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louiesgirl2 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI Do Not Have CdWell, I may not have celiac disease. Started eating regular flour stuff again and have not had a problem at all.
So, I do not know what to think.
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louiesgirl2 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsWhat Is Cd..long Post
I just went back and re-read what celiac disease was. Amazing, I do not know about my family history of this disease as other than a half-brother, I have very little family left. My ancestory is German/Russian Jews, that I know of.
However, my personal history I have always had negative reactions to milk products. Terrible diahrrea, gas, bloating. When I would eat ice cream I felt like I was choking. I also noticed that when I ate, "whole wheat" products, oatmeal, and grains of that nature I would get the same along with fatigue, light headedness, nausea, dry skin, rashes on my eyes and under my breasts and other places on my body at various times. I am always borderline anemia or anemic, depending on if I am eating well and taking my supplements.
I have had more major surgeries that I can count, the last of which was a gastric bypass in 1999. In 2002 I had a very emotional traumatic (to me) event. Plus, I have had several auto accidents, and falls.
I was diagnosed with Fibromyalgia in December of 2004, which was reconfirmed the following January under second opinion.
Now, both of these diseases have similiar symptom, and originally before the Fibro diagnosis, they thought it was menopause, as I have PMS, hot flashes, night sweats, mood swings, brain fog, difficulty sleeping (Sleep apnea is also a problem).
My therapist who I am seeing for depression due to all of the above is the one who first suggest Fibro. Then recently, because my symptoms prevail, even with medication, (Welbutrin 150mg daily and provigil as needed), plus I am taking generic prilosec, suggested I get tested for celiac disease as she felt that might be the next course of action.
Of course both my GI and PCP are on vacation. I had an endoscopy and colonoscopy April 12 ( have these every 5 years). I had complained to my GI about my symptoms. All came back negative. Put me on prilosec, which helps a little where my tummy is concerned.
I decided to try gluten-free on my own because I could no longer take the symptoms. I stopped last Thursday 7/7/05. So far, diahrrea has subsided, still gassy (not like before, I am eating beans and veggies and fruit more than before). Some of the other symptoms are still there however, I notice other than the aches and fatigue are subsiding.
After reading lots on this board, I am thinking, gluten-free is the way to go for me even without the testing. If when I see my doctors they want me to go back on gluten so I can be tested, I will do that.
I am just so tired of being sick and tired. My poor DH. He is trying so hard to understand.
Thanks for everyones willingess to share and listen. Sorry this was so long, just so frustrated.
Yours for a gluten-free life,
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louiesgirl2 added a topic in Celiac Disease - Coping WithThanks To EveryoneI just want to say thank you to everyone here at this web site. There is a wealth of information here that has been extremely helpful.
The willingness of each of you to tell your stories and share your experieinces is amazing and I for one want to applaud you.
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louiesgirl2 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Feel BetterWell, I have been fluten free now since last Thursday, and the diahrrea has stopped. Feeling better, gas has supbsided alot. No nausea either. Hmmmm?????
Only thing I ate that made me a little gassy was I had beans this weekend. Need I say more.
My husband even made me gluten-free pancakes from rice flour. They were great. I was very surprised.
Found out, potatoe bread is not made from potatoes. How deceiving. First ingriedient, unbleached wheat flour. Hmmmm???
I have always read labels, now I read even closer. I don't trust anything.
I am glad for Whole Foods Market. That store is amazing with the variety it carries.
Well, just wanted to bring you all up todate.
Thanks for all your help and suggestions.
Have a gluten-free day!
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louiesgirl2 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsEndoscopy Testing What Happens If?
What happens if because of gastric bypass surgery they cannot take a biopsy? What is the next step?
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louiesgirl2 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNew HereI have not been diagnosed as of yet. I do have many of the symptoms. I had gastric bypass surgery in 1999. Lack of B-12 is a side effect of this surgery. From what I read that can be one of the causes of this disease. I have also ready any gastric surgery can cause this.
I was diagnosed with fibromyalgia in 12/2004 5 years after my surgery. Many of the symptoms are the same. However, my thereapist who I have been seeing to help with the depression diagnosed me with fibro and also suggested because I am having other symptoms to get tested for Celiac.
Called my primary doctor, he is on vacation, however his nurse said I need to see a gastro guy. My gasto guy is on vacation. Sheesh. Funny thing is I had a colonoscpy in April and it came back negative. However, he wasn't looking for this so he did not take a biopsy. I can tell you right now I am not doing that again for a long time.
Hence, I have put myself on a gluten free diet as of today. Went shopping last night and got a few things. When my gastro guy comes back, and I talk to him, and he insists on testing, I will consider it. By then it will be 2 weeks on this diet and I should know by how I feel if it is celiac disease or not.
So, that is a little about me. Any information would be helpful. Thanks for listening.
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louiesgirl2 added a topic in Board/Forum Technical HelpNew Here And ConfusedI am new to this and don't quite find a board where I can introduce myself to everyone. I have not been "officially" diagnosed, however, I have many of the symptoms. Which would be the best board for me to start at?
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