This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Your endo doesn't have to order your blood tests (but the blood tests could convince her to advise an endoscopy). Do you have a GP? My physician was willing to order blood tests, but I asked for a referral to GI clinic. Still deciding if that was a good idea (whole different set of issues) but it did educate me that almost any type of practitioner can order the tests (not that they are the most knowledgable about interpreting them, but you could take the panel to our endo to have further testing done).
Thanks so much for this info. I just recently had a "clear" Endoscopy/Colonoscopy and "iffy" blood tests, (GI resident's words, not mine) but have been seeing an increase in frequency and severity of symptoms over last 9 months (migraines, GI distress, bloating/gas with pain, loose stools, constant going to the bathroom, irregular periods, yeast infections, asthma, allergies, joint pain etc.) and noticed the distress and pain, especially becoming much more accute, so I'm not satisfied and want further testing. I had looked into Enterolab and assumed it would all be out of pocket for me, which was discouraging. I probably do not have Celiac Disease, but something is most definitely not right!
Just to add to the knowledge on the board about Enterolab and BC/BS--- I called my BC/BS (of Massachusetts, through Oregon (hubby's company based in OR) and gave them these codes. They will pay 90% if my GI doctor, who is in-netowrk, orders the tests, 50% if I order direct (which is still something...) With a deductible of $250 I'd end up paying full price anyway, but since I just had the GI procedure I'm going to go ahead with this before the year turns over.
I am so frustrated with feeling terrible and having doctors tell me "Everything looks fine." Clearly, everything is not "fine." I respect my GI doctos and they have been very good so far with my procedures and not making me jump through hoops to have them done, etc. but I'm keeping my fingers crossed that they don't balk when I bring them these tests and ask them to order!