LaceyBurke replied to LaceyBurke's topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms'Am I understanding that at 18 you have not started mmenstruating yet? This is very common in celiac as well, and is a strong indicator of needing to be on the diet also.' Sorry I might have worded my post a bit wrong, yes I have started menstruating but the doctor told me this was probably the reason I had no symptoms once I was a teenager, because I had started menstruation. I knew as soon as she said there was no blood test for it that I wasn't going to get any good information from her. Thank you for your replies, I will be back on my Gluten Free diet first thing tomorow, now its just the challenge of finding any gluten free products here!
LaceyBurke posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi, not sure if this is in the right place but I was diagnosed with Celiac disease in the UK at 18 months old with a biopsy and told that I might grow out of it, he made me do a gluten challenge every couple of years to test if I still had it and always within 24 hours I had sickness and diarrhoea. When I was about 16 I did the challenge and had no reaction to the gluten and so the doctor told me I'd grown out of it, did no further tests and sent me off telling me I could eat gluten again. I'm now 21 and have recently had a lot of bloating and which looking up possible causes I came across celiac disease again, where I've read everywhere that they no longer say you can grow out of it and once you have it you have it for life. I now live in Bulgaria and went to a GI doctor today and asked for a blood test, she told me that there is no blood test for Celiac disease and that if I only have bloating I am not a celiac, and girls usually grow out of it when they start menstruation (I know this is all incorrect) so now I do not know what to do as clearly Bulgaria is still way behind, Is it 100% impossible to grow out of celiac disease? What are the chances that the biopsy was wrong in 1993 and should I still be eating Gluten Free, even though the only thing I could attribute to celiac disease is bloating?