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teddylab added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCorrect TestsJust wondering whether I am being tested correctly
BLOOD TEST: HLA DQ2 and 8, deamidated gliadin IgG, fbc, lftm crp, anti-ttg, total IgA
Endoscopy (with biopsy)
Does this sound right?
- 1 reply
- 669 views
teddylab added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsSelf Diagnosis/new DoctorsGosh, I am so sick of explaining myself to doctors! I have been to so many in the last few years it has done my head in!
After my last run in with one who refuses to look at anything but my blood pressure and pregnancy tests, I decided to just give up and take my own self diagnosis.
I gave up eating most gluten (a few things I wasn't aware of snuck in there!) and I felt GREAT. I haven't been blated or sick, I get up early and don't have trouble sleeping. No going to the toilet every half hour, and I have had so much energy.
I decided to try gluten again after 2 weeks to see if I had any reaction. The first day I was fine - the second day I was so so very sick. I had some of the worst stomach pains, and could not move. I was so bloated I felt like a helium balloon. I couldn't sleep and had terrible anxiety.
After all of this I plan on going gluten free, but first I am going to a celiac specialist I found close by. I am so excited and hopeful, I can't wait for my childhood GP to send me my referal!
I really hope that this will give me some closure, or at least point me in the right direction.
I'm also really scared - I hope this is the source of all my problems. What do you think?
* Failure to thrive - baby/infant
* Father also had failure to thrive for unknown reasons as a boy
* Small bowel biopsy as a baby revealed scoured/burnt villi
* Depression/anxiety caused by suspected chemical imbalances
* Joint problems including TMJ
* Constant stomach issues all my life - always put down to illness/flu
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- 668 views
teddylab added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsFrustratedI cannot figure out what is wrong with me!
I have had
After a lot of searching, I thought I may have celiac or a gluten intolerance.
My symptoms have been slowly building up and slowly getting worse.
Two of my Aunts and father experience difficulty eating wheat products, and my sister has crohns disease.
I've been to my doctor, who had my blood taken. He thought I had a stomach infection - but it was clear. In fact, everything on my blood test was in the normal range.
I asked whether it could be something to do with what I was eating, like gluten, and he told me that celiac disease was highly unlikely. He said that he would expect someone with celiac to be extremely thin and be very sickly (he made motions as if someone was very old and fragile?) I do have some extra weight, but I am not obese.
He ordered a celiac test for my bloods anyway, but didn't seem convinced.
- Could this be related to gluten?
- I have normal levels in iron, vitamins, etc, is it possible to have gluten intolerance without being deficient?
- I am not emaciated, are all celiacs thin?
- 5 replies
- 498 views