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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Any Tips For A Brand New Runner?

    sorry for the delay in responding. tiffany, i feel like i've got no choice but to take the time to research all this - osteoporosis is scary. and though i had plenty of time to prepare for the diagnosis which i had anticipated a year before i got the scan - it was still a big shock (no pun intended). i feel like i've got to do whatever it takes to take care of my bones - there's something about knowing that your very frame and core is affected, that i guess can lead one to feel that way. i've got lousy insurance and have been paying for my gazillion lab tests and doctor's visits partially out of pocket, which also i can't afford as a student. am looking at having to take out more loans. but it looks like i may have to find a way to see a podiatrist/physical therapist. in the meantime, i think i am going to check out one of these running stores which i found on google. my friend (who lives next to central park) has offered to run with me (patiently). so here i come. as for yoga - i've been thinking of making the switch to iyengar. but whatever i do, i guess i should get a personal session with a teacher experienced with working with osteo. i took a slightly more advanced hatha class yesterday which i thorougly enjoyed except for the worry at the back of my mind about the spinal twists, side bending and front bending poses. would like to check out this book - when i've got the time! .com/gp/product/193141205...ce&n=283155 thanks again tiffany for the very useful info and the suggestions. i'm keeping in mind the pace you went at and how much your running has progressed - that will serve as some encouragement!
  2. Any Tips For A Brand New Runner?

    thanks for the replies. mark, what tiffany said is right. running is weight-bearing - as is any exercise that involves having to bear the entire weight of the body (unlike cycling, swimming, etc.). my doctor did not explicity approve a running regimen, but did give me the green light to exercise (previous appt. in which she diagnosed the osteo, she had told me to hold off, on account of the fatigue). this time, when i asked her if i could get back on it, her snarky response was, "are you a 90 year old woman?" very helpful. i asked if there were exercises, yoga poses i should be avoiding given my particular bone density loss pattern. she responded with some more sarcastic comments which i took to mean that according to her i can do pretty much whatever i want physically (i'm on my own to figure this out) and that MDs are some of the most arrogant people to walk this earth. anyway, that is a different story. with that said, i am a little wary about taxing my back and hip, since those have been found to be the weakest. I'm doing the walk/run (or what tiffany is calling interval training) not only because i understand that that is best way to introduce running to your body, but because that is what i can handle. i am huffing, quite pathetically, after less than a minute of running. it makes sense to me in more ways than one. three times a week sounds ideal, as does the idea of incrementing by 10%. tiffany, as usual, your reply is so very patient, reasoned, extremely well-informed, and thoughtful. sorry for waxing lyrical but i've been lurking around here for a while and this board is very lucky to have you. i've learnt a lot from your posts and i had to take this opportunity to say so. about cross-training yoga - that sounds excellent and would be ideal. i think some of the surya namaskar variations are also great weight-bearing poses. my only concern with yoga, which i have to fully bear out, is that frontal flexion poses should be avoided with osteo, according to a couple of sources. i'm going to have to spend some time to figure out a practice that eliminates those. sarvangasan had become difficult for me lately but i'm looking forward to finding the flexibility for them again - it would also be great for my thyroid issues. as for shoes, i bought more than i could actually afford but which i was assured provided the most shock absorption - asics gel-kayano xii. i was told that these were the pair that joggers consistently prefer. how do i find someone to evaluate my gait? i believe that my arches are on the higher side. so far, having run in the asics 3-4 times, they have felt very comfortable. support also "feels" adequate. but then i don't have much to compare with and i'm running very lightly. replace about every 400 miles? i'll have to remember that. and buy a pedometer. how long (in time and distance run) did it take you to go from the 1st category runner to the second? right now i'm huffin' and puffin', as i mentioned, in under a minute. i have a feeling that i may eventually be more an endurance rather than speed runner. today, i increased my run time by a minute. and also inadvertently, my total time by about 5 minutes (went further from home than i thought). your tips though about increasing one factor while keeping the others steady are very well taken. right now it is also about keeping up the motivation to do this at all. this morning i was in my gear for about an hour before i dragged myself out of the door. once i was out, it was great, but getting there and fighting the fatigue is still a constant battle.
  3. I'm looking to you all you very knowledgeable folks on this forum once again. Soon after being diagnosed with celiac I found out I have osteoporosis (am now 36) and want to get on a regimen to build up bone density. I understand I have to do weight-bearing exercise and since I live next door to a park, thought running would be the best way to go. I have never been physically very active (save for a lot of city walking and some yoga) - fatigue has been a tormenter for years - and so I am very out of shape. I am now taking a lot of supplements and my energy levels are a tad better (I've got thyroid issues as well, which have not yet been completely worked out). I would love to hear any suggestions about how to start out running and build up stamina and distance while being gentle on my bones, initially. I think I've got the props - I went on a search for the right shoes and came up with Asics with a Polysorb insert for maximum shock absorption - I'm worried about stressing my bones in the wrong way. So far what I've been doing is fast walking for 3 minutes, jogging for 2 minutes for a total of 15-20 minutes. Any tips are very welcome on running, other ways of addressing osteoporosis, and stamping out fatigue. Thanks in advance.
  4. Nyc Dentist And Orthodontist

    I just noticed that I seem to be having dental enamel loss - my teeth have become translucent. I too am now looking for a dentist that would know how to treat dental enamel hypoplasia secondary to celiac disease, in the New York City area. The Columbia Celiac Disease Center recommended someone in Connecticut - too far for me! If you have any names, please let me know! In the meantime, any suggestions on what to do about the enamel loss would be very appreciated!
  5. Thanks for all the very useful tips, all. In my two and a half weeks of living gluten-free, I've found myself saying "wheat allergy", "gluten intolerance" and "celiac disease" depending on the company and their clued-in-ness (which I assess very quickly!). Unfortunately I have not yet risen to the challenge of waiters. I did go out once with a large group and balked - I made sure nothing had wheat in it but did not go the extra bit to make sure nothing was fried in the same oil or ensure about other cross-contamination. But no ill effects yet. More guts next time! Thanks for the welcome floridanative. And for the warning to take it slow. I feel like I've just mounted the learning curve.
  6. It's a simple blood test that includes TSH and various T3 & T4 levels. Be careful about what range they use to diagnose hypo. If you've got symptoms, family history and your TSH is above 2.5, insist on getting treated! Too many doctors rely on outmoded TSH ranges to diagnose hypo!
  7. I am a lifelong lacto-vegetarian who recently went gluten, dairy and soy free. I eat plenty of legumes and nuts, besides rice and corn and do not at all feel like I'm not getting enough protein. From my experience, it is quite doable, though it definitely requires planning and cooking a lot at home. There are plenty others out there who are also gluten-free with similar diet restrictions. Checking out these forums may help - hundreds who are gluten-free & vegan/vegetarian including those who have eliminated soy: Feel free to PM me if you'd like cookbook recommendations!
  8. Anyone In Brooklyn Or Nyc?

    Oh, I just saw this thread - never thought to look in this forum. I live in NYC! And would love to meet other people with gluten issues. Just got diagnosed. lauriechick, Is the vendor fair accessible by public transport? No car!
  9. have you had your thyroid functions tested? ridged and brittle nails are a sign of hypothyroidism. they were one of my first signs. please beware!
  10. It's just been a few days since I got Enterolab results and a day since I got biopsy results which show gluten and casein intolerance. I've been gluten-free/CF for five days. I haven't yet noticed any symptom change. One change that I have seen is that I'm feeling very emotional - I can't stop crying. I don't know if this is due to the dietary changes or a reaction to the diagnoses. I've worked very hard the past year, proving that I have celiac (or something akin), as well as getting the multiple other things diagnosed. I've seen many doctors, had many vials of blood taken, am driving myself further into debt with the medical expenses. My family hasn't been the most supportive, pre or post diagnosis. I've had a difficult time getting empathetic responses to my disclosing of my newly diagnosed condition. I have been worried about the impact of this on my social life. I'm generally a pretty private person and not looking forward to having to explain my diet restrictions when out. It's hitting hard that I don't quite have the sort of emotional support one should to weather life events such as this. I'm worried about what's ahead - I've got a bone density test for osteoporosis next week. I'm worried, somewhat irrationally, about discovering food allergies to legumes, rice, corn, or nightshades, without which I don't know what I'll do. But much of this is nothing new, in that, I've been living with it for awhile now. It's just one big stew of stuff, I guess! I'm wondering what it was like for the rest of you, post-diagnosis. I suppose I should be feeling some relief, that now I finally know...but I'm not. I'm hoping that this emotionality is de rigeur and par for the course.
  11. If I were you, I would never see this guy again and let him know why. I told the the celiac "expert" I've consulted that no one would consider celiac or any type of malabsorption condition for me as I was not underweight. She thought it was absurd - of all the hundreds of celiacs she has seen, she said that only 5% are the supposed "classic" type with wasting, etc. and the majority were normal or overweight.
  12. duodenal biopsy. what made your biopsy "inconclusive"? I just received such a diagnosis. see
  13. I feel particularly obligated to share this, since I had sounded the false alarm about testing at CDC (shame-faced). My doc called and clarified - apparently the discharge nurse had completely misinformed me. THe doc did indeed do 8-10 biopsies from TWO sites - the stomach and the duodenum. The stomach because she wanted to check for H. pylori (all clear). She termed the biopsy "inconclusive" - while there is no blunting of the villi, there is intraepithelial lymphocystosis. And because I have so many other conditions that fit the picture of celiac, she agreed when I asked her if this was a "preceliac condition". The intestinal damage was consistent with grade I of the Marsh classification. She is recommending going gluten-free. This is an interesting correspondence with my Enterolab results which show that there is gluten sensitivity (with antigliadin and Ttg antibodies), mild malabsorption and gluten sensitivity genes (but not celiac ones) (and also casein intolerance). I told my doc about these results and she was curious. I offered to mail her the results as well as other information from Fine's site. She said she would pass it on to Green... But hmm, I'm wondering (yes, I do need a label as I talk to family, friends, my boss, waitstaff, etc.), what do I call myself? Gluten sensitive? Non-celiac gluten intolerant? Almost celiac? At any rate, after a year of pursuing this, it feels strangely anticlimatic - maybe it will sink in further over the next couple of days. I just bought my first loaf of rice almond bread and got San-J's wheat-free tamari sauce and so I guess I am now officially initiated...
  14. Hi gf4life, Your post makes things MUCH clearer - thank you. Wow, it seems like you have this figured out, so many family members with this I too have heard (from a nutritionist that I saw) that not all the genes associated with celiac have yet been identified. Therefore, it is only possible to rule celiac IN through genetic testing, and never OUT. So from what I understand, Dr. Fine's saying that "you do not possess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8)" means that you don't have the celiac genes that have been identified so far, but you have these other two that are linked to gluten sensitivity (and he says this, how - the link to gluten sensitivity? Not sure how he came up with it). That is very interesting about DQ1 or 3 being linked more to neurological rather than intestinal manifestations. Though I have GI issues (and I have yet to be "glutened"), I feel my most significant symptoms are neuropsychological, that is, having to do with cognitive processing, memory, concentration (=brain fog). Do you know what else has been found on DQ1? I appreciated your "rambling"...
  15. Hi Michael, I'm really trying to get, in Enterolab terms, what the difference is between someone with gluten sensitivity and celiac - what is the difference between me and a person with celiac in terms of our biochemical makeup and/or reaction to gluten? Do let us know what your doctor has to say. For Enterolab, you need one "complete" bowel movement, according to the enclosed instructions. I don't know how much you need in terms of volume/quantity but they do provide a rather large container. I was really queasy about it but it turned out to be not so bad.