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Capegin added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseNegative Results At 20 Months, Retesting At 4 Y/o?Hi all!
When my daughter was young up untill about two years old, she seems to have a host of G.I. problems. Nothing was ever severe or serious, but enough to call attention to it. She spit up much longer than most babies did she seem to get rashes and hives with no explanation. She didn't grow well was always very very low on the percentiles and dropped for a while, and she seem to have a lot of belly pain. Her doctor referred her to a pediatric G.I. doctor, who tested for celiac. At the time her test was very normal. They also did an endoscopy, which showed no abnormalities.
Now, my daughter is four years old, and complaining daily of belly pain. She had an x-ray, which show that she was severely constipated, and even though she's been all cleaned out and taking daily MiraLAX, she still complains of belly pain routinely. Her gas is pretty noticeable, and Very potent, and her belly is big and round. She saw her pediatrician today, who sending her back to the gastroenterologist for more celiac testing. She also wants to explore lactose intolerance.
Any thoughts on this? The pediatrician says it's highly unlikely she would've had a false-negative earlier, but she said it could've developed since then. I'd love to hear from any parents who may have had a similar situation! Thank you so much!
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Capegin added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseSymptoms Come And Go...Has anyone else had symptoms come and go in their children? The first red flag for our daughter was when she was spitting up/vomiting daily for weeks... starting at 13 months. (She did have reflux pretty badly as an infant, but it had gone away for a while.) Between that, her small size and big belly, her negative food allergy tests, and no response from eliminating lactose, her doc. suggested testing for Celiac. But, since this process started a while ago, I feel like her symptoms come and go. She'll go a couple of days without spitting up, then, just when I'm feeling crazy for pursuing all of this, she starts again. Or her appetite will be nothing for a few days, and then she'll eat and be happy again. (Even on good days, though, her appetite isn't very big. It was bigger when she was younger.)
I have a 2.5 year old son, so I know kids change and everything from teething to moods can affect how they interact with food, so now I'm wondering if I'm just going crazy! There are days where she screams at food offered, cries and arches back after taking a bite, and is generally miserable. Then, it will all clear up and she's fine and happy for a few days.
I'm just wondering if there's anyone else out there who has seen this happen. We don't get the results of the blood work for another week, and in the meantime I'm totally overthinking!
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Capegin added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseAnxious For DiagnosisHello,
My DD (15 months) had a blood test for Celiac on Monday, and the pediatric GI seemed to think there's a good likelyhood it will be positive given her symptoms. While we wait for results, I'm worried about three things:
1. It will be positive. I'm worried I'll get overwhelmed or confused by all of the ingredients to avoid and I'll make mistakes. I'm worried her extreme irtitability won't improve and I will continue to struggle to enjoy her sometimes. I'm worried about the guilt I feel about that.
2. It will be negative. Then we are back at square one, after waiting, allergy testing, experimenting with cutting out Lactose, etc.
3. I'm worried about the CF test the GI also ordered. Neither my husband nor I are carriers, but the doctor explained there can be mutations. I know it is very rare, but I'm terrified.
Overall I'm just worried and a total mess right now.
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Capegin added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseShould I Pursue Testing?Hello,
My DD has had some stomach issues lately, and I'm wondering if I should pursue testing for Celuac, or if I'm way off base.
She is 15 months and has begun spitting up/vomiting regularly after dairy- esp. yogurt. We tried cutting out Lactose for the past wk, to no avail. This started about 6 weeks ago, though as an infant she had horrible reflux. She has been tested for food allergies and has none. She was in the 49th percential for weight at birth, but she was 3rd at 12 month checkup. In thd last week, she has gotten increasingly irratible, she occcasionslly screams as though in pain when we feed her, and she eats very little. She used to be a great eater. Also, she did have a milk protein allergy as an infant- not sure if that's relevant. Finnally, my husband commented tonight that her belly is starting to look like those pictures of malnourished babies.
As far as milestones, she is great. Walked early, says and signs several words, everything's on schedule.
Any thoughts?? She just serms miserable lately, and I want to find out what's wrong in order to help her!
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