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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    archaeo in FL

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    1. archaeo in FL added a post in a topic Fitness And Celiac Question   

      Hello Aidan,
      To build muscle, you really have to eat a lot of protein. It can be difficult to eat enough! Some folks recommend 1 g per pound of bodyweight (particularly if you want to build muscle), and you shouldn't get less than 1 g per pound of lean mass (your body weight minus body fat), particularly if you're lifting. I'm doing a fitness challenge through my gym right now and we're working through a lot of that. The best thing would be for you to work with a nutritionist and let him/her know what your specific needs (Celiac) and goals (gain muscle mass) are. As a relatively small woman who's used to trying to limit what I eat (calories and otherwise), adding lots of food to my daily meals - particularly meat - has been tough. I've added a lot of deli meat because it's easy (and because I don't have any problem with blood pressure - the salt in deli meat would make it a more difficult go-to for some folks).
      I do a variation of CrossFit and we work to failure pretty often. I'm still dealing with what I think is a level of exhaustion that doesn't match my physical effort (so I think something else is causing me to be more tired than I should be), but I am seeing gains in strength - which obviously makes me very happy. SLEEP is super important. It's when your body heals itself, and builds muscle. Let yourself sleep as much as possible - turn off the TV (or computer, or cell phone) and go to bed early. Drink lots of water. I've been diagnosed and gluten-free for about two years, but in the first year I just ran - I couldn't imagine lifting weights I was so tired, and running was something I could do on my schedule and at my pace. I did a half marathon last spring and another last fall and then decided it was time to get stronger.
      In terms of healing time before you get back to training - just listen to your body. Personally, I never stopped moving - no matter how tired I was - even though I did scale back on length and intensity. If you need two days off after a tough workout, do some stretching or yoga instead of back to back tough training. If you feel great, go for it (but listen to your body again in recovery - after the workout!). If you don't feel ready for tough workouts yet, ease into them. And don't be hard on yourself mentally - remember that you're healing on the inside, and after a while you'll be able to push yourself harder.
      Please be careful of the high iron - I found out recently that I also have something called hemochromatosis. "Normal" bodies shed excess iron. People with hemochromatosis store the iron, eventually in their organs, which causes all sorts of problems. The good news is that if you can catch it early, it can be monitored and very easily treated (essentially by donating blood or just having it drawn).
      Hope that's helpful!
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    2. archaeo in FL added a post in a topic This Itchy Skin Has Got To Stop!   

      I'm going to echo Nikki2777 on this - I have been trying to find out why I have elevated liver enzymes, and in the process of researching it found that itchy skin is often associated with liver problems. Please go see a doctor and explain, and request liver enzyme "liver function" tests.
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    3. archaeo in FL added a post in a topic Weddings   

      I would always bring a back-up, even if it's a collection of fresh fruit, nut bars, chips (the catered meal would be indulgent, so why not be a little indulgent too?!), whatever you can manage depending on how you're traveling. I had a great experience recently at a wedding that I expected not to be able to eat anything at - I'd prepped a whole meal and was going to go out to the car to eat quickly at some point, but wound up being able to eat a lot of the many salads and beautiful fruit. One of the catering managers helped me with what was safe and what wasn't. Of course, it helped that it was really relaxed, buffet-style and everyone just grabbed plates when they were ready to eat (they didn't call up specific tables).
      No need to involve the bride or groom, unless to get the caterer's info - they have enough going on and will likely stress over that additional detail, even if you tell them not to. Contacting the caterers in advance is a great option, as is offering to pay for any price difference. I don't think many places are likely to give a "discount" if you don't eat, since they're pricing by attendance and not by who is eating what - the caterer still has to provide drinks, etc., and it's all part of the contracted package, especially if the caterer is tied to the venue.
      Remember, too, that with all of these online review sites you can help encourage "good behavior" by sensitive and helpful caterers by providing good reviews and by reviewing those with snide servers or those that essentially poison you with bad reviews. Lots of good websites - The Knot, Wedding Wire, and others have lots of quick and easy review options, and that really helps those of us planning weddings, too! Chances are, if that wait staff was rude to you, they were also rude to someone else.
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    4. archaeo in FL added a post in a topic Best Way To Train For Half Marathon?   

      Hi Jebby, 
      Thanks for the response! For some reason I didn't get a notification that you'd responded.
      I'm not on Daily Mile right now, but I do use RunKeeper. Do you only use Daily MIle? I've never looked at it.
      I got through a 14-mile run about a month ago, with a friend, on a route he'd run as a half-marathon race (not sure why it sound up being 14 miles according to RunKeeper). Pretty happy with my time, too, especially since it was already pretty warm and a hillier route than I usually take.
      Unfortunately, I've been pretty lazy since then! I decided that I wanted to transition to more strength training over the summer, and I've started doing the Insanity workouts. That goes well as long as I'm feeling ok, but last week I had a vertebrae issue (!) that caused shooting pains up onto and into my head - ouch! 
      I want to try to keep running at least once or twice a week, but I'm in Florida and it's already really hot and humid. Getting out of bed to run first thing in the morning can be challenging! As long as I'm doing something, I'm not too disappointed, but I know that if I don't continue to run I'll lose what I built up. My half isn't until November, and I plan on transitioning back to running again late summer.
      The best news for me is that my antibody levels are down to a normal threshold, and I can introduce gluten-free oats. I get so tired of rice sometimes! I definitely don't need to gain weight - I wouldn't mind losing a few more pounds, but more than that I'd like to reduce body fat (even if total weight goes up with muscle mass). But I just read the thread on fat-burning supplements and I can't help but think those things are crazy. I'm exposed to enough chemicals unintentionally, I don't want to intentionally ingest crazy things! I do eat chia seeds, but usually mixed into a smoothie. Not a big fan of coconut, but I'm getting used to the flavor as I try to avoid dairy and a lot of substitutes have coconut instead.
      I'll check out that blog, too, thanks for the recommendation!
      Have you run your marathon yet? I hope it went well, or good luck!
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    5. archaeo in FL added a post in a topic Anybody Else Have Endometriosis And/or Interstitial Cystitis As Well?   

      I had a doctor tell me I had IC based on the potassium test - catheter, water, potassium, comparison of pain - but every step hurt like hell which, to me, is no clear diagnosis (if even water hurts there's something else going on, like the dang catheter scraping up my insides!). He then scoped me (without hydrodistension) and didn't see any damage or inflammation. I was there because the sensation of having to pee never ever went away, after coming on suddenly with what I thought was another bladder infection. My mom has IC, and I've read a lot about it. I don't have bladder spasms or pain, and I also didn't see any results - at all - from the IC diet, aloe pills, or the different meds that doc gave me (for overactive bladder or for IC, though the IC drug made my hair fall out).
      I had other doctors tell me it could be endometriosis, and talked me into getting an IUD since that would be the first treatment anyway and I'm not looking to procreate. I've had it for about a year and will get it removed soon - terrible acne, night sweats, trouble sleeping, cramps at any time and especially during and after exercising (though not getting a period has been nice). I have not tried the endo diet, but have seen a lot of criticisms of it.
      The sensation of needing to pee all the time started to wane nearly a year after it started, not long before I had my upper endoscopy. I was continuing to eat gluten but I think I'd cut back. I'd also started to exercise again. None of my doctors agree with me, but my suspicion is that my bladder problems related to Celiac.
      I guess I'll find out when I get this IUD out!
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    6. archaeo in FL added a post in a topic Workouts Causing Irregular Bleeding?   

      Hi cambrozi,

      I'd also suggest asking your OB/GYN whether you might have endometriosis. It's incredibly common, and often (but not always) causes bad cramps. I've had irregular bleeding most of my life, and started taking birth control when I was 15 because my cramps were so bad.
      I'm currently getting lots of cramps and some bleeding after working out, but for me I think it's an IUD that I'm scheduled to have out soon. I got the IUD because my OB/GYN suspects I have endo, but didn't do the scope to find out; essentially, she said the only way to really treat it is with hormones, and since I want to be on birth control anyway she suggested the IUD. The cramps often seem related to my GI tract and my back, but apparently that's also common for endo.
      Essentially, I think you need to see a doctor - it may be normal, but it may not be. If you don't like your OB/GYN find a new one who'll listen to you, and explain that you think there may (or may not) be a connection to Celiac.
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    7. archaeo in FL added a post in a topic Pre-Race Food   

      I have a really sensitive stomach too, and I almost can't work out other than first thing in the morning.
      Before a long run on the weekend, I'll have a spoon of peanut butter, and that's plenty for me (7-10 mile runs), though sometimes I don't eat at all before a long run (and never before a first-thing-in-the-morning short run). If I am going to work out after eating, I have to wait a long time and be very careful about what I eat - nothing spicy, salty, too sweet... pretty much just veggies and carbs and protein, as plain as they can be, but also not anything likely to make me gassy (veggies, beans, dairy).
      For smoothies, I never use dairy! Almond milk, frozen fruit (just almond milk and a frozen banana blends up like a milkshake!), and sometimes I add chia seeds, baby spinach (start with just a little, add more each time - I actually like the taste it adds now, just don't mind the color!), and sometimes a veggie-based protein powder.
      I actually skipped my morning run today because my stomach is still upset from nachos I ate last night. I wanted to treat myself, and didn't think the repurcussions would last so long... lesson learned.
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    8. archaeo in FL added a post in a topic Best Way To Train For Half Marathon?   

      Nearly there - time to do a 12 mile run this weekend and the half marathon (not a race, just the distance) the next. I usually run alone, but have a friend running the half-marathon distance with me.
      Just in time, too, as the heat has arrived here in Florida.
      Taking it slow (stretched a 12-week training program to about 16 weeks), trying to keep mileage up during the week, and allowing life to happen (I didn't always get to my mid-week or longer weekend runs, so I'd extend training another week) really helped. I still average a 10-minute mile, but my shorter runs can be a little faster when I push it.
      I'll take the summer to work on resistance training and return to running in the fall, in time to train for the race!
      I'd still love to hear about what others are doing and training for.
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    9. archaeo in FL added a post in a topic Tummy Ache After Quinoa - Other Non-Grain Subs?   

      SensitiveMe and JNBunnie1, thanks for the response! I have a taste issue with buckwheat - it tastes like plastic to me. I've heard other people say some people think it tastes soapy, but I think maybe my palate is funny (I also don't like cilantro, which some people think tastes like soap, but just triggers my gag reflex - yuck!). I've hard the untoasted buckwheat groats have a less strong taste, but I've only tried them once and that recipe wasn't a winner.
      I'm so glad you can continue to eat quinoa - it certainly seems well known as a "superfood" and I don't think there's any harm in using the term, especially when it describes a food that is delicious, easy, and nutritious!
      Apparently I may do ok if I cut it out of my diet and slowly reintroduce it again (but I'll be sure to rinse it, in case that's what got me before), and I do periodically have some gluten-free cereal with quinoa and lots of other grain alternatives in it.
      Also, I don't have the recipe, but a friend mentioned that she'd made gluten-free cupcakes with cooked quinoa that turned out really really well - might be worth a search!
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    10. archaeo in FL added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Tummy Ache After Quinoa - Other Non-Grain Subs?
      After a little searching online, I'm finding that I'm not alone in loving quinoa but not how it makes me feel. I know it is a safe grain, and my reactions aren't like my Celiac reactions (Celiac involves alternating d and c, severe fatigue, brain fog; after quinoa, it's stomach and upper GI pain, pretty acid feeling, and I almost never get an acid stomach).
      It appears that some folks simply don't do well with this item, whether it is cleaned or not. (Quinoa has to be cleaned to remove saponin, a natural compound produced by the plant apparently for protection - it is supposed to be washed away via a thorough rinsing of the quinoa before cooking.)
      Anyone else have bad reactions to quinoa?
      What other non-grains or safe grains do you use as you would quinoa, couscous, barley, etc.?
      (For those who don't have any reactions, it's great! Do be aware that it has become a little controversial, though, not for its healthiness but for the impact it rapidly growing popularity has had on the places and communities that grow it.)
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    11. archaeo in FL added a post in a topic Quinoa Oh No-a Should Have Said Whoa To That Quinoa   

      I'm late to this discussion, but have been noticing that I'm having bad stomach reactions to quinoa. Bad acid, reflux, stomach aches. To clarify, I do not think this is Celiac related, but it's frustrating that such a healthy grain substitute is now off the table too! It has been my go-to for packing lunches with fresh veggies and healthy fats (avocados, olives), but I guess I'll keep looking...
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    12. archaeo in FL added a post in a topic Best Way To Train For Half Marathon?   

      At a coworker's suggestion, I tried run-walking in earnest this weekend (normally I only walk when I feel I need to). He walks a bit after every mile, and uses this method to complete triathlons, including Iron Mans, which surprised me.

      I felt like I was just going too slow, and I didn't feel like it was helping me recover. I tried to walk pretty short distances, but I still felt like I was having to warm up again after - no matter how short!

      I did make it 8 miles, though! I jumped there from 6 since I was incorporating walking but will drop back down to 7 to continue my gradual addition of miles each week.

      So far I've not invested in a hydration belt, and from the research I've done on during-run supplements it looks like I'll be as good with honey or candy (Skittles, probably) as anything else. I can't do sports drinks well, they mess with my stomach (too much citric acid, I think), so I know if I run in the heat I'll also need salts, but I'm hoping (despite being in Florida) not to have to train in too much heat, since I usually run in the early morning.

      I got to run with that coworker for a short mid-week run, and it was awfully nice to have company and to help me keep pace. Unfortunately, I was on travel and he's nowhere near me, but he showed me a beautiful park, which also helped the run go by fast. Keeping my fingers crossed I might find a running partner someday!
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    13. archaeo in FL added a topic in Gluten-Free Sports and Fitness   

      Gu, Beans - What's Your During-Exercise Go-To?
      Training for the half is going pretty well. I manage two runs during the week (2-3 miles in length without the warmup/cooldown, shorter is usually a quick interval workout), and one long run on the weekends. I've done two 5-mile runs and am looking forward to some cooler weather for my first try at a 6-mile this weekend!

      So... after how long of a workout do you supplement and/or drink water?

      And what do you consume?

      I don't have one of those running belts yet but I guess I'll have to get one as it starts to warm up or just do circuits to stop by my house for swigs of water.

      As a total newbie to the running thing, I don't know how much or when to consume calories while working out. I've done long workouts before, but I guess a little irresponsibly because I never consumed anything during, even if I was at the gym for two hours (back when I had two hours for a spinning class and lifting!).
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    14. archaeo in FL added a post in a topic Endoscope Done Today   

      To echo others here, my doc told me it all looked normal as I came to afterwards, and told me to continue to eat a normal diet. Two weeks later, a nurse called and told me that I have Celiac disease and sent a poor-quality photocopy of a short pamphlet about how to eat gluten-free. When I asked if I should schedule a follow-up exam, I was told that the doctor was off - for the entire summer - and that they'd call me when she returned.

      All of which is to say, the time between now and when you get results may seem slow, but if you suspect Celiac there's no reason not to start the "diet" now, since all tests are done. Worst case they'll come back negative and he'll be a few days or a week or so into the diet change and will know if he feels better, indicating possible sensitivity.
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    15. archaeo in FL added a post in a topic Best Way To Train For Half Marathon?   

      Made it 5 miles yesterday - beautiful day, very low hills, and my time actually improved (I guess my pace improved, really)! I'm averaging about a 10 minute mile, which is pretty speedy from where I was, but I'm getting up to much better than that on some sections and during intervals.

      Did 3 miles today, though, and was slow! I guess I should have taken a day to recover, but will be traveling for work tomorrow and Thursday and am not sure I'll have time to run, and definitely won't on Friday and Sunday... so I wanted to fit another one in. I've really got to start making music mixes, though - I usually stream Pandora and that can be pretty hit or miss. That's fine for half an hour, but moving up towards an hour's worth of music makes me want to spend some time picking what I'll listen to!
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