Sorry i took a break from the forum for a bit...
My TSH was 2.28 and my Free T4 was .91
I spent a few days compiling all of my symptoms, organizing the patterns of highs and lows and went to the doc armed with my own "research". I figured that there had to be a reason for all of the things happening to me. They weren't just digestive but arthritic too and then there were the heart palps. He's running an ANA, RA, and Lupus panel as well as checking SED rate and another CBC.
Anyone else have low triglycerides? The clinic always bragged on how exceptionally low my triglyceride count is..."that of a triathlete",..turns out that some research has found low triglycerides can be a marker for autoimmune diseases. Mine runs from the 40's to the 60's. Who would've thought all this time I wasn't a secret Olympic athlete?
I've read the posts of celiacs and other gluten sensitive souls and always thought everyone had it so much worse than I could imagine. I kind of had a "there but for the grace of God" attitude about the multitude of food issues many celiacs face. But I've come to realize that once you have some serious GI issues they don't just go away...sometimes they get worse!
I've been Gluten Free faithfully for quite some time and I am now finding other reactions and beginning a food diary/elimination diet to track it. So far the dairy sensitivity has worsened and I have been experiencing a reaction to soy too. I've also been having heart palpitations and shortness of breath (saw a cardiologist who assured me I was fine other than trivial valve regurgitation). Oh, and diverticulitis issues too, I'm beginning to believe all of my issues are just food related.
I have a new mantra...
I AM NOT CRAZY, OR DEPRESSED, OR A HYPOCHONDRIAC, I JUST HAVE FOOD ISSUES!
I wasn't wondering so I could test again, I had an "ah ha" moment and was looking for clarification. My IgA test results were in the low normal range and my tests have all been negative but I know I react to gluten and have improved bloodwork as a result of gluten-free diet.
I'm not certain that the cyst type acne is DH but I suspect it is. I have scarring from previous bumps and they don't have any pigmentation. The other blister type (herpes looking) bumps are easy to identify as different from other skin problems, but these are similar to acne. I thought it was unusual and suspect that they all popped out at once. Of course I looked for a cause...
Can low (still within normal) IgA antibodies affect blood test and skin biopsies?
On another note, I've been faithful to gluten-free diet and haven't had any noticeable GI symptoms that would indicate accidental glutening, but I had a breakout of DH on my skin on my arm and a return of what I always thought of as acne on my neck. It's sort of like a cyst and similar to the ones on my bottom. The only thing different in my diet is an increase in pickles/pickle juice, and I recently gave blood. Iodine? I've never noticed a connection for me.
I still have tons of questions about gluten intolerance.
I've been gluten-free for several months with a few accidental glutenings. I feel much better than I did before but the accidental ingestions are worse than ever, though farther in between. One of the pluses is the ability to donate blood because now my iron is high enough and another is excellent bloodwork on my check ups. My triglycerides are that of an athlete (according my doc) and my blood pressure is better than pre-gluten-free. Still not proof of a gluten intolerance but a definite improvement over years of results.
BTW-the last glutening caused serious pain on day one and two with lesser symptoms for about 7 days. I am far more cautious about gluten than I was before.
Thanks for your replies. I have been diagnosed with IBS, but i think it was stress. It resolved itself rather quickly. If it were gluten related it typically lasts longer than this one did. I think the damage to the bowel makes it so super sensitive that every little thing creates a big problem!
Has anyone experienced symptoms of a glutening during times of stress without actually ingesting gluten? I feel like I've been glutened, but I have been very careful. I am under a ton of stress and I just can't tell.
I recommend you make your own. I make a version of Mei Fun with chicken or pork cut into thin strips and cooked in a gluten-free chicken broth, toss in some gluten-free soy sauce, add cabbage, carrots, portobello mushrooms, sliced thin. Soak rice noodles in hot water while cooking. Add shrimp last, season with onion and garlic powders. Drain noodles and toss into mixture... Serve with lemon slices and soy sauce. Yummy!
This has happened several times in the last ten years or so, but my scalp starts this painful, burning, tingling pain. Then come the blisters! Ugly and right in plain sight. I always know its coming, but this is the first time I have been gluten free for a decent length of time, that they have made an appearance. I was wondering if I have this to look forward to even after trying to be faithfully gluten-free.
After my recent negative biopsies on my arm, I am hesitant to see the dermatologist for fear they will take another needless chunk of skin. Only to have another negative result and this time right on my face!
Any chance this might be a different autoimmune disease with similar symptoms? I know I respond to a gluten-free diet in regard to my GI symptoms but maybe there is another explanation.
I have the same problem with a bloating reaction and I just "know" that I must've gotten glutened somehow. Did I breathe it in? Did the treat that I fed the dog contain gluten and I forgot to wash my hand before eating? Did I get some gluten dust on me (we live on a farm and my husband and kids often come in with cattle feed dust on them and their clothes).
Or maybe it's something else entirely...some unknown disease...Some common disease...No disease at all...Maybe it's in my head...
This has got to be the most infuriating part of this disease. Even when you are watching everything you do, you still have some random symptom pop up!
They look like mine. I'm not a doctor and I haven't tested positive yet. But the blister in the top picture looks exactly like mine do. And if you're like me they crater after the blister pops and look like something on the surface of the moon. Good luck with the doctors!