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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    1. nvsmom added a post in a topic e-mail to my daughter's girl scout troop   

      I agree. A face to face meeting can only help, and adding oats to the list is a good idea.
      I tend to ask that my kids not be given any food and send food along with them.  When they go to camp, I sent them a tonne of extra food, from grahm crackers to buns to premade sandwichs to muffins) so they would be safe.
      Will your daughter speak up for herself there?  I've been a leader and coach before, and I hate to admit that I forgot some health issues of some of my kids.
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    2. nvsmom added a post in a topic Symptoms in 5 yr old testing negative   

      I'm a celiac and two of my boys had celiac disease symptoms (including my oldest who has (formerly known as) Asperger's) but they tested negative on their only celiac disease test, the tTG IgA.  I knew those tests could miss some celiacs, especially the newly developed disease, so I made them gluten-free anyways and I'm glad I did.  Their symptoms "coincidentally" improved within days of going gluten-free.  Gas was less, fewer headaches, better emotional control, five fewer trips to the bathroom each day... I'm fairly convinced that they have celiac disease but it was caught early, and they live as celiacs without complaint.
      Technically, my kids appear to have non-celiac gluten sensitivity (NCGS) because of the negative test, but because they have a celiac mother, I really doubt that is it.  It is possible to have horrible NCGS symptoms, just as bad if not worse than a celiac's.  Either way, a strict gluten-free diet is the only treatment.
      I would treat him as a celiac and stay gluten-free, unless you are repeating the testing. Give the diet a good 6 months before you judge it's effectiveness.  It can take many months before the body even starts to heal.
      You might want to consider removing dairy too.  About half of all celiacs can't handle dairy because the intestines are too damaged to make the lactase enzymes to digest the lactose.  Pain and problem BMs is often the result.
      Best wishes.
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    3. nvsmom added a post in a topic Cheerios Recall   

      I'm going to give them a few years to get their gluten-free act together before I dare try their gluten-free Cheerios I think.
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    4. nvsmom added a post in a topic Finally went to the DR.   

      Waiting is stressful.  Hang in there.
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    5. nvsmom added a post in a topic Confused with lab results   

      Ditto everything Cyclinglady said.
       It's hard to say for sure if it is celiac disease unless you know what test was done.  If it was the antigliadin antibody (AGA IgA) then it probably is celiac disease (such a high result), but if it was the deaminated gliadin peptide (DGP IgA) then you do have celiac disease - it is a very specific test.
      I too think you have gluten in your life. Check medications, don't share a toaster or condiments.  cc is a big issue.
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    6. nvsmom added a post in a topic glad you're here   

       Agreed. Keep eating gluten until those tests are done.  And let us know how the tests go.  Good luck!
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    7. nvsmom added a post in a topic Can I live?   

      That was me. I was 5'8", and on varsity teams in high school even though I had stomach aches a few times a day and had migraines... I think I was a bit more fatigued than average too because I would love to stay home and rest rather than stay out too too late.
      My ITP developed when I was 18. I had been working for 8 months and saving for a trip to Europe.  I had to cancel my trip and spend a summer in and out of the hospital.  I developed inflammatory arthritis at about age 22, and had hashimoto's show up at about the same time - during university.
      I wish your daughter luck.  It is hard to change and be different, but within a few months she'll notice a huge difference.  Best wishes.
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    8. nvsmom added a post in a topic Calories - How Do You Make Sure That You Are Eating Enough?   

      I like to use myfitnesspal to log my foods. It gives me a rough idea of my macros and calorie counts.  It could be a good tool for you to use.
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    9. nvsmom added a post in a topic Anxiety?   

      Glad you are feeling better.
      I doubt your symptoms were from malnourishment, but rather from a possible few sources:
      Perhaps you were not eating enough for a few days (especially carbs), and your body switched to ketosis (fat oxidation).  Unless you up your electrolytes (sodium, magnesium and potassium), lowering your carb intake will result in wtaer lost along with electrolytes.  This can cause weakness, headaches, shakiness, fatigue and even heart palpitations. It takes a few days for the body to get used to not relying on glucose (carbohydrates - veggies, fruit, baked goods, etc) for fuel.
      Or you could have been experiencing gluten withdrawal (or as well) if you are new to eating gluten-free. A minority of people feel quite horrible when first removing gluten from their diet.  It lasts a few days to a few weeks.
      Getting vitamin levels checked is a good idea for most celiacs.  The common low nutrients are calcium, magnesium, potassium, zinc, copper, ferritin, iron, B12, D, A and.... I think I'm forgetting one. Hmm. Anyway, those ones are good to have checked.
      Feel better.
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    10. nvsmom added a post in a topic Can I live?   

      Like the others said, you can ignore it but things will get worse.  They will.  Some symptoms may become permanent and you could develop life threatening conditions.  I developed ITP, which almost killed me and hashimoto's too. Those are with me forever. My hair thinned and never really came back thick again.  I had joint issues that have resulted in arthritis and soft tissue damage.  I can no longer be nearly as active as I would like to be. I feel older than I should.
      You could ignore but you WILL hurt your health and age yourself.  I wouldn't do it.  Eating gluten-free isn't horrible.  Meats, veggies, fruits, nuts, eggs, potatoes, rice, quinoa, flax and baking from gluten-free flours... Nothing bad there.  It takes a few months to get used to new brands and tastes, but it's worth it in the long run.
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    11. nvsmom added a post in a topic Anxious about Biocard test results   

      I know of one woman that happend to. A positive Biocard and a negative doctor test (both tTG IgA).  It appears that she had Lyme disease. A serious infection can sometimes cause a false positive tTG IgA test, as can diabetes T1, liver disease, hashimotos, crohn's, and colitis.  False positives are thought to happen only about 5% of the time though.
      I hear you about the waiting times. I'm in Alberta and the waiting time to see a Gastro about celiac disease was 9+ months, back when I was tested.  Who knows how much longer it would take for the endoscopy.  I chose to skip it.  I had a positive EMA IgA, tTG IgA, other autoimmune diseases, and celiac disease in cousins on both side of my family. Along with my symptoms, I had no doubt that it was celiac disease.
      Let us know how it goes!
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    12. nvsmom added a post in a topic Gluten and the thyroid and pancreas   

      I will also add that switching to a LCHF diet reduced my appetite and cravings for carbs, and I've lost about 30-35 lbs in 3 months, without much effort even though I am now at a normal BMI.
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    13. nvsmom added a post in a topic Gluten and the thyroid and pancreas   

      Hashimoto's thyroiditis and type 1 diabetes are the autoimmune diseases most commonly co-occurring with celiac disease.  
      I have hypothyroidism; my thyroid barely works.
      I also have prediabetes, so I make too much insulin and would often have some large blood sugar spikes.  I've fixed that problem by eating a low carb high fat diet.  If I don't eat the carbs, my glucose and insulin won't swing, I doubt this condition was related to my celiac disease though.
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    14. nvsmom added a post in a topic Celiac and Acne   

      Do you think it could be sugar related?  Many gluten-free products are higher in sugar...
      I recently cut sugar from my diet and was shocked at how my skin cleared up (it had become acne prone in the last 10 years).
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    15. nvsmom added a post in a topic New and Naive.   

      Chances of Hashi's causing a false positive ttG IgA is less than 5%. The tTG IgA (tissue transglutaminase) is very similar to the EMA IgA, but the EMA IgA tends to detect more advanced disease.  In fact, many doctors will not run the EMA IgA untila after a patient has had a positive tTG IgA.
      I have Hashi's too. My EMA was normal inside of a year gluten-free, although my tTg IgA took longer to become normal. After 3+ years gluten-free, my tests are all very normal.  
      It's probably celiac disease.  
      Welcome to our board. Good luck with the doctor.  Here's more info on the tests:
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