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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About lorah322

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  1. My son has been gluten free for 3 years. This was on the recommendation from an occupational therapist. His stomach improved immediately. He used to vomit quite a few times during the year (non viral), and the rash on his elbows and knees disappeared. Since that time I feel I have done a lot of research on celiac, and wish I knew to have him tested before ever going gluten free, but at the time I just didn't know. Fast forward to this year. In January I started letting him have food at birthday parties and whenever they brought special snacks into school for birthdays, fun Fridays etc. he seemed to do well, so we started eating out once a week and letting him have whatever he wanted. Now in the past 2 weeks I started giving him gluten everyday. My husband and I decided to have him tested for celiac. Now I am trying to figure out which dr to go to. I read that the internal biopsy can be done as early as 2 weeks on a gluten challenge. Blood tests need a lot longer time on gluten.. And can easily give a false negative. But what about dh biopsies? He has active lesions on his elbows that have returned because of the gluten. Can he be tested now? Where do you recommend I start. I have the name of a pediatric GI (who does a lot of work with celiac kids), do I see his pediatrician first for a blood test, or try seeing a dermatologist to have the rash diagnosed? The rash looks like it's getting worse and I've been keeping an eye on his knees. I feel like it's only a matter of time before his knees break out too.
  2. I've tried several from a few websites, but still have not found the perfect recipe. I would prefer a tried and true recipe using mainly almond flour. Can anyone help?
  3. Need Help - Four Months Post-Diagnosis

    I agree with rosetapper and tom. My understanding is that when you remove a food that your body rejects, other sensitivities are likely to surface as well. I tried reintroducing dairy 2 weeks ago... bad idea, because I felt awful after a few days. I hope you start to feel better soon!
  4. I am not sure if this is the right place to post this, but I figured I would start here. My kids and I are gluten and dairy free. I feel that removing these foods from our diet has helped all of us. We have also suspected a fish allergy (not intolerance) in my daughter because she reacted the last two times she had it. Her blood test came back fine, but the allergist said the blood test is not as sensitive as the skin prick test. She could not do the test in the office today because the insurance company systems were down, and she did not have the 2 fish in question. She suggested rubbing some cooked fish on her skin and seeing if she reacts. I have to giggle at the thought of rubbing fish on my daughter, but maybe there could be some validity in this. I've read on here about people washing hands as soon as they handle bread for a family member, etc. What happens to those of you that come in contact with something you are allergic or sensitive to? I know everyone is different and has different reactions, but I am curious to hear any thoughts. Should I go cook some Mahi Mahi and rub it on my daughters arm
  5. Thank you so much for your response Skylark. I think I am more frustrated with myself for 2 reasons. 1. Because I went gluten free without any diagnosis. But in my defense, I find that most doctors try to treat my symptoms rather than find the cause. I didn't even start seeing a GI doctor for this reason, it was something else entirely. So I guess I was also uneducated about who might be able to help me. 2. I feel like if I don't have a clear diagnosis, family members won't take me seriously. Well, I just need to get over that!!!! If gluten free works for me, then I just need to go with it! I am glad there are forums like this available for all of us to support each other! He is doing some bloodwork to check iron levels and such. I will be curious to know if I am deficient in any vitamins or minerals. He really is a nice doctor and very supportive, so am am fortunate to have stumbled upon him.
  6. Okay, So I had my follow up appt. today and it says: "Small bowel mucosa with slightly increased intraepithelial lymphocyes." I still don't know wether or not I am positive for celiac, but the doctor said based on my history it all 'fits together'. However he did not make an official diagnosis. Guess I feel about as confused as I did before. I hesitate to call myself celiac with no official diagnosis. Any thoughts?
  7. Personally I would find another doctor, regardless of whether or not you get tested for celiac. Sounds like bad 'bedside' manner on her part. You trusted your instincts, went gluten free, and it worked in your favor. You know your body best, and if gluten free works for you, your doctor should be receptive to that. Welcome to the forum, I am new here too
  8. Forgive me if this has been talked about already. I am curious to know how people have determined their other food sensitivies or allergies? I took my son to an allergist about 2 years ago, and he refused to test for food allergies saying that we would know if he had a 'true' allergy. For myself, I spent about $600 (ouch)on the (Company Name Removed - They Spammed This Forum and are Banned) test which showed chicken and turkey as a severe intolerance. I don't know why, but I have a hard time trusting this test and these results. I have not found a physician (MD) that is open to the possibility of food being the cause of problems.
  9. I wonder how Spaghetti squash compares to eating gluten free pasta??? If anyone has any experience, I'd love to hear your thoughts on texture and taste!
  10. I know that you either have celiac or you don't... but let me explain my situation. I went gluten free back in September because I had horrible eczema/itchy blisters on my hands. To my amazement, my hands cleared up! I figured I had a gluten intolerance and the thought of being a celiac did not cross my mind. When I began having stomach problems, my doctor told me I had gastritis and immediately put me on prescription antacids. I DO NOT like taking medications, so I was not happy about that! After talking to a gastroenterologist about it, he too wanted me to go on the medicine, so I did. When the medicine was not agreeing with me, I insisted on having some testing done, so I can know for sure what the problem is. Right before the endoscopy I asked to be tested for celiac. He told me that my duodenum looked fine, but he did the biopsy since I asked. Now I know that being gluten free before testing will probably make for a negative result, however I had done quite a bit of cheating on my diet the 2 weeks prior to the test. One weekend I was visiting my grandparents, and I did not worry about my diet the whole time I was with them. And even the night before my test I was out to dinner with my husband and I had some of the bread they brought to the table. I have my follow up appointment with my doctor next week, but I am wondering if anyone might have information or thoughts on what 'possible celiac' might mean. If I am celiac, I will not do anymore of that cheating for sure! Oh, and I do have some inflammation in my stomach, but as long as I don't have discomfort on a daily basis, I was told I could just try to manage with home remedies. I look forward to hearing any thoughts!