This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I hardly think that getting drunk can be equated to accidental glutening. No one chooses to be glutened.
A lot of this has to do with lifestyle, and again no one can judge someone else from the point of view of their own lifestyle. People who live in the country miles away from the nearest town are less likely to be run over by a bus than someone living in the city. It's the same with celiac disease. Some people can stay home, cook each meal from scratch, and be 100% in charge of their lives. Other people have spouses and kids who aren't as careful with gluten around the house and jobs that require frequent lunch meetings. Every person has challenges, but each person has different challenges. It isn't about making excuses, not being responsible, lacking intelligence, or being a wuss.
I have a follow-up appointment with my doctor in a few weeks. She doesn't know much about celiac, so every time I see her I bring a few little factoids that I've picked up (mainly from this site) and some articles from Medline. At first I thought she would be offended by this, but she actually appreciates it. The fact that she's willing to learn and listen to me makes her a better doc than any of the previous ones.
Before cutting out gluten I had intense sinus pain and TMJ. She sent me for CAT scans, which can back negative. I also had my wisdom teeth removed in case that would help, and it didn't. She's a bit dubious about the sinus pain/TMJ link to celiac, but aside from explaining to her that other people have the same symptoms, I'm not sure exactly why.
Does anyone know the technical reason why celiac causes these kinds of facial pain?
Love it! I have a follow up with my doc in a few weeks. I'm almost at the one-year mark and am interested to see what she says. She said she noticed a difference at my last appointment a few months ago, but I feel even better now. I had no idea I could ever feel this good again.
Missy - have you already eliminated gluten from your diet? It's possible that you could have false-negatives on your tests if you aren't eating gluten, and the doctor may advise you to start eating gluten again before having any tests done. But wait and talk to the doctor first - my doc advised me not to go back on gluten because it made me so sick, and looked at other evidence to diagnose celiac.
Since potato made you react, have you looked into the possibility of a reaction to nightshades? Nightshade sensitivity has a lot of the same symptoms of celiac, and the two can exist together.
Bartful - I'm sure there is some good advice in Gemini's posts, but I'm having a hard time seeing beyond the "suck it up" and "stop whining" comments. Comments like that are not necessary - ever - and they set the stage for everything else she says. In an in-person celiac support group she probably would have been asked to leave after saying those unkind things.
From Gemini's posts it seems that every celiac who eats out is making a bad decision, unless they go to trusted restaurants. But when you get glutened at a trusted restaurant, was that really a bad decision? No one chooses to be glutened, and sometimes we have no control over it at all. Just yesterday my husband dipped some pita bread into a jar of hummus we were sharing instead of putting some on his plate first. Luckily I caught it and stopped eating the hummus, but it didn't register for him until after I said something. We can't control what the people around us do, and that isn't our bad decision making. It's just life.
Gemini, you make assumptions about other people, and then follow them up with rude comments. How is it compassionate to call people "whiners"? How is that constructive or helping people in any way?
For your information, the last two times I was glutened were at restaurants that advertise as being gluten-free and places where I had eaten safely many many times before. There is NO way to predict that this will happen. You apparently have a lifestyle that allows you to prepare food at home three meals a day every single day, but not all of us have that luxury. That's what I mean about lacking common sense - not everyone can live the same way. You CANNOT base every single person on this forum from your own perspective. People need help and guidance to adjust their life to this disease. The LAST thing anyone needs is to be shot down and called names when coming here for support.
It's not only a diet change, though. It's an entire lifestyle change, and that means practice, education, and making mistakes. Gemini is criticizing people for making mistakes, while admitting making them him(her?)self. It's hypocritical. Most of our doctors don't have a clue about celiac, and so people should not be slammed for asking basic questions. I always thought of this forum as a place of support and a place to share experiences - not a place where I'm told to suck it up and stop whining.
Honestly, if Gemini has this lifestyle down, and doesn't need any help or support, and has no compassion for fellow celiacs, why is he/she even here?
I've tried the Betty Crocker mixes, and wasn't impressed. I don't know about anyone else, but in my area they are more expensive than the all-natural gluten-free cake mixes I buy at health food stores. I can't understand why they're so costly.
Gemini - I tried to write a long and detailed response to your post, but it's not worth it. I've come to the conclusion that you have zero compassion or common sense, and that probably won't change no matter what anyone says.