing' (which is just weird rather than painful) it was fine.

      As long as you have someone to take you home you're discharged a few hours after the test. Really nothing to worry about!
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    8. ukdan added a post in a topic Sweating Caused By Celiac   

      Have you had your thyroid checked in any tests? That can stop your body regulating temperature properly (hence the sweating) and is also linked to anxiety and depression.

      Not saying this is definitely the cause as I am by no means an expert but was just a thought.
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    9. ukdan added a post in a topic Gluten Intolerant, What To Eat?   

      Hi Helene, I can't really add much more than what has been said already but I can point you in the direction of a good bread recipe (in my opinion anyway)

      It is also dairy and soya free should you happen to be avoiding them like me. Despite what it says I don't use all the flour mixtures and make up the quantities with just rice flour and potato starch and it works just fine. It also works just as well in a bread machine on a basic setting.

      Hope this helps!
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    10. ukdan added a post in a topic Question About Gluten Challenge   

      I was advised the equivalent of 3-4 slices of bread for 6 weeks, I'll find out soon whether it was enough as I've also heard it should have been longer.
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    11. ukdan added a post in a topic What Have I Been Tested For?   

      The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests.

      Beyond that, without knowing what other blood tests were run I wouldn't want to make any suggestions as to what they have called you in for. It is probably best not to worry too much about it until then!
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    12. ukdan added a post in a topic Wish Me Luck!   

      The scopes went fine and the gluten free diet (take 2) has started! The doc said it all looked clear but took biopsies to look at 'just in case' *rolls eyes*.

      Will see if they say the same when they actually look at the biopsies properly, although apparently that may not be for another month- the wonders of the NHS!
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    13. ukdan added a post in a topic Wish Me Luck!   

      I definitely understand what you mean youwillrise about control which is probably why I'm hoping for celiac/gluten sensitivity rather than anything else!

      I had my blood test earlier in the week, my doc has been very understanding and arranged all the tests around the same time to limit the inconvenience so in theory I'll get all my answers in one go. Will let you know what happens!
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    14. ukdan added a post in a topic Question About Gluten Challenge   

      I don't know if it is common but I've just finished a challenge (being tested later today) and I can say for me it was the same. I did start to question at times whether I did really have a sensitivity or not when my symptoms lessened occasionally.

      All I can suggest from my understanding is that intolerance (whether it is full blown celiac or not) is sensitive to other factors.

      Stress for me is one of them and I found my symptoms were worse when I was fighting off these other stressful factors, probably as my immune system was overloaded.

      I have also read (I can't remember where now) that reactions to intolerant foods can lessen over a time, not because we become less intolerant but because the immune system becomes so overrun it can't fight back so hard. That's not to say however that the damage is still not being done.

      I'd say stick with it if you can as you've lasted this long already but it seems you may already have your answer.

      Hope this helps!
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    15. ukdan added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Wish Me Luck!
      So after what feels like two long months my endo/colonoscopy is tomorrow and to be honest I can't wait!

      This challenge alone has been enough to convince me that gluten obviously doesn't agree with me and I fully intend to remove every trace of it whatever the results.

      I'm not really seeking advice, more just sharing my experience for anyone in the same boat and wondering whether to test or not. For me it has been rough but also for my peace of mind I also wanted to make sure there is nothing more sinister going on.

      Is it wrong to be hoping it to be coeliac?! I know its not fun sometimes but I'm quite prepared for going gluten free again with the advice I've picked up on here and looking forward to getting my life and health back on track!
      • 8 replies

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