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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About e&j0304

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    1. e&j0304 added a post in a topic Teen - Blood Test High Gliadin Iga   

      Thanks for the info and I'd love to hear what your ped GI has to say!
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    2. e&j0304 added a post in a topic Teen - Blood Test High Gliadin Iga   

      Chrissy, what are those other things that can cause elevated IgA? I have always wondered and have never found my answer...
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    3. e&j0304 added a post in a topic We're Going To Disney World!   

      Thanks for all the advice, Angie! I appreciate it!
      We are looking forward to our trip. My little 4-year-old girl is going to have the time of her life!! How exciting!!
      Thanks again!
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    4. e&j0304 added a topic in Gluten-Free Travel   

      We're Going To Disney World!
      I have tried to read as much on here as I can find about Disney and it seems like they do a great job with gluten free foods. This is our very first trip to Disney World and we have 2 children (ages 2 and 4) who follow a gluten free diet. We are going in September.

      Should I request a gluten-free foods list to be mailed to my house?
      Should I make special requests over the phone or is it ok to just ask when we get there?
      What about Character dinners....I don't want my kids to feel left out.

      We are doing dinner at Cinderella's Castle, Chef Mickey's Breakfast buffet (twice), a Princess Dinner at Epcot and maybe one other Character dinner although I haven't booked it yet. How many character dinners are too many, do you think? We will be doing the Disney parks for 5 days.

      We are going to have a fidge in our hotel room. Can I buy things there to keep in our room since we're flying? I am the most worried about breakfast because they LOVE their gluten-free cereal, bars, waffles, etc. that I'm sure they won't be getting at WDW.

      Thanks for any insight that anyone has. I'm glad we've started planning this trip now. It's overwhelming for someone who's new at this!

      • 16 replies
    5. e&j0304 added a post in a topic Thyroid Situation...   

      Thank you all for the advice. Her dr. called today and said that they want to test her again in another 3 months. They will do antibody testing at that time to determine if she has Hashi's. Hopefully we will find out one way or another if there is something really wrong with her.

      I really appreciate the advice and support!
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    6. e&j0304 added a post in a topic Thyroid Situation...   

      Thanks for the advice, Georgie. She has not been tested for anything other than TSH and Free T4. She was tested about 2 or so years ago for FISH levels? I'm not sure what that is but they said it was normal.
      It's frustrating because I think drs. think we're crazy. I know that it's not normal that my 4 year old's hair was falling out in clumps and is not not growing at all. We have pictures of her at the age of 2 and her hair is almost EXACTLY the same length. It has grown maybe 1/4 in. in 2 years with NO haircuts. That can't be normal. She also struggles terribly with constipation and they just want me to give her a laxative...

      Anyway, thanks for your help. I hope we can get it figured out!
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    7. e&j0304 added a topic in Celiac Disease - Related Disorders & Research   

      Thyroid Situation...
      Ok, so here's the deal. My little girl was tested 3 months ago for suspected hypothyroidism. Her labs were: TSH 3.7 and Free T4 0.6. The dr. wanted to wait and retest her so we just did that and her new tests results are: TSH 2.62 and Free T4 1.2. So last time her results were borderline abnormal. Her TSH should really be under 3 for sure and we would like to see it below 2.5. Her Free T4 was obviously low at 0.6 but is now completely normal.

      What do you make of that? She is on no meds. Her symptoms include hair loss/thinning/no growth, short stature, protruding abdomen, aching legs, cold skin, mottled-looking skin (red/purplish lacy pattern on her skin). Apparently this is all normal and ok...

      She is currently in the 5% for height and 60% for weight. She is so short compared to other kids her age. I am 5'9 inches tall and my husband is 6'4. Our son is above average in height. We were all above average in height as children.

      What would you do with these new results? Should we just let it ride for another year and see how she does? I already feel like a crazy parent because she didn't want to run these tests in the first place and I think she was shocked that they came back borderline high last time.
      • 5 replies
    8. e&j0304 added a post in a topic Not Sure What This All Means...?   

      If he has reflux that could be making him wake up at night as well. Some kids have reflux without us really knowing it. It's called "silent reflux." My son has a pretty severe case of this and also wakes up many times during the night crying. Food issues as far as texture and refusal to eat are also signs of reflux.
      I'm glad you got in with the GI. He should be able to figure it out. I say that a little hesitantly because we've had our fair share of TERRIBLE Gi's but we cannot possibly be the norm and I'm sure yours will be fine.
      Good luck to you!
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    9. e&j0304 added a post in a topic Please Help Me Choose Endoscopy Or No Endoscopy For My Son.   

      I think that the benefits to finding out the information during an endoscopy FAR outweigh any potential risks. Most people do completely fine with the anesthesia and if you have a good dr. they should be able to find the damage. If that is all negative then I would absoloutely do a trial of the diet. I agree with Ursula that it only makes sense to try to get the diagnosis first and then try the diet so the parent and child aren't left with the "Well maybe we should have done it...." thoughts. It is not at all easy to put a sick child back on gluten just for a challenge. Also, there are other conditions other than celiac that could be affecting that child. He deserves to have every possible chance of receiving a diagnosis if it's something he will have to deal with for the rest of his life...
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    10. e&j0304 added a post in a topic 1 More Week Until My Son's Hydrogen Breath Testing   

      I was talking about the lactose test, not the gluten one. The poster before me was questioning why her GI didn't know about it and asked who ran it.
      Sorry for the confusion!
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    11. e&j0304 added a post in a topic 1 More Week Until My Son's Hydrogen Breath Testing   

      My friend's child had this done and I believe his gastro ordered it and he went to the hospital to actually have the test run.
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    12. e&j0304 added a post in a topic Newly Diagnosed With Celiac And Throwing A B-day Party   

      The Kinikinick (sp?) mixes are AWESOME. I always use those for cakes and cupcakes. Also, like someone else mentioned, some bakeries do make gluten-free cakes. Our local chain, Hy-Vee, does gluten free cakes. If it's just a small party I would definitley try to do it ourself though if you can. It would be less expensive that way. I actually make a Thomas the Train cake for my son's second birthday out of gluten-free cake mix and it was so adorable.

      Good luck!


      PS We also only make one cake but our parties are pretty small. If you're having a huge party I don't see a problem with making a gluten-free cake maybe for all of the kids and then a regular one for adults or something because the gluten-free cake mixes are expensive.
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    13. e&j0304 added a post in a topic Newly Learning About Celiac Disease - Could My 4 Year Old Have It?   

      It sounds like your son could definitley have celiac disease or a gluten intolerance. I realize that the cost of blood work or other tests can be a consideration but if your insurance covers it or if you have the money to spend I highly recommend going that route. If the tests are negative you can always try the diet. However, if you try the diet first and then change your mind about testing it will be VERY difficult to get an accurate test. As a mother I know that I just wanted to do everything I could to get a diagnosis for my children. I felt as though they deserved to know exactly what condition they have. It's a personal choice and I completely understand that not everyone agrees with my decision. The tests are not bad at all. It is a simple blood draw to begin with and although your child will scream he will be fine when it's over. Both of my kids have had to have them many times and although never pleasant they get over it. We started having them when my dauther was only 14 months old so I understand where you're at. The endoscopy is was really easy. My son tolerated it without issue and I really haven't heard any bad stories about the procedure.

      Good luck with whatever you decide. I hope your son is feeling better soon.
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    14. e&j0304 added a post in a topic I Dont Know If My Daughter Has Celiac?   

      It sounds like she could have it but you won't know until you get her tests back. That short amount of time off of gluten will not change her results. The test results can be unreliable in little kids however and I hope she at least got the complete panel run.

      Good luck. She may be gluten intolerant without celiac so if the diet helps her, don't discount that. You also know that if her tests come back positive, or even it they're negative, they may want to do an endoscopy with biopsy to confirm the diagnosis. She needs to be eating gluten for that so you may want to keep her on a normal diet for now.

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    15. e&j0304 added a post in a topic Reliability Of Stool Tests For Diagnostic ?   

      And then there's my son who does have symptoms who tested negative in all areas through enterolab. Go figure. I really don't trust that they accurately diagnose people with gluten sensitivity. I also have a friend who's child tested neg. for tTG through enterolab and tested positive months later in his blood after being gluten-free!! So there goes their theory that the diagnose people in the early stages.

      I urge people to just save their money and try the diet if that's what they're going to do anyway.
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