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Little Feather

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About Little Feather

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    New Community Member
  • Birthday 11/20/1970

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    Female
  1. Wow. Just. Wow. I'm newly diagnosed, age 41, and was going to ask the same thing! I definitely notice a change - about 4 days before my cycle starts I feel pain in the area where my Dermatitis Herpetiformis rash "lurks" on my neck. Sometimes the DH will erupt into the rash. My skin gets super itchy all over, my scalp burns on fire, I feel like I'm being pin-pricked a thousand times over and over all night long in different areas, and really bad "brain fog". The worst is the disturbingly heightened sense of smell. It's so bad that I have to avoid all fragranced products at all times! I don't know if it's changing hormones (pre-menopause), poor nutrition or simply from having Celiac. I too worry about being labeled hypochondriac. None of my circle has any knowledge of Celiac.. To them I look fine but they don't know how miserable I feel. I also have a fear of being alone because when the DH flares I feel so sick with cognitive symptoms that I can't think well enough to drive my car. I am comforted to know i'm not alone in this. I was so pleased and relieved to find this forum because I don't feel so isolated. It's a gold mine to me. I hope others will give their insight into this topic.