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carlao

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About carlao

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  1. Thanks, squirmingitch. I was on a full on gluten diet and no steroids at the time. He was actually doing the biopsy for Grover's disease - usually affects men (I'm not) on the back and chest (where I had no rash), and yet believed DH was a low possibility because of the location! When this bout is gone, I am planning to start gluten again. Now that I have a derm that is at least aware that dh exists, I will insist on the correct biopsy the next time the rash pops up. (And I can actually get an appointment with him without a 2 month wait!) I will also take along copies of the printouts from your links to make sure it is done correctly. I had no idea the appearance of dh varied so much! Thanks for the info.
  2. This is the 4th time I have had this rash. It begins as a burning, tingling sensation on my right thigh and then on the left thigh. Within minutes, I have hundreds of tiny, pin-head size bumps that begin spreading down both legs, usually to both sides of abdomen spreading to meet in the middle. In the past, My thighs look as though they have been burned, it is so red. It has been on both arms and shoulders and on my upper chest; this time it was both wrists. It is always symmetrical. I have never in my life had any rash or bug bite that was this intensely itchy. It is worse in the late afternoon and at night. The bumps eventually crust over, leaving white, dry flaky patches but they have never oozed any liquid. The first time I had it (following a bout of subacute thyroiditis), it lasted 2-3 months. My family doctor tried oral steroids and 3 different antihistamines. The Vistaril helped me sleep, but nothing helped the itch. Then I tried Clobetasol with minimal relief. After doing a lot of research, I eliminated gluten - and the rash begin to clear a week later. My doctor said it was probably coincidence. By the time I finally got in to a dermatologist, there was not much left to see. This go around, I got in to a dermatologist within days. He mentioned Grover's Disease, allergic reaction, and 4 or 5 other possibilites, including DH, although he said DH was low on his list of possibilities, as he said I did not have it in the typical areas. He did a punch biopsy (on a lesion) and sent me home with a prescription for Clobetasol. I tried it for 3 days and gave up. I was still up all night itching. Back to the gluten free diet and 5 days later, the itching lessened and the rash is starting to go away. My family doctor did do a blood test for Celiac disease (don't know exactly what tests) and it was negative. The only local doctor recommended on this site is a gastroenterologist and I really don't have many GI sypmtoms, although I have been diagnosed with IBS many years ago. All of the pictures of DH I have seen show rather large blisters and mine does not look at all like that - but eliminating gluten seems to be the only thing that helps. What do you think?
  3. You pick the restaurants! My DH is a biology professor, and while he knows the chemical and molecular structures of carbs, fats, and proteins, somehow he can't transfer that knowledge to actual food!
  4. Good luck! Let us know how it goes.
  5. mommida - CCF is Cleveland Clinic Foundation. Stephanie - I did see on US News Top Doctors that Atiye Aktay, MD from UH Rainbow specializes in feeding disorders, celiac, and capsule endoscopy. Maybe try a consult and see if you like her?
  6. Went to the doctor for extreme fatigue, sore throat, swollen glands at base of neck. After a 2 minute exam, was prescribed antibiotics for a sinus?!? infection. Ten days later, I went to a new doctor who immediately ordered thyroid tests and I was diagnosed with subacute thyroiditis. I think we will go with the new doc.
  7. Hi Stephanie, Here is a link to the pediatric gastroenterology department at UH: List of doctors I can not personally recommend any one of them, as we use Akron Children's. I would google their names and see what comes up. Good luck!
  8. I ordered these: GNC Women's Ultra Mega
  9. New here, have been suffering from a symmetrical, intensely itchy rash for 3 months. Family doctor thought at first it was contact dermatitis and prescribed multiple antihistamines and topicals. Nothing helped. She has no idea what the rash is and referred me to a dermatologist (2 month wait). In the meantime, I stopped all gluten for 10 days and went in for a follow up. The rash was much improved. She did a gluten antibody test and it was negative - but was this result valid after no gluten for 10 days? I stayed gluten free for 5 weeks and noticed more improvement in the rash and felt generally much better - no stomach cramping, diarrhea, or fatigue, all of which have been bothering me for the last 5 years. Now, at 2 weeks prior to the dermatologist appointment, I re-started gluten, at the doctor's suggestion. And I feel horrible after only 4 days of eating gluten! Rash is worse again, diarrhea, fatigue, etc. Can I stop the gluten again before the dermatologist appointment? I am wondering if it is worth getting a positive diagnosis if I have to feel this bad!