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LundqvistSaves

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About LundqvistSaves

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  1. Hello! After a year of constant sickness and stumping 4 gastroenterolists, I was finally diagnosed with a rare parasite. Needless to say, my GI is all messed up and I am slowly healing. I also think I may be gluten intolerant (was tested for celiac and gluten allergy, but came back negative). One symptom I noticed when I wasn't yet strict on my gluten-free diet were these random welts that I would discover every other week. It seemed like only one would form and then dissolve, then maybe I'd get another one two weeks later. They were incredibly itchy, and honestly I had always thought it was just a spider bite. I went back on a gluten-free diet and they seemed to go away. I thought maybe it was due to gluten, but i'd eat it occasionally (a slice of pizza maybe once or twice a week) and it wouldn't always happen. I've been totally gluten-free for 2-3 months now. Now on Tuesday, I broke out on the left side of my neck, left forearm and left finger in a whole bunch together -- probably 12 total (most I've had at once was 2). I went to the doctor and he diagnosed it as shingles (because they are all just on one side of my body). He said he was "95% sure", despite the fact that I have no pain at all, no sick feelings, and absolutely no blistering which are all symptoms of shingles. The only thing I can think of was I had toasted some bread in a toaster oven the day before the bumps broke out. There is the possibility of cross contamination, but just a few days earlier than that I had done the exact same thing and had no problems at all. I was wondering if anyone has experienced these symptoms. I added photos, I'm sorry that they are so gross. I was hoping someone would recognize the same type of rash. I honestly don't think it's shingles. Could this be gluten? If so, why does it only happen sometimes, and why would it happen so badly this time if it was just a little cross contamination? Thank You! http://i3.photobucket.com/albums/y90/jasonstangelo/photo.jpg http://i3.photobucket.com/albums/y90/jasonstangelo/photo-2.jpg
  2. Thanks for responding! I've never gotten hives before so I'm not sure if this could be them. I have taken Benadryl for the last two days and it doesn't seem to help much, but it sure does knock me out lol. It's Day Three and they are still so itchy. And yes, definitely no more shared toasters!
  3. Hello! After a year of constant sickness and stumping 4 gastroenterolists, I was finally diagnosed with a rare parasite. Needless to say, my GI is all messed up and I am slowly healing. Upon my many hours of trying to find a diagnosis online (since I seemed to lose hope in modern medicine), eventually it was suggested that I may be gluten intolerant. One symptom I noticed when I wasn't yet strict on my gluten-free diet were these random welts that I would discover every other week. It seemed like only one would form and then dissolve, then maybe I'd get another one two weeks later. They were incredibly itchy, and honestly I had always thought it was just a spider bite. I went back on a gluten-free diet and they seemed to go away. I thought maybe it was due to gluten, but i'd eat gluten occasionally and it wouldn't happen sometimes. I've been totally gluten-free for 2 months now. Now on Tuesday, I broke out on the left side of my neck, left forearm and left finger in a whole bunch together -- probably 12-15 total (most I've had at once was 2). I went to the doctor and he seemed confused and diagnosed it as shingles (because they are all just on one side of my body). He said he was "95% sure", despite the fact that I have no pain at all, no sick feelings, and absolutely no blistering which are all symptoms of shingles. The only thing I can think of was I had toasted some bread in a toaster oven the day before the bumps broke out. There is a possibility of cross contamination, but just a few days earlier than that I had done the exact same thing and had no problems at all. I was wondering if anyone has experienced these symptoms. I added photos, I'm sorry that they are so gross. I was hoping someone would recognize the same type of rash. I honestly don't think it's shingles, but the doctor was confident that it was since it's only on one side of my body. Any suggestions? Thank You! http://i3.photobucket.com/albums/y90/jasonstangelo/photo.jpg http://i3.photobucket.com/albums/y90/jasonstangelo/photo-2.jpg Look familiar to anyone?
  4. First and foremost, I want to thank anyone who is reading this that has read or replied to my previous posts. It really means a lot to have such great advice. I've been sick for about a year (2 gastros stumped, can't find problems), not DXed, but been gluten free for almost three weeks now, yet symptoms still exist. The most annoying symptom I experience is really strange and every doctor doesn't understand it. Basically, once I have a bowel movement, I feel 10x worse. Recently for the past 2 or 3 days, I feel pretty good for most of the day. Everything will be fine, and then I'll have a bowel movement, and 5 minutes afterwards I feel much worse. I bloat up, have some abdominal pain -- mostly upper--, and feel like I am totally full of trapped gas (but no matter what I do I can't pass it, and OTC meds don't work for it). I am not constipated as I have 1-2 BMs a day. It has been like the for the past 8 months and sometimes it'll subside after 3-5 hours, or if I go to sleep sometimes. It hurts and keeps me from doing much of anything. I'm praying that this is a symptom of celiac or gluten so I can finally understand it and treat it. If anyone has or has had this symptom, PLEASE reply. Thank you.
  5. Thanks for your reply. I've only been gluten free for two and a half weeks, so I'm not certain if that's enough time for a gluten-free diet alone to cause any B12 deficiencies. Also taking a gluten-free daily multivitamin. Was hoping for the possibility that a long-time misdiagnosis of a gluten allergy or intolerance would be the culprit, thus my other symptoms would finally have an explanation as well. Thanks for your help!
  6. Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?
  7. Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?
  8. I don't, it just seems to be some numbness in my hands now and again. No pain or anything like that.
  9. Hi all- Been sick for a year now, gained 30lbs, heatburn, bloating 24/7, the works. Despite stumping two well-regarded gastros and enduring all procedures, they still can't figure me out. So I started going strictly gluten free 2 weeks ago. A week in, I noticed a weird rash on my finger. Eventually went away the very next day. My stomach pain is still constant, everyday bloating and upper GI pain. Taking nexium right now. But the weirdest thing was I noticed my hands were a little numb. It started with my right pinky and ring finger getting numb and tingly on memorial day, since then it comes back from time to time, on my left hand now also. This has all never happened to me before (25 year old male in otherwise good health). I looked it up on the forum and it seems like this is a common symptom for celiacs, but as I read more it looks like people were saying it was a reaction to a lack of nutrients (like B12) simply from a gluten free diet. I'm confused -- is it a sign that I am gluten intolerant, or is it just my body reacting from the diet that I'm on regardless of if I am a celiac or not? If anything, I was hoping it would be an indicator that I do, in fact, have some gluten allergy. It's also weird how random my symptoms come on, including the numbness. One would think they flare up because I'm ingesting gluten, but I'm 99% certain that I am absolutely not taking in any gluten from anywhere. I'm on my third week, and my stomach is still a painful mess, but I'm hoping this works. The doctor said I can do a celiac sprue blood test, but doing that requires me to abandon all my progress already. Anyone with any experience? Thanks.
  10. Hello - I'm new and not diagnosed. I've been sick for almost a year now and blood work, MRIs, endiscopy and colonoscopy don't explain any reason why. All came back negative and am getting the "he's crazy" treatment from doctors. I just turned 26. Doctor took a biopsy last month but have yet to get results. I've only been gluten free for about a week but honestly feel worse so far. Symptoms are heartburn, extreme bloating, and a massive pain in my upper stomach/below my ribs that goes down to about 2 inches above my belly button. Usually an all-around stomach ache and always fatigued. Always a stomach ache. The bloat is massive. The thing that I find odd is that my symptoms flare up randomly. At least once a day, but sometimes I can go 5 hours feeling fine, then I'll have a bowel movement or maybe just do nothing at all and then suddenly all my symptoms will flare up terribly. Sometimes I'll eat and then suddenly feel 10x worse too - even when I eat gluten free. It seems that I would feel worse like this if I were to eat something contaminated with gluten, but why even when I eat gluten free? Is that normal for the first month or so? I know it hasn't been long that I've been gluten free, but is it normal to just have your symptoms flare up randomly if you've been feeling ok for a few hours? Seems strange, or like something that would happen if you only consume gluten. Thank you all for listening.
  11. Thanks again, everyone. I have one more question. Sometimes I wake up feeling well, and go through most of the day feeling okay, then at some point during the day, my symptoms will flare up for no reason. Sometimes it seems to happen after a bowel movement. For example, I'll be fine all day, still continue my gluten-free diet, then maybe have a BM later in the day and suddenly afterwards I might feel sick again - have some heartburn, pain in my upper stomach, or some bloating. Is it normal for symptoms to just turn on, and sometimes off, and on again even if you're eating gluten free? I feel like that would only happen only if I ingested gluten... which I'm sure I haven't. Just seems strange to me, but I'm hoping this is a common thing. Would love to hear your opinion. Thanks a lot.
  12. Hi Birdie, thanks for responding, I really appreciate it so much. I'm sorry, but what does NCGS stand for? Some kind of gluten sensitivity? Also, after 4 months you said you felt better. Were your symptoms almost fully gone, and you felt back to normal? Or did it just hurt less.. and you never fully feel well, so you just "manage" it.. ? Thanks again.
  13. Thank you Tom and Birdie for posting your thoughts. It gets so hard trying to talk to family or my girlfriend about this anymore. Sometimes I just need to complain/vent because it's in my head all day, everyday, and I need to get it out but they don't understand. I feel like I'm going crazy. I've worked so hard and landed the job of my dreams and now I'm in pain everyday. I can't believe it will be a year next month with this. I feel so hopeless. I just lay in bed all day after work and all weekend because my stomach always hurts. I am trying to be strict with gluten free. I don't mind it - I just want it to work. Unfortunately, I felt much worse today than I did over the weekend. Tom, I've also been dairy free with the exception of a slice of organic provolone cheese, but I know cheese is usually pretty low in lactose. As for soy, I haven't had much soy as far as I know, I typically don't like soy products. Another one of my symptoms is really strange. Since December, every few weeks I get these red bumps. It's usually one or two at a time, and they look exactly like mosquito bites or a spider bite. I know it can't be because I've washed my bedding and curtains, swept, dusted, and still I get one or two every other week. We know it can't be a bug bite, because my girlfriend sleeps in the same bed with me and she never gets it. It's not a rash or anything like that. I am so lost. Any chance anyone has had something similar? Again, thank you guys for listening and responding.
  14. Hello everyone, Please forgive me if this isn't the proper place to post, but I'm a 26 y/o male and I've been sick for the past year with no help from three different gastroenterologists. I think it might be gluten, but my test came back negative for celiac's, so perhaps just an intolerance? My main symptoms are a lot of gas, GERD, overall crappiness, fatigue, lack of sex drive, depression, and mostly a cramping pain in my upper stomach right below my ribs. This seems to be the most prevalent, along with a crazy bloating. I've been taking Nexium which has helped with heartburn, but that's about it. I also started taking this probiotic called VSL#3. It's really strong, take a look at it if you aren't familiar. I can't tell much yet from it since it's only been a week. I've also been unresponsive to any IBS meds my doctors have tried on me, so that leads me to think maybe it is gluten causing the trouble. I went gluten-free back in October for about a month, but I couldn't tell if I was feeling any different. Unbeknownst to me, I was also consuming potatoes/french fries once a week unaware that they could contain gluten, as well. So, I'm really not sure what else to do. I've decided to go gluten-free again, and started about 4 days ago. I'm looking to feeling better and I hope going gluten-free helps. It's put a lot of strain on my relationship. Some days I just don't know what to do anymore. I miss having fun with friends, feeling well enough to work out, and just feeling good about myself. I've also gained 20 pounds. Has anyone else had any similar situations? I hope maybe I can get better within a month.. Thanks a lot, everyone.
  15. Hello everyone, Please forgive me if this isn't the proper place to post, but I'm a 26 y/o male and I've been sick for the past year with no help from three different gastroenterologists. I think it might be gluten, but my test came back negative for celiac's, so perhaps just an intolerance? My main symptoms are a lot of gas, GERD, overall crappiness, fatigue, lack of sex drive, depression, and mostly a cramping pain in my upper stomach right below my ribs. This seems to be the most prevalent, along with a crazy bloating. I've been taking Nexium which has helped with heartburn, but that's about it. I also started taking this probiotic called VSL#3. It's really strong, take a look at it if you aren't familiar. I can't tell much yet from it since it's only been a week. I've also been unresponsive to any IBS meds my doctors have tried on me, so that leads me to think maybe it is gluten causing the trouble. I went gluten-free back in October for about a month, but I couldn't tell if I was feeling any different. Unbeknownst to me, I was also consuming potatoes/french fries once a week unaware that they could contain gluten, as well. So, I'm really not sure what else to do. I've decided to go gluten-free again, and started about 4 days ago. I'm looking to feeling better and I hope going gluten-free helps. It's put a lot of strain on my relationship. Some days I just don't know what to do anymore. I miss having fun with friends, feeling well enough to work out, and just feeling good about myself. I've also gained 20 pounds. Has anyone else had any similar situations? I hope maybe I can get better within a month.. Thanks a lot, everyone.