GFchic12 replied to GFchic12's topic in Celiac Disease - Coping Withthank you so much, i really appreciate the reply! i'm glad to hear (in an ironic sort of way) that the first few weeks were rough for you too... i was disappointed to feel worse (vs. better) once i finally realized what was going on! hopefully the next month will go quickly... thank you again!
GFchic12 posted a topic in Celiac Disease - Coping Withi've suffered with constipation most of my life, but didn't have any other issues until Nov 2010 when I got food poisoning. i started to feel a bit "off" (never empty, a bit heavy) but didn't realize until March that it was BLOAT, bloat that never went away and kept getting worse. I began a food diary to see if there was a correlation between what i was eating and my symptoms... took 6 months to realize i was also developing some strong food allergies (which i'd never had before). certain foods (nuts, shrimp, sesame, etc) closed up my throat, other foods (honey, ginger, eggs, tomatoes, etc) gave me body-wide hives/spots and extreme bloat. but no matter what i cut out, that heavy, 3-month pregnant look never went away. (and as i work out 5 days a week and eat right anyways (i have an ED history) -the feeling of always being huge and swollen, but still hungry was maddening!) i went to see a Gastro about a year ago, she ran a bunch of tests (celiac came back negative), endoscopy/colonoscopy showed extreme constipation, gastritis, hemorrhoids, duodenal ulcers, and melanosis coli (black colon from laxative abuse). we did a breath test and stool test to check for bacteria (both came back negative) and a bioposy of my stomach to rule out H Pylori. at this point, my diet consisted of about 12 items and in spite of that my food allergies were getting worse and the bloat never improved. she threw a lot of GERD type drugs at me, and then threw her hands up in the air and told me my problem was Mental (at which point I asked if she was Mental). then i went home and cried, i felt so ill, my body wasn't responding to anything and i just wanted an answer as to what was going on!! a month ago i went to a new Gastro to get a second opinion. he told me (Bless him!) that i wasn't mental, that my problems were real but Functional (meaning everything technically *worked* but the way in which my digestive system was working was flawed). he ordered a Transit Test (i drank 2 massive cups of Barium and they watched how long it took to go from my stomach to my intestine) and an abdominal X-ray (to see what was swollen on a day when I felt particularly awful). In the meantime I started researching Celiac Disease (my grandfather has it) b/c after lunch one day (where i had some bread) i started to feel especially AWFUL And i realized that although i tried not to eat many carbs on the days that i did (breading on sweet potato fries, oat bran, etc) i felt a lot worse. and after doing some research, i realize that i have almost EVERY SYMPTOM of Celiac Disease (pale sores in mouth, itchy rash on scalp/legs/torso that won't heal, tingling nerves in fingers and toes, extreme bloating, FATIGUE, muscle weakness, foul smelling stools, oily stools, easy bruising, big appetite, etc...). i started a Gluten Free diet about a week ago (which knocks me down to being about to eat about 5 foods as i'm allergic to all the nuts/eggs/sesame oil that are used in Gluten Free products)... also have a fructose sensitivity, so i can't eat much fruit. i don't smoke or drink and i continue to work out but i'm just so exhausted.... and yesterday the bloat was as bad as it's been in awhile. i know i'm brand new to this (the Gastro wants to test me for Celiac again, but he told me I'd have to carbo load and i'm just not willing to do it. it makes me so sick and i break out like crazy! not worth it!!)----but is it possible some symptoms get worse before they get better?? how long does it take to really start to feel normal again? if anyone here has crazy food allergies, did any of those get better after you were off of Gluten for awhile? but mostly will this awful awful bloat get better?? Thank you so much, I really appreciate any answers~