JudyLanum replied to JudyLanum's topic in Celiac Disease - Friends and Loved Ones of CeliacsThanks for the warm welcome, and the thoughtful responses! As you well discerned from my post, I am very new to understanding celiac disease, gluten intolerances, and how they differ from allergies. I appreciate your patience and helping me to understand. Why I would have liked to re-introduce gluten? (Notice, I'm already learning) From my few weeks of reading/learning and eating, I am learning how very difficult it is to keep a gluten-free lifestyle. Our family loves to eat out. Dealing cross-contamination - need I say more. Eating with friends and family - you know the issues that I've yet to endure. My youngest did have allergies to wheat, eggs, peanuts, dogs and cats. With removing them and slowly re-introducing them, she is now able to tolerate them all. After that experience, I had a hope that I could do the same for myself. I didn't realize that in adulthood that was near impossible. Knowing this lets me know that it's not a realistic idea. Why did I feel it was important to test for Celiac Disease? I wanted to understand if I was actually causing my body to attack itself, especially since it seems that the consequences seem to be "silent killers" almost. Should this truly be Celiac, it's life-threatening, and not just "something to suffer through". Being miserable, and it truly is, for a period of time is very inconvenient and uncomfortable. Putting your life at risk and the consequences extending past yourself and to your children and spouse is much more severe. It makes a difference if I'm going to be adamant about having a resturaunt live up to the standards needed for a celiac disease in every situation, and have expectations of my family and friends. I feel that I have to ask for a lot due to my allergies already. I don't want to compound the list unnecessarily. I have read a little about the testing and the IgA and IgE, but just haven't found a way to make sense and help it stick in my mind as to what they mean. I do appreciate you breaking it down. I will keep trying to get it. Is it possible to have issues with both? Where my gluten free journey began was in an effort to minimize my many environmental allergies (Dogs, cats, trees, grasses)... and then seafood along with many medications. Since the list continues to grow, I was hopefully that if I could get my body to get out of hyper-sensitivity, I might be able to overcome some of these allergies in time. My body breaks out in hives often. In the heavy pollen seasons, I'm on two zyrtec a day (Yes, twice the daily dose) and a nasal spray. I carry benadryl cream and pills in my purse, along with hydrocortisone cream. Whenever the hives break out, I start with the hydrocortisone cream, and if needed continue up the ladder. Since going gluten free, I had no break outs for the first week. When I had the accidental ingestion of glutens, my skin broke out, albiet much less severe than in the past. Would that point to the IgE (allergic) reaction? You've all convinced me, the testing is unneccessary to suffer through. The life-style is permanent. Family, friends, and resturaunts will either have to embrace me as I am, or we'll eat at home. Thanks again for all of your support and the gracious welcome.
JudyLanum posted a topic in Celiac Disease - Friends and Loved Ones of CeliacsI've recently discovered that wheat intolerance may be more severe than ever anticipated. I've been gluten free (except for accidental exposures) for 3 weeks now. (The ooops were met with a major stomach bout about 36 hours later.) I'm finding more and more of my long term health issues are symptoms of Celiac Disease. My husband has supported me in so many ways: Joining me in gluten-free diet, asking me to teach him to read labels, agreeing that all glutens in pantry be given away and replaced, shopping with me for gluten free groceries, researching new recipes, ordering a grain mill for our kitchen! The confusion comes in when I try to discuss health risks, test taking, etc. Ex. I asked him if I should pursue Celiac testing to determine the extent of my needs. I tried to explain that the tests were invasive and that in my limited research there were disagreements in the validity of the tests, which tests were telling, and that many other health factors come into play, therefore the doctors must have a good idea of your entire health in order to intrepret the tests properly. He immediately became angry and didn't know why I'd want to put my body through this for something to unreliable. He simply wanted me to continue gluten free and not entertain the idea of the tests. I tried to explain that if it is in fact a severe wheat allergy, that perhaps in time I could re-introduce grains into my diet. However, Celiac Disease would mean a permanent change, reintroduction would be more severe and damaging as time goes on. He absolutely couldn't listen to me discussing these items. I don't know how much he heard, he was so defensive about it all. I do know he cares very much for me and is making sacrifices. I just feel I need someone to bounce the realities and the path forward around with, so that I can make informed decisions. I am so grateful for his loving me and protecting our family by immediately supporting my health needs. I just want desperately to be able to have his emotional support through this journey. I'm sure others have struggled with spouses having trouble accepting this emotionally. I'd be grateful for some insight on how long it might be before he's had enough time to digest this and will be able to discuss the health side of the issues. Thanks in advance for your feedback, Judy