Caedia replied to Caedia's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank-you everyone for taking the time to respond to my post. I think what I will do after reading all this is see a new doctor. My mother has one who she recently started seeing and has been investigating the stomach problems for her. Apparantly she is very good about doing the tests and not just passing her her off like a nutcase. She just hasn't tested for celiac. I'm thinking about who else in my family may be affected by this, and I can remember when my grandfather was still here, he was always saying he had stomach problems. He finally passed away due to abdominal tumors. where in his abdomen they were I am unsure. Can untreated (no diet restriction, etc), in celiacs cause such things to happen? (I wonder if any studies have been done on this). Laura - I think putting gluten back in my diet would be too challenging on my system. But perhaps what the doctor can do is test the rest of my family and see if anything turns up. That doesn't give me a definate answer but after this I can always assume that maybe I can get the genetic testing. Wendy - I used to get the sharp bone pain as well alot, not as much anymore though. I've had over 2 dozen fractures (no kidding), and from as far back as I can recall, my dentist has said that since I was little my teeth were not well formed. We always thought this was due to me not getting enough calcium because I have an allergy to dairy. I'll be sure to mention this when I get to a doctor. ianm - I think that I could indeed continue on gluten free, but I think the tests might be useful just to rules things out. Right now I am already restricted on many other foods, so more restrictions are hard to deal with. I just want to make sure its the gluten causing this instead of something else... but again, I do feel a tiny bit better taking what I have out. Kaiti - I'll write down what you said and ask about it... thanks for that information! I'm going to keep on this and see if I can get some answers... I really appreciate everyone help.
Caedia posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi, I wanted to write here to get some opinions on something that has been going on health wise for my family for a long period of time. My mother, sister, aunt (mother's sister), and her daughter (my cousin), as well as myself have had many health problems and the same symptoms of ill health (or mostly the same) for quite a while now. Mind you it was only recently we all started talking about this and realized something wasn't right. A few of us have had tests, but none have been tested for celiac disease. Like I have mentioned most of our symptoms are the same and when I found alot of these symtoms listed at a celiac information site a while back, it has made me wonder if this could be our answer to on-going health problems? Abdominal cramping/bloating, Abdominal distention, diarreha or constipation, chronically dehydrated, lack of energy, excessive gas problems, mouth sores, dry skin (or just extreamly sensitive skin), depression and inability to concentrate.. are some of the symptoms we all share. In my case I have also developed what is probably Amenorrhea (loss of period - a few months now and no chance of pregnancy), weight loss (atleast 15 lbs in a short period of time for no reason - this was AFTER the period loss not before), and have had tooth enamel defects since I was a child. I also read something about people with celiac disease having back pain ... and this is something a few of us had dealt with (lower back pain, as well I seem tto have a odd curve to my lower back which makes my belly stick out in a odd and embarrassing way). There are a few problems as to why I haven't just out and asked my doctor to test me for celiac disease. 1. because I (and my family that have the same symtoms) have a history of depression, the doctors tend to act as though you are automatically crazy and being a hypochrondriac if you come to them with any medical information (like you're looking to have a disease if that makes sense). Its a terrible discrimination, yes, and no Im not crazy, I'm just depressed. Asides from this, I could go to another doctor but when I was diagnosed with a wheat allergy, I also took out gluten (or the majority of obvious sources - I'm pretty sure I'm ingesting some) because I couldn't handle the severity of the symtoms any longer, and not getting any answers from my doctor. I've heard this makes the blood test not show positive even if you are bcause you're not being exposed to gluten? Since I have taken gluten out of my diet, my stomach isnt' always distended, my stool doesn't float, my skin has cleared up, and many more benefits. IT's just occasionally I think I ingest a small amount of gluten in products and then I get severe symtoms from this. Only this past sunday I ate something that gave me severe stomach distention, but this product had no label so I dont know if it had gluten or not. What should I and my family do? go to another doctor because of the discrimination? Should I start eating gluten again because of the blood test problems? What do you think the chances are that so many of us could have celiac disease? Last but not least some of have some symptoms that I didnt ind listed anywhere... , nausea and feeling "too full", and itchy ears (the have dry peely skin in them, I've heard allergies can cause this?), weight gain in the stomach area only, and itchy rear-end (yes I mean anus :S ) ... seems like a personal question but has anyone of thier loved one with celiac disease had these problems? I just want to feel completely healthy again, and if it means this is our answer, atleast we can find a solution and move on with our lives. I'm sick and tired, of feeling sick and tired.