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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

Lady Eowyn

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  1. Gluten Problem Or Acid Reflux?

    Hi there When I used to eat gluten and now if I eat dairy when I bend over acid runs back. Not good. If I stay away from them I'm fine.
  2. Gluten Migraine

    Thanks so much for your replies - have used this forum as a guest for about 18 mths and the advice and humour has helped enormously. With the majority of posts I could put my hand up and say "that's me too!" What a relief! As for the headache (had me up in the night)this time it is part careless/part self inflicted - I am the slowest learner I know . Had long believed that the hairloss was bad with headaches and I am now sure it is, like you say Raven, from the autoimmune attack caused by the gluten. I would say that since going gluten free Feb 2011 the hairloss has started regrowth when I cut out soya and dairy (coffee exceepted) around New Year 2012. I think soya causes it too and makes me almost as ill as gluten. Have struggled lately (why I joined the forum) because I seem to have gotten really resentful about the goalposts being changed with what I can eat. I am definitely super sensitive bracket. Use wheat free hair care and skin care - otherwise terrible itching and soreness. Have had DH on scalp since teens (used to be on shoulders, buttocks and arms) but now only scalp. Never gone completely but varies and can be really bad. I know immediately if a product contains gluten!!!
  3. Gluten Migraine

    Hello there Just wondered if anyone else gets this. I call my severe headaches Migraine but I don't get the flashing lights that I know some people get. I have a terrible headache that feels like my head is in a vice and it lasts for 3 to 8 days so quite significant then !! When I was in my teens and twentys I had permanent headache to varying degrees and was very rarely without one. I don't get them so often now - in fact only when glutened. Along with them I get awful nausea, feeling spaced out and occasionally as if my head is hot. My DH (which is now mainly scalp only) gets worse and my whole head feels sore. These headaches seem to make my hair fall out - honest . Also they make my pupils really small which also causes some light sensitivity - anyone else have this? Once the actual headache has gone my brain feels bruised and foggy. Eating anything makes it worse and I have also thought that taking painkillers can aggravate it !! My stomach won't take any disprin/asprin based painkillers nor codeine so I can only use paracetamol. They don't get rid of it anyway so I don't usually take anything. I know I have to sort out cc issues but I have one of these headaches now and just wondered if anyone has any advice please? (Hope this is in the right section.
  4. Hi there Know how you feel. Canned prunes in apple juice seem to help me. Also some nuts daily and or course, water. Hot water seems best. Hi Prickly - never thought of sugar being a cause but now you mention it ..... Also I think soya also gets me.
  5. Hi The correct name for painful ovulation is Mittelshmerz (sp?). Sounds quite innocent but gave me significant pain in the past. Don't know if celiac has anything to do with it but it wouldn't suprise me, as I am sure it would be influenced to some degree by dietary factors. However, with all problems like this, see your Dr. Sorry to be so slow but gluten problems often make me feel as if I left my brain at home .
  6. Hi NatureLover - see it's your first post so welcome although I am new here myself . Read your post and just thought i would mention that I used to get (given up monthly cycles 2 years ago due to my age) a thing called painful ovulation -can't think of the proper name at the moment. This was a sharp tight sort of pain which was debilitating - occasionally when laid down was unable to move and was in an ovary type place as you described. Oddly was also affected by bm's and could also give pain on sitting on a hard surface. Doc told me to take painkillers. As per the other posts you should get it checked out by your doctor. Still can't think of the proper name - think it was sort of German!!! Hope you can get it sorted.
  7. Balance And Falling

    Hello there Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum. However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too. As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time think it's the flour, etc in the kitchen - that little!! Apologies in advance if I'm doing anything wrong with the post.
  8. This Is No Life

    Hi again For me, the anxiety/stress that causes the trigger to eat is directly caused by gluten. Unfortunately, with years undiagnosed for a long time it had a powerful hold on me. IMHO when I have gluten it tenses up my stomach and literally gives my body and brain stress. I then proceed to feel so ill - especially next day that I am so shaky, white and about to collapse that my brain urgently requires more sugar and gluten - off we go. Although initially I get the D this doesn't usually last long (used to) and now i get terrible C. This also seems to make me want to eat. Well, of course, the answer is not to eat gluten - not difficult BUT avoiding cc is not so easy. I have had some problems with this lately which of course can start the whole round off again . For me, it is important to eat small amounts frequently and to always include some protein. Large amounts of carbs don't work for me. In fact large amounts of anything. I also drink plenty water, that helps too. Sadly, have had to give up rice and potatoes but I do feel better without them. I also find planning ahead with food helps so I know what I'm doing sort of!! As for friends and rellys, I know how you feel but you've got to tell them straight. I am sure they will support you.
  9. This Is No Life

    Hi there Not sure that I'm too good at advice but if it's any help I do know how you feel. For me too the Celiac is affected by stress - somehow that eating binge comes on and I can feel glutened without having any. It kind of triggers me to eat. Over the past 30n years (only realised it's celiac in the last 18 mths) I have seen psychologists for bulimia and compulsive eating and self harming - thats the attack on DH some years ago but now I know it's GLUTEN !!!!! Knowing that has helped a lot and can really help you gain control. You need the support of those close to you but you also have to do this for yourself. i try to show some fight against those triggers. Be nice to yourself and make sure you have some treats - especially things that are not to do with eating. As for the in laws or whatever stressor comes along - do your best to stay away from that gluten.
  10. All Gone Pear Shaped

    Thanks for that. Just have got to a stage of being cheesed off and needing to moan. I am not being careful enough and must be getting cc'd. In fact this really bad spell with wanting to eat gluten again (I believe gluten makes me eat compulsively) all seemed to start when I baked some cakes for some guests! Prior to that there was no gluten in my kitchen for some time. Hubby very supportive and almost gluten free. My system doesn't seem able to handle any processed food with additives etc and that includes processed gluten free - the whole system seems to go into spasms - don't need to mention the end result of that!! Will be making more effort from now on Back to basics with the food.
  11. Hello there. Have been gluten free since about Feb 2011. Not eaten bread, cereal, pasta or bread for some years as it makes me ill so gluten free wasn't a big deal. Felt MUCH better for about six months then slowly began to feel much worse. Back to stomach cramps, the big C alternating dodgey D, headache and truly terrible nausea with repeated close shaves for throwing up while out - not good. I think soya is a big problem for me (nearly as bad as gluten) so cut that out, followed by potatoes, rice and all other grains and the dreaded dairy. Have not been able to give up milk in coffee!!! Can't eat any processed food (presumably from soya)and also have trouble with bacon, sunflower oil (migraine) all dried fruit and balsamic vinegar. I have a horrible feeling there are other things aswell. The last six weeks I have really gone downhill and am so cheesed off with it all. Got glutened from some very good oil that I put on two ponies to help sweetitch - it's really good - but contains wheatgerm oil. Gives me all the gluten symptoms including a burning nose - guess I touched it! Just need to hear some words of wisdom really - sat here bloated, pounding heart and miserable - sorry to moan. On the up side have used for the last year - brilliant, thank you . Have had no official diagnosis but have had symptoms for 35 years, and Hashimotos (use natural thyroid hormone)since age 16 and DH since same age that is pretty much confined to scalp now and varies in severity. Also saliva test (adrenal hormones) showed the antibodies (can't remember the name) for gluten and recommended gluten free.