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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About jcfraun

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    1. jcfraun added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Leg Pain And Negative Bloodwork
      I have a question that's been nagging at me and I want to get opinions from people with some more experience.

      My 4-year-old daughter is a very picky eater (often eating only the gluten options that are offered and the forced bite or two of protein and veggies) and has a history of fairly frequent leg pain, sometimes to the point that she "can't walk". She's quite the dramatic child, so it's hard to ferret out what's exaggeration vs. what's real. All-in-all, though, I do believe her.

      Since my 10-year-old daughter was recently diagnosed with celiac via blood test (TTG>100) and I suspect myself, I had my other two girls tested, both of whom came back negative. Now that two of us are gluten-free, my 4-year-old has had less exposure to gluten than ever and I did notice that her leg pain has been pretty much been gone. Last night she was up with it again and she did have Kraft mac and cheese for dinner, but there is not a definite connection between the pain and the gluten ingestion. She's eaten regular pizza with no pain.

      Does this sound like it could be gluten even though the blood results were negative? I don't want to get her the biopsy - too risky at too young of an age, but it's hard for me to justify going completely gluten-free just yet with no actual reason to do so. Or is there? I'd like to hear people's experiences with leg pain.

      • 1 reply
    2. jcfraun added a post in a topic Question About Cross-Contamination   

      Thanks for the pizza recommendation. I found a store that carries their products and will head there this weekend! As far as the restaurant goes - no dice...they don't even have one in our state. Thanks again!
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    3. jcfraun added a post in a topic Question About Cross-Contamination   

      I do understand that that is the case - that cross contamination is bad no matter what. I think that's why I was confused that people seem to use their physical status as a barometer of when they've been glutened. I think in our society it is very hard to know for sure that we're avoiding cc if we aren't having a reaction. So, in short, I've decided to not get pizza at Domino's (at first I was excited for my daughter's sake, I have to admit). We do our reasearch and eat only the gluten-free options at restaurants.

      I will keep taking it day-by-day. I have to trust her to do the same when I'm not with her. One serious night of pain on her 6th gluten free day after intentional ingestion of pasta did more to convince her that I ever could have (she was largely gastro symptom-free before diagnosis). She misses certain things, but overall hasn't worried too much about it. I think it helps that I consider myself the same as her and am treating myself as if I have celiac. I have a first cousin and now a daughter with it and MANY other untested relatives that are highly suspect. I'd be willing to bet money that I'm correct in my self-assessment!

      Thanks for the input!
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    4. jcfraun added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Question About Cross-Contamination
      I have a 10-year-old daughter that was diagnosed with celiac about a month ago. Previously, I was gluten-free, but with no diagnosis (was tested after being gluten-free for several months), hadn't been very cautious. Now, I'm treating myself as full-blown celiac - I have spent most of my life in some sort of discomfort until going gluten-free.

      So, my question is about cross-contamination. I have read some people saying that they determine whether they can eat a certain food due to cross-contamination based on whether they feel symptoms. Is that a reasonable thing to do? Will you always be able to tell if you've been glutened? It seems a daunting task if you cannot even tell if it's happened (i.e., in a restaurant or at school, etc.) .

      On a related note, we are Catholic and they ordered us gluten-free hosts (or actually low-gluten, I believe). How can I tell if these are ok for her to have?

      • 9 replies
    5. jcfraun added a post in a topic Domino's "Gluten Free" Crust   

      I understand the issues with Domino's gluten-free pizza and cross contamination - does the cheese actually contain gluten? also?

      I was hoping to take my 10-year-old daughter (diagnosed via blood test - TTG greater than 100 - with celiac one month ago) to get the pizza and see if it bothers her. Is that not a wise decision?

      Is cross-contamination always really bad for celiacs or can symptoms dictate how careful you have to be? For instance, although I've spent many years (i.e., 35 years) not feeling well and feel great after going gluten-free, I don't seem to get the immediate reaction to gluten that some get. Does that mean anything or not? (I suspect myself with celiac as well, but wasn't tested until after going gluten-free for too long. It runs in my family, though.)

      If my daughter eats at Domino's and feels ok, does that mean it IS ok or is that meaningless?

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