Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts


Advanced Members
  • Content count

  • Joined

  • Last visited

  • Days Won


PersianCeliac last won the day on February 27 2013

PersianCeliac had the most liked content!

Community Reputation

2 Neutral


About PersianCeliac

  • Rank
    Community Member
  • Birthday

Profile Information

  • Gender
  1. My mom had her second biopsy after over 2 years gluten free. The biopsy says the villi is long on the periphery and there is no intraepithelial infiltrate. I guess this means her villi is normal now ? However, it says there is mild inflammation in lamina propria/duodenum. Is it normal to still have this sign of celiac on spite of norm villi now and over 2 years gluten free ? Anyone with similar results ? Her initial biopsy showed subtotal atrophy.
  2. Hello Everyone, As i mentioned before, my mom and aunt were diagnosed with celiac 2 months apart ! My aunt had her second endoscopy after 1 year gluten free and it shower NORMAL VILLI ! from marsh 3c. My mom had ttg number over 800 ! And after 9 months gluten free it dropped to 8 ! Now it has been over 2 years since she went gluten free and wedneaday she is having endoscopy with biopsy to check if she has healed because she had silent celiac no symptoms but she has high risk celiac genes DQ2 and DQ2.2. Fingers crossed ! Has anyone had a second biopsy and how soon after ? Mom had marsh 3b on first biopsy.
  3. Thank you for your response. You are absolutely right hs crp is a marker for risk of heart disease as well in addition to being influenced by inflammation. So my moms elevation could be heart or inflammation related. If you dont mind, what were your numbers on the test ?
  4. Hello, My mom has been gluten free for 2 years and 3 months now, her follow up antibody test returned to normal after 9 months of diagnosis and she has a follow up endoscopy scheduled in two months to check if her intestine has healed. My mom had silent celiac so its difficult to tell if she has healed through her symptoms. She recently has a routine blood work and her hs crp (high sensitivity c reactive protein) was 3.1. A couple of months ago it was 1.7. Has anyone had a hs crp test after celiac diagnosis ? The increase in number i have read maybe caused by inflammation anywhere in the body. I am worried that it is from her intestine and perhaps she didnt heal yet.
  5. Hi Everyone, My mom (49 years old) was diagnosed with celiac 1 year and 4 months ago, she didnt have symptoms but since my aunt was diagnosed she had the test too and turned out she had celiac and endoscopy showed marsh 3b. She has been on a gluten free diet since then. Her repeat blood work 9 months after GFD showed normal results but only ttg was borderline (down from >800 to 10) . I was wondering when she should go for a repeat endoscopy to check her intestines for healing as i have read so many people go after one year and are still not completely healed since it takes time. Has anyone here gone for a repeat endoscopy? and if so, after how long and what were your results ? From what i have read i feel she shouldnt go for a repeat endoscopy unless atleast after 2 years especially because she had extensive damage and she has the highest risk genes DQ2.5 AND DQ2.2
  6. hi everyone, i was wondering if anyone else had their c reactive peotein (CRP) measured at diagnosis and after going gluten free. I never had mine measured before diagnosis but after almost a year gluten free my crp is 1.7 on a normal reference of 0-3 and my celiac antibodies are all normal now after being waaaay off the chart. I wonder if the crp number is good or what so please share your experience.
  7. thank you for the reply. my aunt had diarrhea all the time and after going gluten free for only weeks thw diarrhea went away and sje started gaining weight which she was never able to do. her follow up blood work is all normal
  8. my aunt had her follow up endoscopy recently after one year gluten free and a biopsy sample was taken she was diagnosed witj celiac after having symptoms for 16 years and her initial endoscopy showed scalloping in all three parts of duodenum and her biopsy showed severe atrophy marsh 3C. now after 1 year gluten free strictly her endoscopy shows first part of duodenum is now normal but second and third parts still still show scalloping which is a sign of villous atrophy we are now waotong for biopsy results. i was wondering if anyone had a similar experience or how long it took for ypur intestine to heal ? i am worried that she still has damage even on endoscopy after one year gluten-free.
  9. You dont have double copies of DQ2 you have DQ2 and DQ8 which also means you could be very sensitive since you have both celiac genes.
  10. Yes both were diagnosed around 9 months ago. My aunt who is 47 years old is very very thin and never gains weight and had a problem with chronic diarrhea for 16 years ! And lots of gas build up and GI symptoms until this doc sent her for celiac panel. Her numbers were off the chart ! And her biopsy showed total atrophy. I read about the disease and found it its genetic so decided to test my mom. My mom had no symptoms but her blood work came back waaaay off the chart ! It was a shock. Her bippsy showed subtotal atrophy. When were you diagnosed ?
  11. Which DQ2 genes do you have double DQ2.5 or DQ2.5 and DQ2.2 ?
  12. Yiu can request a gene test for HLA-DQ genes associated with celiac. If you have the gene there is a 50/50 chance that you kids have it too since they take one copy from each parent and each parent has two copies of HLA-DQ genes. If your kids test positive on the gene it doesnt mea they have celiac or thay they would definitely get celiac it just means that they are at a greater risk to get it than someone who doesnt have these genes especially if hey have double copies of celiac genes like my mom and aunt.
  13. Hii Everyone, does anyone here have double copies of DQ2 ? And if so would you say your extra sensitive go gluten like some studies suggest ?
  14. Seriously how do these people become doctors !! Where do they get their certificates from exactly stupid university ??!
  15. Hii Everyone, my mother 49 years old was diagnosed with celiac disease 9 months ago with no symptoms but since her sister was diagnosed we decided to check her too. Her results were off the chart !! This was her blood work 9 months ago: Gliadin Antibody IgG >800 (normal < 12 U/ml) Gliadin Antibody IgA >800 (normal < 12 U/ml) tTG IgA >800 (normal < 8 AU/ml) Endomysial Antibody IgA POSITIVE Her genetic test was DQ2.5 and DQ2.2 double genes ! Her endoscopy showed subtotal villous atrophy Marsh 3B. Since my mom doesnt know much about such diseases and doesnt use the internet and so i became her personal doctor lol ! i took her to take all these tests and was educating her about GFD and buying her Gluten Free things whenever possible i was so strict that she would send me a picture of the product when she was traveling just for me to check that the ingredients didnt include gluten lol. I am her eldest 25 year old daughter and i love her soo much and her health is a priority to me. The problem is we live in a gulf country called Bahrain with complete ignorance about celiac they would actually laugh at her if she said she cant eat bread ! so it was so difficult for me to make sure she avoids gluten and realizes how important this is especially because she is double DQ2 and we rarely find gluten free items here ! Now after 9 months i decided to take her for a follow up test to see how well she was doing this is the result: Gliadin Antibody IgG 9.6 (normal < 12 U/ml) Gliadin Antibody IgA 3.5 (normal < 12 U/ml) tTG IgA 8 (normal < 8 AU/ml) Endomysial Antibody IgA NEGATIVE I am so happy for her and soo proud of her ! i just wanted to post this to encourage all you celiacs out there and share this good news with you. God bless you all and i wish everyone and speedy recovery and fabulous results. Fatima R