This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Sorry, I just re-read you question and missed the larabar part. From my experience, Larabars are good, but not particularly while running. The nuts are high in fat (fat is slow to digest), which makes it hard on the digestive system....and I'm pretty sure you don't want to be in the line-up a the port-a-potty. When I do half marathons, I stick to water and gels - easy to digest and supplies a boost of carbohydrates. What ever you try, make sure you give it a go before the actual race or event.
H : )
Check out Hammer Nutrition products:
I use their gels for long distance running and triathlons (6-7 hr events) in combination with other food and supplements. I have to admit that they don't taste the greatest, but it depends how desparate you are to find a product that gives you the boost you need (and feel confident you truly have a gluten-free product). You can also mix the flavors to make things a little more exciting. : )
Best of luck,
Heather : )
For all those who live in Canada, there is a new regulation for food labelling. At the end of this year, it will be mandatory for all Canadian products to indicate potential allergens on the labels. This is definitely a step in the right direction (and it will make our lives a lot easier).
Check it out at: http://www.theglobeandmail.com:80/servlet/...y/National/home
L-Glutamine is an essential amino acid. It is not derived from any gluten containing food. Therefore, it is ok for Celiacs to use glutamine supplementation - it is particularily good as a fuel for the cells of the intestinal lining (good for Celiac recovery) and also good for muscle repair (from weight lifting/working out).
However, it is important to ensure that the company that supplies it is gluten free. It is possible for cross-contamination to occur if they produce gluten-containing supplements in the the same production line as the glutamine. I would write to or call the company to ensure there is no risk of cc.
I have used glutamine in the past and got really good results from it.
Heather : )
I don't know if I can answer all your questions, but I can give you my thoughts, and how I pulled through the worst times.
I was diagnosed when I was ~20 years old, and was an avid runner at the time. It took me a good few years to feel "normal" again. Some days I was too bloated, in pain, or too weak to think about running, so those days I would not go out. I would just listen to your body. If you feel like running, give it a go. However also realize that your immune system is still compromised, so you don't want to over-do it. If you listen closely enough, your body will tell you what to do. While some may argue for you to take it easy and not to run until you are fully healed, I don't think that is realistic....especially for a person with a runner's personality. Exercise was the one thing that always made me feel better and in control of my body.
Give your body some time to get used the diet. You may start to feel better, or you may not. If not, keep experimenting. It took me a very long time until I found the perfect balance of foods in my diet. There are many resources, discussions and support on this forum that you may find helpful. Don't give up.
Years later, I am still an avid runner and racing in a triathlons (Half Ironman next week!). I hope everyone realizes that you can still be a great athlete with Celiac disease.
Keep us posted. Happy running!
Heather : )
My guess is that at least 80% of Celiacs know exactly the "The Celiac Belly" is. As I read through this thread, I could relate to at least one thing in each of them!
If you have only been gluten-free for a few months, or for years and years, I would recommend looking into Digestive Enzymes and a Probiotic. I consider myself "healed", but I started to take a full spectrum enzyme before my larger meals, or a meal that is different than usual, and it has really made a world of difference. At work, I eat lunch, but then return right after to running around, bend, lifting, helping patients, etc. Pretty much everyday I was uncomfortable after my lunch, so I started taking the enzymes. I would say, it makes me feel about 70% better (which makes the afternoon so much more pleasant). It's worth looking into if you have similar problems.
I can also relate to the weekend thing, when as soon as you eat some weekend food (which usually isn't all that out of the ordinary), you have problems. I used to have this all the time, but have gotten a good hold on it. I usually have a crazy meal on Friday night, and then stick to whats normal for the rest of the weekend. My crazy meal is usually something like homemade gluten-free pizza. Wild, huh?
To ensure the health of your gut, especially if you have D, a probiotic is a must. Highly recommend looking into it! We can't avoid the Celiac belly, but we can take steps to calm it down. ; )
Hi Kristalee Jane,
Here is a great website on Gluten Free Travelling in Canada that has been very helpful for me in the past. I don't know if you have ever been to BC, but it is gluten free heaven....probably the more gluten-free options (eating and shopping) than anywhere else in Canada. A few summers ago I travelled from Edmonton to Victoria and there were so many options, it was hard to decide. However, like always, it is important to screen all restaurants (maybe call them before), just to make sure they know what they are doing.
Happy travelling. I'm sure you will love it!
Heather : )
Thanks for the Lara bar tip. I tried them a while back, but found the nuts were a bit much for my digestive system. I might have to slowly introduce them again and see what happens...
That time improvement is fantastic! I know when I have a good run, I am so proud of myself and feel like telling everyone....must be the runner's high. That feeling is something special and is something that only few people can experience.
That is also encouraging that your race performance corresponds with you going gluten-free. That may be a sign that your body is healing as a result of going gluten-free. It is very important to find all those hidden sources of gluten, so you can omit them from your diet and start feeling even better. It sure took me a while before I figured out the best diet for me. However, it is an on-going learning experience and years later, I am still experimenting with food (not with gluten) and finding things that I can and can not tolerate.
Keep at it and let me know how the IM training is going. July 6th is my date!
Heather : )
The last theory of your post is likely right. It's all about the neural adaptation and becoming energy efficient. Adaptabililty is an amazing thing about the human body and it's what makes training fun....depending on your situation. ; )
In response to your question of what do I eat....I'm not sure yet. To be honest, I haven't found any solid food that feels good in me during long runs and rides. I use a lot of drinks. I am currently waiting for a shipment of Hammer products. I'm keeping my fingers crossed that they will be what I am looking for. I sure feel like I need something of a little more substance some days....
Is there anything specific you've found that works good for you? Because of other sensitivities, I can't do a lot of the typically-recommended endurance foods. I am going to experiement the next few weeks in training to see what I can tolerate. Any suggestions?
H : )
Hi hightop girl,
I am also doing 1/2 Iron training, so I thought I'd throw in my 2 cents.
I would strongly recommend looking more into your diet. I don't know what you training background is, but your program must ramp up pretty quick if you are doing that much training in the first 3 months.
Because of the energy systems used in very-long endurance training, your body is not in the catabolic state, therefore, it is very difficult -if not impossible - for substantial muscle gain during this time (especially in just 3 months).
Three to five pounds is not much of a gain, but I would monitor your heart rate (resting and during exercise), morning temperature and mood to rule out over-training syndrome.
For performance, and to prevent injuries, you have ensure adequate food intake. Play around with your diet and make sure you are eating enough. Weight gain often comes when your body is in starvation mode. Keep in mind that you are burning a tremendous amount of calories each week. Make sure your body has what it needs and let weight loss be a by-product of your hard training!
"Pure motivation enables you mind and body to become truly connected
I agree with the above recommendations. Unfortunately your feelings, physically and emotionally, are quite common. I am sure I'm not the only one who can relate to your problems right now.
I was also in universoty when I was diagnosed and dealing with all the "other issues" that come along with Celiac. It was hard to concentrate and focus in school, I tried to avoid social outings because I of the food and because I didn't have enough energy. The list goes on and on.
I don't want to repeat the other's posts, but I recommend removing yourself from any possible environments of cross-contamination. With repsect to the lactose, dairy often causes a mucus response in the body. Stuffy nose, sore throat, etc. So, really give that a try.
I had patches of DH and the doctor (who likely wasn't very informed on Celiac) gave me some cream to take the itch away. It worked, but now the DH just comes out in times of stress or if I accidently get glutened.
Things WILL get better. Stick to it and inform yourself. I recommend looking into The Paleo Diet. Of the hundred of things I tried, this gave me some relief.
Heather : )
Your story is all too familiar. Unfortunately there is no quick fix; however, I found that going on a liquid diet somewhat helps the symptoms. I found a meal replacement shake that works well. I once met a guy who just went on lemon juice tea/broth for 2-3 days - I didn't try that, but you might want to consider it. It doesn't supply very much energy, but eases the bloat, gas and D for a while.
I also went through a phase of trying this and trying that. Something would work for a while, but then start bothering me, etc (ie. psyllium). After a few years of doing this, I finally stopped experimenting and now just stick to good old food (plus, environmental things like keeping a gluten-free kitchen). I now eat a Paleolithic diet about 80% of the time and feel a world of a difference.
When trying to figure out what works, the keys are consistancy and patience!
Keep working at it! Things will get better!
Heather : )
I lived in Edmonton for the past 5 years and I have to say that Normand's is one of the best restuarants. It's on Jasper Ave. A bit pricy, but definitely Celiac-safe. They even serve you your own toasted bread before the meal....and they have gluten-free cake.
Another good choice is Organic Roots (by the University). It's a market and restuarant all in one. It is good for any meal. Good prices and great atmoshere. Always let the staff know you have Celiac before you order.
If you are staying on Whyte, make sure to go shopping at Planet Organic (just off Whyte on Calgary Trail). It is my home away from home. I miss Edmonton....
The Canadian Celiac Association: Edmonton Chapter has some restuarant ideas. You might want to google them before you go! I pretty much stuck to my same-old restaurants.
Heather : )