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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ker0pi

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    1. ker0pi added a post in a topic The Honeymoon Is Over   

      Thank you for the tips. I'm Episcopalian, not Catholic, often referred to as Catholic Lite, we do have communion every Sunday. I spoke with my priest today and the wafers she got for me were rice flour no gluten, Episcopalian's don't have that no wheat means it's not communion issue I've heard Catholics say. I skipped the wine again and we talked about it. I'm going to just keep skipping for now and in a few months we'll talk about getting my own cup as you mentioned. I'm going to check out that book you sited.
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    2. ker0pi added a post in a topic The Honeymoon Is Over   

      This theme keeps coming up for me, I kept a sleep journal during the worst parts to be more clear with my doctor about the insomnia and what specifically was causing me to wake up 5-6 times a night and which supplements/meds seemed to help. I have been thinking the same thing, no gluten, piece of cake. We already eat an organic whole foods diet and my local Co-Op is the most Gluten Free friendly place to shop with every gluten free item labeled on the shelf with a gluten free tag and every product thoroughly researched before it receives that label. And if there is a question they will research it right there at customer service and get you your answer. I have gone into this already spoiled by the ease of cutting out the gluten, I'm afraid it could be something else. That would be more difficult and involve more research and leg work on my part *sigh*. I'm not normally a lazy person but yeah, this whole label reading and watching absolutely everything you eat or touch, like the shared break room kitchen at work that causes me to nearly hyperventilate when people fix there gluten food right there is draining. I have always brought leftovers from home and simply dump my food on a plate, cover and then microwave, I don't fix anything on the counters. I did skip the wine last Sunday and have felt really good all week. But a food diary to identify other possible allergies is an excellent suggestion, now I need to make myself do it.
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    3. ker0pi added a post in a topic The Olympics   

      One of the swimmers, Dana Vollmer is Gluten Intolerant! They did a little news blurb about it after she won her gold medal.

      This is the video link to the CNN story. I thought it was really cool. Gives me hope I might be able to run again some day.
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    4. ker0pi added a post in a topic The Honeymoon Is Over   

      We were at the beach so I had my hubby pour water over my hands so I could clean them as best I could. When we got home I took my son straight to the shower for de-sanding and I do not recall any hugs or kisses before the shower. My hubby gave me "a talking to" after I handed out the sandwiches. He did the first round and was busy when I got asked for seconds.

      It is entirely possible that is part of why I feel crummy today.
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    5. ker0pi added a post in a topic The Honeymoon Is Over   

      I do get served first after my priest and the acolyte, my priest has been wonderful, her dear friend and fellow priest is a Celiac so she immediately spoke to her about how to handle my communion, there's a laminate step by step instruction on how to avoid cc with my wafers posted in the Sacristy. It's the ceremony part where she breaks the wafer, I'm concerned crumbs end up in the wine and I dip instead of drink to "minimize" potential exposure. I'm still going to pass next week and see if I feel better on Sundays, it's also my errand/shopping day and I do the most physically demanding things that day. I may just be wearing myself out on Sundays and feel oogggyy come Monday.
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    6. ker0pi added a post in a topic The Honeymoon Is Over   

      It does help. Everything I have read on this forum that leaves me thinking, "It's not just me!" Makes me feel a little better. I keep telling myself not to mark of days but weeks and then stretch it to months. I don't think I got CC, but I plan on refraining from the wine next week at communion, I get my own special gluten-free wafers. I had a moments pause when I ate some apple slices during coffee hour, there was nothing else on the table that had been cut with a knife so I figured I was safe and we are fully gluten-free at home. The only question mark would be Saturday, my son's birthday party, my hubby made regular bread PB&J's for the kids and then I handed them out. I didn't eat anything after touching the sandwiches and washed my hands as soon as we got home. Everything else at the party was gluten-free. I will keep pondering this.

      Good luck to you too, may we both find our honeymoon phase again.
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    7. ker0pi added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      The Honeymoon Is Over
      I have determined the HONEYMOON is over. I am approaching 5 weeks gluten free and the first 4 were blissful. I have enjoyed watching all my crippling pain vanish and my bm's become regular for the first time in my life. I had oddles of energy and just couldn't slow myself down. Well now, I feel a bit crummy. It is no where near the crippling pain and unbearable lethargy I was feeling, not by a long stretch. But now, now I have awful painful gas, my stomach just feels soar. I wake up tired, not OH MY GOD I CAN'T FACE THE DAY tired, but tired. My tummy is not happy about some foods, all gluten-free of course. I feel a lot like I did about 7 years ago, vague symptoms of feeling not so hot most days, I would push threw and try not to let it slow me down. Well about 4 1/2 years ago I GOT slowed down by this and was certain I was dying of some obscure incurable disease, well that was sort of right, only I'm not dying and though incurable it is treatable. Will I get my zestfull honeymoon phase back? Am I having withdrawal or is this my new norm? Sort of crappy but still able to live, unlike the past 4 1/2 years. Or am I insane to think I would feel fabulous after just a month. Oh, excuse my rambling, my biggest problem, impatience. Just needed to vent a bit. Was is very up and down for you in the beginning too?
      • 14 replies
    8. ker0pi added a post in a topic Anger, Quick Temper, Depression   

      Wow, I'm amazed at how many threads I read where I'm left thinking "It's not just ME."

      Irrational anger has departed along with my gluten habit and I could not be more relieved.
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    9. ker0pi added a post in a topic Cookbooks   

      My favorites so far have been The Gloriously Gluten-Free Cookbook: Spicing Up Life with Italian, Asian, and Mexican Recipes by Vanessa Maltin I have found these to be the tastiest and simplest recipes so far, very easy to adapt and it's about 10 to 12 bucks so not to spendy and my really good friend sent me The Gluten-Free Gourmet: Living Well without Wheat, Revised Edition by Bette Hagman bit more complex but absolutely everything I have made from it is amazing and leaves me feeling like I'm not missing out on anything. Good luck.
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    10. ker0pi added a post in a topic The What's For Dinner Tonight Chat   

      Tonight I made my favorite "Oh my goodness it's almost 5 what am I going to make tonight?" dinner. Something I thought would never again be my old stand by. Yummy grilled cheese sandwiches with tomatoes, fresh tossed salad and yummy acorn squash mango soup. Just cooked it up with some Rudi's gluten-free bread fresh mozzarella with roma tomato slices and basil leaves and the yummy acorn squash mango soup I have bought for years is gluten free!
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    11. ker0pi added a post in a topic What Are You Growing This Year?   

      We don't have a yard, but for mother's day my hubby gave me wine barrel planters and soil so my son and I planted a small vegetable garden which includes Radishes, Green Beans and Cherry Tomatoes. We already harvested all the radishes, I have never had sweet radishes before they were amazing and we even cooked up the radish greens and put them into the re-fried beans for our burritos and chopped some for salad. We are having the coldest summer on record here, doesn't even crack sixty and so the radishes flourished and the green beans are finally starting to take off. Our tomatoes are hanging in there but growing very, very slow they're about 3 inches tall right now.
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    12. ker0pi added a post in a topic Questions From A Newbie   


      I am a "brain fog" sufferer. It was my first symptom, I thought my pregnancy "baby brain" just never went away. I was so forgetful and that was something I had never experienced in my life, I work with numbers and could quote any figure from a financial statement I had just looked over, that went away. I kept blowing off my husbands concerns, telling him it was completely normal to be a scatter brain after having a baby. Well my baby is turning 6 next week and I'm still scatter brained, much improved after going gluten-free 4 weeks ago. I had some other joint pain and balance issues that went away as soon as I went gluten-free. I tested negative in my Celiac Panel but went gluten-free anyway and for me, that was most definitely the problem. Now that I've been gluten-free for 4 weeks I have really reflected and realized I had plenty of other symptoms over the years that point to Gluten Intolerance or Celiac. I decided not to push for a biopsy myself because I have a really horrible reaction to general anesthesia. The improvement I have had after just 4 weeks is enough for me to stay strict to this diet.
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    13. ker0pi added a post in a topic When Did Your Neuro Symptoms Subside   

      I am very lucky, one of my priest's dear friends who is also a priest is a Celiac and when I went to my priest about my diagnosis she consulted her friend about how to handle communion with regard to me. I get special rice wafers and she puts it in a small dish for me before the service begins to avoid CC then I take it out myself when she presents it to me. I keep going back and forth on the wine though. So far it hasn't appeared to give me any CC glutening, I get served first after my priest and the acolyte to reduce any chances, but I don't yet know what my reaction will be when I get accidental glutening. I might gluten myself after 3 or 4 months just so I know it when it happens.
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    14. ker0pi added a post in a topic When Did Your Neuro Symptoms Subside   

      I am so relieved that I'm not the only one who does that!
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    15. ker0pi added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      When Did Your Neuro Symptoms Subside

      I've been gluten-free for 4 weeks now and have seen a ton of my physical symptoms subside or reduce but my neuro symptoms, mainly forgetfulness, saying the wrong words and drifting off mid sentence or thought, like I just did trying to come up with the third symptom I just listed have not resolved. I don't walk into walls or door jams any more and my balance is greatly improved.

      Did you have these types of symptoms? How long did it take before you saw a huge improvement in them?
      • 5 replies

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