Hi I'm new here. Trying to read as much as I can. I've learned so much from this one thread! Wow! You all have so much knowledge and have so much to share. Thank you so much.
Several years ago I had terrible diarrhea-type episodes (so sorry for the description). Early last year was the worst. I found Heather's Acacia Powder for IBS which I determined that I had been dealing with. It helped with the rush to the bathroom episodes.
I went to one nurse practitioner when I couldn't get in to my regular NP for an extremely burning rash around my neckline. Plus I also had other spots on my thighs. She (the NP) took cultures for bacterial or viral. Almost 2 weeks later I got a call that the cultures were neither.
About 1 week after the 1st NP I went to my regular NP who thought the rash was Urticaria. She even had a physician come in to look at the rash and he "confirmed" urticaria. That was March 1st. Even tho I explained that the blisters were similar to cold sores since I'm prone to them, I didn't get confirmation from the medical "pros". I understand that all physicians are not well versed in skin conditions.
In the meantime I've read as much as I could about what could be causing the rash. "Wheat Belly" was the book that explained exactly what DH is and the blisters I've experienced! I'm self diagnosed with DH. I've been trying to eliminate gluten from my diet. I was doing pretty well but last week had gluten free waffles with coconut oil and organic jam instead of syrup. Holy cow what an eruption event I've had. I initially attributed it to a very stressful week at work.
After reading your posts about salicylates I've done more research and find that coconut oil and jams are probably the culprits! What an eye opener!
Anyway now I find out that the IBS was also tied to gluten.
It's so nice to find this forum and read of your experiences.
Who would have thought that the "natural" way of doing things and eating would be so detrimental to our health! I've eaten gluten all my life so I'm still in the dark as to how this all evolved. I'm trying to eliminate as many things in my environment that can impact my DH. It's not been a pleasant journey but with the knowledge I'm gleaning here I know more of the things to look out for.
Thank you all!