alliznelle replied to alliznelle's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks everyone for sharing your stories! I am still eating gluten because I am still deciding how to handle going about figuring this out. I do still have the rash - it sometimes fades and isn't as bad, but it is always there, and increasingly gets worse and more widespread. So I will probably inquire about skin testing first, though maybe I will just do the blood test and skip the endoscopy. Thanks again for sharing your stories and info! I really appreciate it. Seems like a tricky one to sort out for a lot of people. I will keep you guys posted for future people in my position, but I have another expensive appointment coming up so that will postpone my figuring this out - which is why I was considering just changing my diet and seeing if it made a difference while I wait to get in for testing. Thanks again peeps!
alliznelle posted a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptomshello all! i have NOT been diagnosed with celiac's disease, or with a gluten sensitivity - but after my own research and dealing with some symptoms for over a year - i am starting to think i am finding my own answer. i don't have health insurance so am worried about how much the tests would cost to find out for sure. that said, the blood test is not the one i am that worried about, more about the biopsy of the intestine that they will likely want to do (i hear that is a common test?). anyways.. for about a year, i've been dealing with itchy little spots - that resemble tiny blisters. for months and months, i assumed it was acne, even though they didn't quite look like acne. they appeared on my chest, and the top of my belly right in between my ribcage. the longer i have had them, the more i notice they itch. i take zyrtek once a day to help keep the spots and itching at a minimum (yet they persist). i did go to my general physician because at the time, i convinced myself it was bed bugs. i couldn't really find anything online that seems to describe exactly where my "dermatitis" is. it seems each variation of dermatitis is pretty specific, and nothing seems exactly right. the doctor told me he believes i have contact dermatitis, but i'm not so sure.. he prescribed me with an antibiotic that did help clear up the spots i had picked at in the past when i assumed it was acne, but the rest of the little spots remained. he also prescribed me a steroid cream, which i do feel like helps the spots. but not really. it just makes the spots move elsewhere, or leave temporarily. i have since quit using the cream, after applying it twice daly for about a month and a half. after a lot of research, i am thinking a gluten allergy may be possible. i have symptoms of IBS, and feel bloated a lot, and have an upset stomach fairly frequently. i feel fatigued every day, even though i always make sure to get 8 hours of sleep. i obviously have some sort of spots that resemble what some with a gluten allergy suffer from, but i'm a bit thrown off by the locations suggested for them. while mine did originally start on my chest and upper stomach as i mentioned earlier - i have noticed it seems to have 'spread' now (or maybe i'm just looking harder now) i find them often, regularly, on my collar bone, my back, and my knees (sides of knees, not back or on top of knees). i feel like i see them on my arms sometimes too - but my chest gets by far the worst of it. and the spots have definitely tripled in the quantity of spots in the last year. i feel like the spots DO get worse when i am really stressed out. they itch. if i don't take my zyrtek, i'll be miserable. i was shocked to read that celiacs disease or a gluten intolerance can be linked to depression, sore joints, bladder infections, and irritableness. i have extremely sore wrists/hands/forearms/elbows, in particular. i've suffered from depression for ten years, but it has come and gone. lately it seems more prevalent, but i do think it could be partially related to the stress of trying to figure this out, and other factors in my life. but it's definitely something i've always struggled with. i also used to struggle with UTIs on a regular basis. my next idea is to stick to a gluten free diet for the next two months and see if i feel any better. i realize i have to clear out a lot of my kitchen - wooden spoons, cutting boards, anything that could keep old contaminants locked in and saved for later. i've already switched all my home products to fragrance free products, with no improvement - so i have been researching new cosmetics (check out redapplelipstick.com if you are unfamiliar!), and shampoos and the like. though i feel this will be just as costly as a test to confirm if i have it or not - but then if i do come out having a gluten allergy, i will still have to spend the money on investing in new kitchen materials, beauty products and food. so i feel i may just try it, because it's not going to hurt me to try. anyways, the point is just to share my story, and hopefully hear some insight if this, to anyone, sounds obviously of a gluten allergy, or even if it obviously screams it is not a gluten allergy. i'd love insight, and maybe your own personal stories on how you discovered you are gluten allergic. by the way, i'm 28 years old. live in hot and humid houston. thanks for taking the time to read, i know it's not a short story by any means, lol! p.s. sorry if there is a topic for this already, i couldn't find one after a quick scroll through! ellen