This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thank you all so much for the quick replies! It helps so much to know that I am not alone, I love this resource! I'll try to remain calm, now I know it will take time to feel normal. I have an appointment with my doctor on Monday to go over my test results and take blood samples, I'll list the results for feedback. Thank you, Thank you, THANK YOU ALL!
I am newly diagnosed with Celiac Disease and this forum has given me so much hope, I feel like crying from happiness! I'm not crazy, I really am sick, and I can help myself at last! My question is this: When do you begin to feel 'normal' ? I know everyone is different and I have only been gluten free for two weeks, but I still feel like someone beat me up every morning, no matter how much sleep I get. My hip, elbow, shoulder and wrist hurt all the time. However, the gastronomic issues are much improved and for that I am so grateful. Am I still exhausted all the time because I am ingesting hidden gluten or does it take time for the aches, pains and crushing fatigue to subside?
Thanks so much for your positive words! I am newly diagnosed and so thrilled to hear there is a normal me at the end of this tunnel. I thought I was crazy for so long, but it was Celiac. I know it will take time, I still have no energy and hurt like hell, but the constant abdominal pain, bloating and diarrhea have subsided.
Sounds crazy, I know. But I really DO feel lucky! A year ago today I was diagnosed, and had that not happened I would still be the same depressed, sick, miserable person that I was for the last 30 years. For me, the diagnose was a life saver. Had it been negative, I may have tried the gluten free diet at some point, but I know myself, and I would have cheated. I wouldn't have stuck with it long enough to see any results, that is for sure. It was WEEKS before I felt the beginning of the brain fog lifting, 6-7 months before I noticed I wasn't so sick and depressed as I used to be, and at 10 months, I realized I felt better than I had in 20 years! Today, at one year gluten free, I feel so DANG GOOD!!! I wake up in the morning without an alarm, and I have the energy to go through the day, usually without even a nap! I used to sleep 16 hours a day and was STILL so exhausted I thought I was dying! I have had exactly ONE virus in the last 12 months- I cant remember a time in my life when I wasn't sick with some cold or virus at least once a month!
Am I 100%? No...maybe I wont ever be. After all, no one is! But I feel about 80%, which is so darn good I could cartwheel most days! I am happy...and I have NEVER been happy!
I still have interstitial cystitis- but if I am very careful about avoiding dairy and any cross contamination of gluten, it is very manageable.
Struggling with adult acne- but eliminating dairy and sugar seems to be helping.
I don't have a ton of stamina yet, but since my vitamin D is still not quite up to snuff after a year of supplementing, I can only see that improving. I certainly don't deal with the crippling fatigue I was having!
So...my reason for posting is to offer encouragement for those of you still struggling. Those who are trying the diet but "dont feel any different yet" Those who think despite their Celiac dx, that couldn't POSSIBLY be why they feel so awful.
Hang in there. Life can get SO much better. I have proof!