Hi I'm new here so here's my brief history: I'm a 47 yr old man who apparently looks and tests as quite fit and healthy. The truth is, I often ache all over and am always tired. About 10 years ago I started getting fairly chronic tendinitis, which after limited help from doctors I started to self-treat 2 yrs ago with a relatively high dose of magnesium. I went from 13 inflamed areas on my body down to 2 within about 6 months.
I've had chronic GERD for over 5yrs. Currently it's under control with pantaprazole, but I've had all imagineable tests done and doctors can find no physical reason for it.
When both of these symptoms cropped up, I found that they both fit under the umbrella of celiac, so I had myself tested. My doctor said I don't look like someone with celiac (?) but reluctantly tested me anyway. It was negative and I forgot about it for a while. As a side note, the same doctor diagnosed me with fibromyalgia - didn't tell me, but was happy to inform my insurance company when I went to get life insurance. Thanks Doc. Almost an extra $80 a month for insurance.
About 2 yrs ago I noticed neck pains when my kids would climb on me. My doctor sent me to an ENT with enlarged lymph nodes in my neck. At this point again, I came back to the possibility of celiac, so Jan 1st (on my own) decided to try going gluten-free. I got a book by Danna Korn to help me with my dietary questions. In it I found that if you've ever had Dermatitis Herpetiformis, you have celiac. Guess what I had about 30yrs ago... that's right, I had DH when I was a teenager. My doctor at the time spotted it instantly. A nasty, itchy rash on both knees. He told me I had a gluten intolerance and to stop eating wheat (he never said forever), gave me a cream and sent me on my way. It was a long time ago, but I seem to remember it going away fairly quickly. And then I resumed eating wheat. Now I've been gluten-free since January 1st.
Anyway, I just finished my 3rd neck ultrasound and for the first time since I noticed it, the nodes haven't gotten bigger. I'm having a needle biopsy done this Wednesday because the ENT is still concerned - as am I.
I also asked my ENT if he thought there could be any connection between the lymph nodes and gluten, to which he replied: "they are learning more and more about that every day" and stuck his face back into his laptop. Anyway, I'd like to be treated by "they".
As much as my well intentioned, sponsored by big pharma doctors try, I don't think they have a clue about these particular autoimmune diseases. All this to say, does anyone know a good doctor in the Tampa Florida area. I'm actually a bit east, over in Lithia, but more than willing to travel for the sake of my health.