Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Maryw88

  • Rank
    Community Member
  1. Thanks everyone!  Sometimes you just need to know you are not the only one in this cruddy boat?  I really appreciate everyone's replys.  I totally agree, gotta be tough and gotta be positive.  I just couldn't smile about it yesterday.  Reading everyone's experiences does help though.  Maybe one day we will all get dairy back!!!  It can happen!  
  2. I tried GAPS but I couldn't tolerate all the fermented veggies.  Turns out the corn based vinegar was killing me.  Thats actually how I discovered I was corn intolerant!  Ha!  
  3. How long did it take you to get some of those foods back?  I feel like 1 1/2 years is a long time but....well I MIGHT be impatient.    
  4. Feeling a little overwhelmed and sorry for myself today. For the past 3 years I've been learning about my gluten intolerance.  I am intolerant of gluten, soy, dairy,  corn (and corn products such as vinegar and citric acid), gluten-free oats, quinoa and nightshades including tomato and potato.  This even includes liquor like potato vodka.  I know I'm SUPPOSED to be able to tolerate this....but I cant.     So, basically, I've been strictly gluten free for about 1 1/2 years now.  I have severe heart burn.  Better with medication.  Most of my gluten symptoms such as numb limbs, face, etc.  and severe stomach upset and gas has gone away.  Its magic as long as I stay away from gluten and the other offenders.   At this point though I'm just angry.  I smile and say its no big deal.  I get by and there are lots of foods I can still eat.  I put on a brave face most days.  I am truly happy to have my health.   I keep holding out hope that some of these multiple intolerances will go away as I get better but........    A part of me wants to say screw it, eat a bunch of gluten and call it a day.  I get really frustrated and sick of being "ok" with it.  Some days, it sucks!  I hate that I can't go out to eat anywhere like every other normal person.  I hate that people think I'm being picky.  I hate the sympathy I get from decent people.  Multiple intolerances SUCKKKKK!  I also hate that sometimes I get sick from foods that AREN'T gluten. Not fair!  It makes me so angry at my body.     So, I just needed to bitch everyone. Needed to whine and throw a hissy fit!   Thanks for listening! 
  5. Hi everyone,   I've been strictly gluten free for about 1 year.  I do not have diagnosed celiac disease but I know I was very sick before I cut it out.  When I went gluten free I noticed I felt much better but about 3 months in noticed a soy intolerance.  Then came lactose then casein and most recently chicken, potato, Certified gluten-free oats, quinoa and corn.  Corn has been the bane of my existence.  I can not tolerate even distilled white vinegar (derived from corn).    That said, I feel so much better.  Normal and healthy most of the time.  I am shocked and amazed by how healthy and happy I feel after having years of debilitating migraines, IBS, and neuropathy.  These foods gone, I feel great!   So, I am by no means complaining but seriously....did anyone ever get their foods back? Obviously gluten is NEVER reintroduced.  But I do miss potato.  I miss soy (tamari please!).  I realllllly miss cheese!  I know one year is not that long for healing but I have to ask, have you been able to reintroduce your intolerances?  How long did it take for you?  Also, for those of you with other grain intolerances, ever reintroduce those?    I am really curious as to other grain intolerances like corn.  Would be nice not to worry about salt (iodized table salt has corn as a binding agent).    Thanks everyone! 
  6. Oddly enough I haven't noticed a reaction to water bottles?  I don't do soda or most tea either.  I can handle trace amounts but not quite THAT sensitive.  What about the wax on fruit?  I find I do ok with whole foods fruit.  How about you?  Weird things they add it to right!?  Do you do medication?  I have a few I take that I know have corn as a binding agent and I seem to do ok.  Can't really afford to compound.  I'm with you though, I react more violently to corn than to gluten.  Stupid intestines  
  7. Would be great if that were the case.  Its EXTREMELY common for corn sensitive people to react to iodized salt.  Before I learned corn was the problem I thought I was reacting to tomatoes, beans, soups...everything.  Then I thought, oh CORN!  Turns out as long as I avoid the iodized salt in these items I am fine.  Iodized salt bothers most people with corn intolerances and allergies.  Its very common.  Unfortunate that it causes reactions, but it does.  Again, even things that remove recognizable protiens like corn based liquor or vinegar will cause a reaction in me and many other people.  Sorry, iodized salt is a problem. 
  8. OK, you guys are awesome!  Sounds like ethnic restaurants and local chef's are the way to go.  I'm nervous but I'm going to try it out!  I'll check in and let you know how it goes.  Thanks so much for the ideas everyone!  Keep em coming!
  9. Thank you!  I had been thinking about more ethnic foods (Chicago is a jackpot there). I was actually getting gutsy enough to think about Indian food this weekend but thought I'd hop on here first. You confirmed my confidence!  Sushi too huh?  Alright, I'm going in!
  10. Thanks!  That actually sounds really helpful.  I suppose its the idea of trying to explain all of this to a server or chef.  A list is a great idea!
  11. Thanks so much. I have to say, with my luck, perhaps I am reacting to both.  I appreciate the recommendation on the salad 
  12. Again,  I know how to avoid the foods at home.  Anyone with similar issues that has figured out how to eat in a restaurant?  Honestly, corn has been harder to avoid than gluten.  The combo....makes restaurant eating pretty difficult.  I'd really appreciate anyone's ideas on how to handle it. 
  13. Iodized salt contains corn.  Its a binding agent. Salt in the US has iodine added to it.  That means corn too.    I can hav things with sea salt because they are not iodized.  Corn is in LOTS of things.  It just depends on how reactive you are.  I personally can't even tolerate distilled vinegar or liquors made from corn. Citric acid (usually made from corn) is another common problem. 
  14. I have some pretty itchy skin but most of my issues are gastro.  I react to iodized salt due to corn as the binding agent. I have only been STRICTLY gluten free for about a year or so.  I thought I was gluten free, oh the lessons we learn.  So, I know I'm still healing. 
  15. My food issues began several years ago.  I am a self-diagnosed celiac.  I have been tested for allergies and have none. I first discovered gluten was a problem a few years ago then discovered soy, casien, corn, chicken, coffee and even peanuts made me sick as well.  The best part is that I feel the best I've ever felt. I know I am finding my health again and I feel normal most of the time.  I've learned how to find/cook really well and am happy most of the time.    Here is where I need some help:  I really miss eating in restaurants but I am terrified of doing so.  Corn is in EVERYTHING.  I can tolerate very small amounts (talking vitamins) but I have trouble with things like iodized salt.  I am very scared to eat out but I really miss it.  I am 28 and live in Chicago.  Best city for food ever!  I am very happy but it feels fairly isolating not to be able to go out.    How do those of you with similar intolerances do it?  Do I just need to wait a couple years for my gut to heal?  Do you bring your own food?    I'm feeling hopeful enough to try new things.  Help me figure it out?