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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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  1. From: My Thoughts On Supplements

    Update:  No more need for adrenal support!  When I first saw the functional medicine nurse a few years back, I had just begun to take adrenal support supplements.  People warned me these were habit forming and my tolerance and dependence on them would increase.  Still, my providers all 3 concurred that I needed them.  I had been on up to 6 per day two summers ago.  Last summer, (after allergy treatments) we decreased to 2 per day The adrenals  could be assessed by orthostatic blood pressure tests.  Anyway, several months back my naturopathic doctor determined that these were no long necessary for me.  I placed my bottle in the freezer and went on without. .  Today, I decided to try to get some more objective proof that these were not needed.  I had my chiropractor check my orthostatic blood pressure.  The LORD has had mercy on me!  My scores were good!
  2. Endoscopy - R/o Esophagitis, Check Up On celiac disease

    How long have you been on the trek now Mossemalibu?
  3. My ferritin level went down from the high I had achieved after months from 26 (I think it was) down to 16 after one extremely heavy 2 week cycle.  I do think that one cycle can throw the iron off a lot.  My doctors have been watching my levels closely every 2 months recently.  I have dealt with some kind of hormonal imbalance.  I am considering with my doctors whether H-pylori may be playing a part in this.  I know my magnesium, vitamin B, and iron levels are high need.  I had already been checked for issues relating to uterus and female issues and found to have fibroids.  I hope this helps.
  4. Currently I am looking for the full  list of celiac tests. Dee
  5. Feel different bad being 99% gluten free

    I think you probably need to go 100% gluten free (I reread that and perhaps you have) and then give yourself time to heal.  I say that because from my experience with allergies and celiac, I react more to whatever is left bothering me.  Make sure all of the products you are using are certified gluten free.  Consider other food allergies.  I had a problem with severe fatigue until I stopped eating everything which I didn't tolerate. Dee
  6. Hi Morten, For celiac disease, I have tried cutting out gluten.  I eat as many varieties of foods that I can.  Some foods help heal.  I do use probiotics and have for many years now.  I am getting well, and strong in spite of being sick for very many years.  I hope that you will grow up to be strong, comfortable, and yet careful to take care of yourself.   Dee
  7. Leukopenia

    I just googled leukopenia it is:  a reduction in the number of white cells in the blood, typical of various diseases.  It is a symptom and not a disease.  I guess if it were me I would set out to find why your white blood cells are fewer than normal.  I would look for a disease and I would look for nutrient levels.  Also, consider you may just need some more time for the body to heal.  You may want to look up what in the body produces white blood cells. I hope it is something that will resolve for you.  Congratulations on the lowered IGG, I would take this is result of your careful diet.  Hopefully everything will come into line. Take care Dee
  8. SIBO

    Hi Lacey, My GI doctor gave me a list of foods to avoid (foodmaps) which might possibly help you.  What you eat can encourage or discourage the bugs.  I noticed if I ate  foods on the list, it would really bloat me up.  Rather than give you the whole list, I suggest you look one up online.  Another thing you might try is SCD diet.  It is basically no grains or sweets.  Paleo is the same or similar.  To find foods for paleo I watched youtube shows.  A NAET treatment for parasites seemed to help my body start fighting them off.   I wasn't officially diagnosed with it, but the GI doctor highly suspected it.  I had 30+ years undiagnosed, so many years of poor digestion.  I could not be officially tested for it because I couldn't drink the sugar solution to check for it!
  9. Hi Mommy2, There are many kinds of foods and I suggest you keep as many as you can in your diet.  When I was having extreme difficulties tolerating food, I tried new foods that I had never eaten before.  For me the list included special meats such as:  lamb, bison, duck, yak, which I found at natural food coops.  There may be some type of nuts that you haven't eaten such as macademia, chestnuts, pecans, or pine nuts.  Many of these are expensive, but we are trying to heal!  My new vegetables included the following:   konjac, sea weed spinach, swiss chard, collard greens, jicama, Jerusalem artichoke, fennel bulb, and radishes.  Fruits I found were what follows:  Dragon fruit, star fruit, mango, kiwi, sour cherries, and bananas.  Don't give up trying foods.  Once I looked up the list of vegetables in Wikopedia.  I discovered that their list included more than half vegetables I had never heard of.  I tried all new diet items; it worked for me, but if you don't want to be so drastic, you can keep adding more.   Another idea is to look at the SCD diet plan.  In a nutshell this plans uses meats, vegetables, and nuts that are easy to digest.  They do recommend starting with a fast, for this they use a gelatin mix of some kind.  This is said to be very healing for the gut.  The diet was originally created to help heal the gut after celiac or other intestinal issues.  One can just google for more information about the diet.  I have the book Breaking the Vicious Cycle  from which I learned about the diet.  It is very similar to paleo diet which I also like.  One can go to youtube and watch some paleo cooking shows for ideas.   Are you taking supplemental magnesium, because too much can give you symptoms with loose bowels?   My doctor highly recommends coconut oil for helping to heal the gut.  I have been using NAET energy treatments to overcome my sensitivities to foods and I am feeling much better.  For information about NAET, you can to their website or read the book, Say Good-bye to Illness by Dr. Devi Nambudripad.   I hope for you the very best in healing,   Dee
  10. Good to hear.  Praying the Lord will continue carrying!  Eloise, you have to get better enough to get up and read this!   Diana
  11. I do get this symptom, but I feel it may be due to allergies.   Are you sure you don't have an allergy to your tooth paste or some air freshener, or something in the bathroom?  Allergies sometimes also make me feel dizzy or foggy brained.   Dee
  12. I get a mysterious spasm in my left shoulder, but nobody has been able to explain to me why.  I don't know if it is the same.  My muscles began to ache from gluten exposure before diagnosis.  Also, my doctor told me that it seems I had suddenly lost all muscle tone and she didn't know why.  It seems like you are carefully analyzing your diet and disciplining yourself, I wish you well in your healing.   I had a problem with tremor for years, but magnesium helped.  My doctor also recommends it for muscle spasms, so I am not sure why it isn't helping you.   Dee
  13. Help With Test Results

    I don't think that anyone approached the late onset of periods.  I have 5 girls so here goes:   Recently I told my doctor that I had started my period when I was 15.  She made the sigh I often hear when I mention this to doctors.  She felt that it was unusually late.  She furthermore went on to state that the age of onset has gone down in recent years, so that they expect the first period at 10 years old.  That surprised me as my girls have been into their teens before having theirs.  One of my girls is not a biological child and just started her period at 10 years of age.  I had two of my adult children tested for celiac disease and the results were negative. One has very low ferritin level and I am still suspicious, but what can you do?
  14. What Is Super Sensitive?

    I would like to say also, that if one has been sick a very long time, it can take more than 6-12 months.  The situation can be complicated with other food intolerances or results of the illness.  I had been sick for 30+ years and still felt I am transitioning after 3 years.  I don't want to discourage anyone making them think it will take that long, but only explain that sometimes it does.