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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About benXX

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    • Birthday 10/19/1953

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    benXX's Activity

    1. benXX added a post in a topic How Many People Self-Diagnose?   

      Isn't that fraudulent, withholding information when applying for an insurance?
      • 2
    2. benXX added a post in a topic How Many People Self-Diagnose?   

      On this forum it looks like there are many people self-diagnosed and that they are very active.
      • 1
    3. benXX added a post in a topic How Many People Self-Diagnose?   

      clearly the keyword is "body" and "my body doesn't know" has not the same meaning as "I don't know"
      And it is about knowing the difference between "by accident or on purpose"
      • 1
    4. benXX added a post in a topic How Many People Self-Diagnose?   

      Not only for me, for most. Just in human nature that life is easier without doubts. And there is a lot of positive power from doctors, employers, friends, family-members taking your celiac to be a fact.

      If a gluten challenge becomes life threatening or really unbearable, of course a person needs to contact his/her doctor and discuss how to go further. That is just common sense. There are many diagnosed celiacs out there who did the gluten challenge like me. For me it was not a nice thing to go through, but didn't kill me either. I'm happy now I did not quit. I feel lucky I had people supporting me and helped me through it.

      You read wrong.
      I said my body (nor anyone else's body for that matter) can tell the difference between an accidental glutening and a glutening on purpose (as for the body it's just a glutening). Hope with the additions you are better able to understand it.

      I'm sorry to hear how some of you were not able to do the gluten challenge and therefore missed to be diagnosed and to find out the benefits of being properly diagnosed.
      • 1
    5. benXX added a post in a topic DH Photo Bank   

      So far none of the picture posters have been diagnosed DH, right?
      It's a "probable DH photo bank" then...

      How can you be 100% sure it is DH and use it as an example for other people?
      There is still a (although maybe slight) chance it is something else
      • 3
    6. benXX added a post in a topic How Many People Self-Diagnose?   

      Please don't listen to people encouraging you not to go for an official diagnosis.

      For one, when officially diagnosed, it is so much easier to follow a lifetime diet and to convince the people around you about it.
      Secondly, being diagnosed, you will get the necessary follow up tests for the possible effects of mal-absorption.
      Thirdly, you might have some other auto-immune disease i.s.o. celiac, self diagnosing might put you on the wrong track.

      I went on a 30g gluten/day challenge for 2 months (=40g gluten powder or 12 slices of bread) and yes, it was hell, but it was worth it .
      Doctors do take me serious and I'm getting all the follow-up tests needed and help I want. Plus I'm super motivated to stay on the diet.

      Hang in there, the gluten challenge will soon pass. Trust me, it's worth it.
      • 2
    7. benXX added a post in a topic How Bad Is Cheating On The Gluten Free Diet Periodically   

      This was the initial issue of this thread.
      There is 100% consensus that it is not wise to knowingly gluten yourself.

      As my body doesn't know if I'm glutened on purpose or by accident, I tried to extend the issue to when one is occasionally glutened accidentally.

      My interpretation of the reactions in this thread is that: doctors are ignorant, death and irreversible villi destruction may occur and the person wondering about the extend of damage must be so ignorant he needs to buy a basic book on anatomy. And although denied, it all feels more emotional than factual into perspective to me.

      To be diagnosed when already on a gluten free diet, a long and intensive gluten challenge is required. So apparently incidental glutening does not carry far enough to be diagnosed. Of course this does not mean it is ok to be careless, it only gives some comparison.

      For those of us diagnosed celiac, staying gluten free is a way to heal. It's not a belief or a religion, we are not part of a cult.
      There is nothing wrong or ignorant about wondering HOW MUCH you are set back by a single glutening.
      • 1
    8. benXX added a post in a topic How Bad Is Cheating On The Gluten Free Diet Periodically   

      I've seen this document and although it is coming from a very reliable source, there is no scientific reference to their statement that it "can" damage the intestine.
      Has nobody found any study yet about the effects of occasional glutening?
      • 0
    9. benXX added a post in a topic How Bad Is Cheating On The Gluten Free Diet Periodically   

      This is a completely different issue to "what really happens on an occasional glutening"

      Please don't get emotional about it. It is a valid question. I'm just curious what happens in case I get accidentally glutened.
      • 0
    10. benXX added a post in a topic How Bad Is Cheating On The Gluten Free Diet Periodically   

      IMHO the big problem is that it is hard to find scientific data on the net for what happens when one is occasionally glutened. Why we feel so ill from a small dose of gluten, while before we didn't feel that ill when consuming gluten regularly. Is feeling ill from being glutened a measure for the damage done?

      It took years for most celiacs to get diagnosed, so it feels like it took years to get to a point that the villi were destroyed enough to be diagnosed.
      Also, when already gluten free, to be diagnosed one must undergo a severe gluten challenge for many weeks and still risks a false negative.
      I guess I'm not the only one wondering how much damage an occasional glutening really does.
      Not that I plan or want to cheat, I'm very happy without gluten, but just wonder. Would be nice to find a scientific, non-emotional answer to this question.
      • 0
    11. benXX added a post in a topic Newly Gluten Free And Sacred   

      If you are really dairy intolerant (milk proteins), it is not that strange to have problems with beef-proteins as well. I have that too and so have many others.
      Just google "meat and dairy intolerance" and you'll see you are not alone in this.
      • 0
    12. benXX added a post in a topic Heat Rash   

      A looks a bit like seborrheic dermatitis, something that gets worse when warm and humid.
      I've had that for over 40 years on my chest and back, but disappeared when I went gluten-free.
      Had to use Ketoconazol-creme daily all those years to keep it under control.

      When it is hot and humid, I put on baby powder to prevent it from becoming worse. Really helps.

      But it also looks like a sun allergy. Hard to tell the difference from a picture.
      I'm inclined to think it's this one. Use a real good waterproof sun-blocker when you go swimming.
      Baby powder will help some against the itch.
      • 0
    13. benXX added a post in a topic The Epic Battle: Antibiotics Vs Probiotics   

      The pro-biotics sold are only a tiny part of the gut-flora you need.
      Most good gut-bacteria come from raw food (vegetables and fruit).
      • 0
    14. benXX added a post in a topic Other Food Allergies?   

      Any tips on which enzymes to take?
      • 0
    15. benXX added a post in a topic Possibility Of Parasites Infestation Causing Celiac Disease   

      The OP joined the day she posted this and has never logged in since.
      Little chance we will get answers to any or our questions.
      • 0

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