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hopeonthemove added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsUndiagnosed, Feeling Unwell, Not Sure What To Do Next!Hi!
In the last 2 years or so I've come to realize that desserts (with gluten and esp those with gluten and lactose) and some foods (pasta, crackers, etc) have kind of intense reactions with my body, and I've tried to stay away from them. I haven't been tested, I'm kind of afraid of the cost of it knowing that it's only partially accurate, but some of my symptoms are:
tiredness (serious food coma/crashed on the couch after "white foods" inc pasta, potato, pizza, too much sugar, etc)
bloating in stomach and face
scalp psoraisis, thinning hair
stomach cramps/diarrhea (I find that I only get this once I have seriously overdone it on gluten, it seems like I can get away with small amounts without this happening)
unable to lose weight
all-over body aches
enamel damage (the last time I went to the dentist, I had 7 cavities! I've only had 3 others in my life)
My friend has very strong symptoms of celiac, she vomits whenever she eats even the smallest amount, but my mostly mild symptoms kind of lure me into the thought that it's too expensive and hypochondriac-like to go get tested, or really change my lifestyle if it's not presenting super strong.
I know that the most sensible thing would be to just cut out all gluten.
Really, I know.
I often feel like if someone could just walk up to me and say: "You have celiac disease. You're going to kill yourself if you don't clean up your eating.", I would be able to do it with much more conviction. And I can play those head games with myself, saying, "Yeah, I probably have it", but honestly I feel like I'm riding on the coattails of people who've actually been diagnosed. Even though I know it would change my mindset and help me commit, is it weird to tell other people I have celiac when I don't know for sure?
- 4 replies
- 731 views
hopeonthemove added a post in a topic I Used gluten-free Flour, Why Am I Still Feeling Icky?
hopeonthemove added a topic in Gluten-Free Recipes - Baking & Cooking TipsI Used gluten-free Flour, Why Am I Still Feeling Icky?Before going gluten-free, I was big into home cooking and baking. So when I decided to get the gluten out, I found Bob's gluten-free all purpose flour to use in my recipes. I bought some xanthan gum to add in and starting making my muffins, cookies, and all that other stuff.
I felt pretty good about my new found baking skills, things were coming out very nicely, but I found that right after I ate a muffin or cookie, I was getting some gastro distress right away! Burping/slight heartburn, bloated feeling, that slightly flushed and puffy feeling you get from food problems. I thought it was a coincidence at first, but it seems to be true in several of the recipes I've made. What else could be causing these reactions now that the gluten is gone?
The latest one was a blueberry muffin. It included egg, xanthan, baking powder, sugar, all the usual suspects. I have never had problems with any other food besides wheat, so this reaction has really surprised me!
I've often wondered if I have a problem with refined sugar, and I've heard that some people have problems with xanthan.
Anyone have any ideas?
- 7 replies
- 984 views
hopeonthemove added a topic in Celiac Disease - Coping WithMaybe I'm Just Making This All Up...Hi everyone, my name is Hope.
I'm really struggling with this topic, I have been back and forth on a gluten free diet, and I often end up wondering if I am just convincing myself that there is something wrong with me!
I have never been tested for celiac, I have a suspicion that it would show up negative anyway since my symptoms are not super intense - and I really don't want to pay for an expensive test.
A couple of years ago, I began having intense gastro-related problems, it seemed like I couldn't eat anything without having tons of bloating, cramping, and diarrhea. I did a drastic cleanse, took out all meat, sugar, caffeine, wheat, and processed foods, and I felt better immedeatley. I lost about 15 pounds, felt good, and then slowly I sort of gave in to my cravings and began to snack on desserts and foods with wheat in them. I didn't notice any bad effects! I felt fine after eating a sandwich or bagel. After I kept doing this for a week, I began to feel gross again, the bloating and gas returned, and my stomach felt all crampy and gross (especially when I ate wheat and sugar together in a dessert). I realize after writing this that it sounds pretty obvious that I should stop all those foods again, but it is such a restrictive way to live! I have a real emotional eating thing going, when I get stressed or tired or sad, I tend to head right for the foods that are "forbidden", it's some kind of a "I'm not going to follow your rules" thing I have going in my personality. I know it doesn't make logical sense, but when I'm home alone and feeling down, I have a real dilemma while standing in front of the pantry.
I think to myself:
I'm probably fine eating gluten. Maybe it's lactose or sugar!
I deserve to have this. Other people get to eat this.
I don't want to have to buy special food. I miss the way a real cookie tastes and feels!
Look, I ate a sandwich and didn't get sick. I'm imagining the whole thing.
Ugh, I don't feel well. Maybe I really do have a problem with gluten.
This goes on for a while, and I may give in to the gluten craving or I may not.
I feel stuck right now. Part of me doesn't believe there is anything wrong, and when my family gets skeptical too, it just pushes me in that direction. I'm using my lack of a huge physical response as proof that I'm mostly okay, but past experience has shown me that there probably is something going on with me and gluten. My friend has a very strong reaction, lots of sickness and all, and mine is so much more subdued.
I don't know, I guess I'm just trying to find some inspiration to pick a road and stay on it. Anyone have any ideas?
- 7 replies
- 826 views