This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
1. Is it possible that (inadvertantly) eating (minute quanities) of gluten can cause migraine-like headaches and ZERO energy? I'm thinking I need to go see a doctor, because after years of no headaches at all and an abundance of energy, since going gluten-free, I've been getting terrible headaches, and getting laid out for days with no energy at all. But it ALWAYS happens after eating something that I didn't prepare myself. I'm being careful. Or rather, I'm trying to be careful, but I think there must be gluten in things that I think wouldn't have gluten, like sausages, or.....I don't know. I can't even think right now.
2. If, after going gluten free (it's been nine months for me), what does it MEAN that I seem to be quite sensitive to even minute amounts of gluten? If years of eating gluten only caused tolerable (though persistent) problems, now that I've eliminated it, after a period of several months of feelings gloriously well, now I seem to have reactions to all sorts of things. Isn't that worse for my body than what was going on before? I mean, if my system was so overwhelmed with gluten that it couldn't react properly, now that it's reacting, isn't that doing even MORE damage?
I avoid gluten-free processed foods just like I avoided other processed foods before I found out I had celiac's disease, because whole foods really do make me feel better. My problem with the processed gluten-free foods, besides all the chemicals is that they contain so much pure starches instead of whole grains. I've been making my own mostly whole grain crackers, and there's one kind of gluten-free bread I like that only has a few ingredients, for the occasional piece of toast, but other than that, I eat a lot of corn tortillas and rice, and I'm not missing the gluten products very much.
I hardly ever go out to eat, but it's so depressing to think that I'll essentially never be able to. We were traveling, and needed to eat SOMEWHERE, and it seemed like the best choice. And it's hard to ask people who don't speak very good English about gluten. I guess it means I just have to be super-prepared, and bring ALL of my own food whenever I go ANYWHERE. I usually do, for most meals, but then, after awhile, we get tired of eating out of an ice chest.
I seem to be getting more and more sensitive to gluten, which also doesn't seem fair.....
Of course that could have something to do with it! Are you also breast-feeding? If so, your body is going to want to hang onto as much body fat as possible to make sure you have enough of you to make food for your baby. I think people don,t really expect to get their paper-baby body back for at least a year. I sure wouldn't worry about 5- 7 pounds , especially not right after a baby.
With my first child, I lost the baby weight almost immediately, but not with the second. I also didn't ovulate for over a year after the second one was born, despite the fact that I was so much heavier. It was my body insisting that it wasn't ready to make another baby.
....that I am unintentionally getting glutened, or that I have a problem with dairy, despite many months of eating dairy with no problems? For the past several weeks I have been having a resurgence of symptoms that almost completely disappeared when I went gluten-free seven months ago. Mduring this time, I have eaten out several times (Mexican restaurants, and only rice, bean and corn things) and eaten stuff I didn't make myself at social gatherings. I've been pretty careful. I've never been able to quit dairy, though I,ve wondered if it could be bothering me, though for many months I ate plenty of it with no adverse effects.
I honestly think that a person's diet can be whatever that person wants it to be. If you're interested in a whole foods diet, then you can move that direction without getting too extreme. People usually can make more lasting changes gradually than going whole hog throwing out everything they,ve ever eaten, and doing something completely different. Except for gluten, of course. That had to be all at once.
Since I have stopped eating gluten (6 months now), I have eaten way way less things made with any kind of flour, mostly because I am not eating breads. But I would hate to think I could NEVER have a baked good again. I've made cupcakes a few times, a gluten-free carrot cake for one son's birthday, and a gluten-free apple pie for my other son's birthday, and my spouse and I eat whole-grain gluten-free pancakes sometimes on the weekends, and that all is very nice. I personally am not very interested in eating things made with various starches and gums that gluten-free baked recipes are full of, and those certainly wouldn't be considered whole foods.
Those beverages are really important for quality of life, but i'm not liking gluten-free beers. I just bought some Bard's but haven't tried it yet. I don't like New Grist at all. So it kind of looks like I'm not a beer drinker anymore, and we have a wonderful local microbrewery just down the street. Alas. But I have discovered Angry Orchard hard ciders, which more than make up for it. Go for it!
Since I've been gluten free, I have slowly been eliminating the glutenous things in the house. I still buy bread for my son, but without saying anything, all baking and meals are now gluten free. He was actually happy to stop being served whole wheat noodles, which is what we always had before, and my partner and I have for years been eating pancakes made with non-wheat flours, and the only thing we do differently now is leave out the rye flour, so that seems normal. And when my other son asked for carrot cake for his birthday, I made a gluten-free one without "clearing" it with him. Cake is cake. I've also been making crackers, which I have to beat my partner away because they taste so good. So it can certainly be done. It helps if you like cooking and baking.
This is funny, because since I went gluten free about six months ago, I STOPPED being hungry all the time. It,s very pleasant to not have to find snacks all the time in the middle of the morning and afternoon.
I don't have abdominal pain anymore. After being subjected to a bunch of tests as a teenager because of it, my mom finally told me it was "normal" to have "aches and pains". Well, guess what? It's NOT normal!
I think my son, who is 19 years old, struggling with ADD and depression, neither going to school not able to bring himself to apply for jobs, constantly on the toilet and suffering from stomach aches, has it too, but he refuses to be tested. He say s that if he finds out he does, then he'll start thinking he has problems when he really doesn't (yeah, right, like he doesn't already have problems) and he doesn't think he could live without eating gluten. I want to ask his doctor to test him anyway the next time he goes in for ADD meds, but I don,t know if I can do that since he is legally an adult.
I also wonder if my dad, who died of Alzheimer's at the age of 67 might have had it.....but I don't know.
So, I have been reading in this forum that it is normal to become increasingly sensitive to gluten the longer you have been gluten free. Onevof the most interesting comments was about someone's untested daughter who was afraid of going gluten free, because she didn't want to develop extreme sensitivities like her stepdad, and someone said that if she DOESN'T have celiac's disease, then she won't become sensitive to it by not eating it. I went gluten free back in March, to see if it had any effect on my daily midday bloating and abdominal pain, and it totally did. So I was never formally diagnosed. But I am noticing more and more reactions to even small amounts of gluten that wouldn't have bothered me earlier this year. Like tonight, I had a small piece of pork that probably had soy sauce on it, and a few bites of potato salad that listed "food starch" as one of the last ingredients, and I ate them both anyway because it was a potluck, and the only other things I could eat was watermelon, cantaloupe and carrots, and surely that tiny amount of gluten wouldn't affect me. But my abdomen hurts, and I feel nauseous. So does this make it more likely that I really truly am sensitive to gluten? Testing at this stage in the game seems pointless......
I was just wondering if folks have had the experience of, once going gluten-free, becoming aware of other food sensitivities you have, that before, when you were eating gluten, must have blunted other things. I honestly don't remember ever thinking I had any problems with ANYTHING, except maybe eating too much cheese or protein late in the evening, yet, now, two months after going gluten free, I am aware of not feeling so good after eating certain things--like sudden stomach cramps, or a tightness in my chest, or my throat getting all gummy. Did I just not notice because my body was so assaulted by gluten that these we minor in comparison (like when I had a bike wreck many years ago, I didn't notice that my wrist really hurt until all the other pains subsided), or am I really becoming more sensitive to other things?
Thanks! I really appreciate your comments. I think I am NOT going to pursue testing, because I just don't feel up to it (it looks like there really aren't any doctors in my area who know anything about this). But I WILL continue to eat gluten-free, and let that be good. I really do want to feel better, and this last month and a half of gluten-free eating has left me feeling way better than I had in a long time. I may pursue having my sons, tested though.....