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CarolynA

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About CarolynA

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  1. I want to thank all of you so much!! I have been very worried about this, and now I feel much more positive. I may just try going off the gluten for a couple of months to see if it makes a difference before stopping soy and corn as well. Carolyn
  2. Thanks everyone for the replies. I have been most worried about the neuropathy pain. It is good to hear that healing happens, even if it is slow. I had my B12 tested in 2010, and it was 951 (high). Do you think I should go off soy and corn as well, or is just going off gluten enough for now? I don't eat dairy anyway, except for occasional pizza.
  3. Last year, I posted to this forum because I thought I had celiac, but after my tests turned out negative, I went back to my regular diet and forgot about gluten. However, the neuropathy in my feet has been getting worse, and my doctor increased my levothyroxine dosage last summer. I have turned to acupuncture in an attempt to get some help. For a few weeks, the neuropathy was getting better, but the in the last 2 weeks, the pain has gotten much stronger than ever before. I just started reading a book, The Immune System Recovery Plan, by Susan Blum. She says that thyroid disease, neuropathy, and celiac disease are strongly associated. "The thyroid, joints, and nervous system are damaged first, and this can be the initial sign that something is amiss, before any symptoms of celiac disease are evident." This is really astounding information to me! She suggests going off gluten, corn, dairy, and soy for 3 weeks, then adding them back in one at a time. Have any of you had success doing this and finding the cause of the problem? Have you seen neuropathy get better through an elimination diet? I am really worried about the nerve damage that may already have been done. Any comments or help would be appreciated.
  4. I just wanted to post an update on my progress over the past year. After my tests turned out negative, I went back to my regular diet and forgot about gluten. However, the neuropathy in my feet has been getting worse, and my doctor increased my levothyroxine dosage last summer. I have turned to acupuncture in an attempt to get some help. For a few weeks, the neuropathy was getting better, but the in the last 2 weeks, the pain has gotten much stronger than ever before. I just started reading a book, The Immune System Recovery Plan, by Susan Blum. She says that thyroid disease, neuropathy, and celiac disease are strongly associated. "The thyroid, joints, and nervous system are damaged first, and this can be the initial sign that something is amiss, before any symptoms of celiac disease are evident." This is really astounding information to me! She suggests going off gluten, corn, dairy, and soy for 3 weeks, then adding them back in one at a time. Have any of you had success doing this and finding the cause of the problem? Have you seen neuropathy get better through an elimination diet? Any comments?
  5. Well, I just got my blood results back: IgA 214 reference range: 68-378 TTG 8 0-19 IgG 3 0-19 The nurse last week told me they were doing the full panel, and I saw 5 tests on the order. When I asked about that today, the nurse told me they only do the others if the first 3 are positive. So, they are all negative, and I and feeling better besides. The 2 week bout of diarrhea and stomach cramps seems to have resolved. The tests say I don't have celiac, but I still could have a sensitivity to gluten. I am not sure, but possibly, the probiotic and Metamucil got me back in balance
  6. His nurse assured me it was the full panel. Your list had 6 items and theirs had 5. I asked specifically about DGP, and she said it was on the list. I will go into the office next and get a copy of the results and post.
  7. OK, I will wait to start gluten-free, but I am sure all of you know that is extremely difficult because I want to feel better. I was in somewhat of a dilemma, though, because my husband made a beautiful, large, tabbouleh salad yesterday, and I didn't have the heart to throw it away. So, now, dilemma is solved. I will eat and try to be patient. Thanks so much for the advice!
  8. I just wanted to give you an update that the stool sample was negative for C.Diff, parasites, and WBC. The GI doc did agree to the celiac panel, and I just got back from the lab. I was feeling much better yesterday and thought it was resolving. However, today I had stomach cramps all morning. The doctor said I should now go gluten-free, but it will take me a few days to figure out what to eat. I expect the results by Tuesday, at least. I will keep you posted.
  9. I read both of the links from Squirmingitch and IrishHeart. I was especially impressed by the Cleveland Clinic's advice that anyone with irritable bowel and and thyroid disease should be tested. All of you have certainly boosted my knowledge level and confidence! I just called both my internist and my GI doc and left messages insisting on the blood tests for celiac. I will go with whichever one can get me in first. I am still having the same number of diarrhea episodes, but the cramps are reduced and the movements are less watery. That could be due to the probiotic and Metamucil. I turned in the stool sample yesterday and have no results yet. However, since I have no fever, chills, or blood in the stools, I don't think C. Diff. is a factor. I will keep all of you updated on the developments. Thanks, Carolyn
  10. Dear squirmingitch, the doctor wants to test me for C. Diff., parasites, and fecal WBC before proceeding further. He seems sure I have irritable bowel instead of celiac only because celiac is much more rare. He wants me to take Metamucil and a probiotic, Align, in the meantime to see if that helps because he said I could be "out of balance." He also said in 2004 that they did a biopsy for celiac which was negative, but they never did any blood tests. He said the next step is another colonoscopy if I am not better in one month, which I am not really happy about. I will get the stool sample to the lab in the morning, then I will have to wait for those results. I will report what I find out. Thanks so much in the meantime.
  11. Thank you so much!! I have an appointment this afternoon with my GI doc. I printed out your list and will tell him to order all of them. Also, while I am there, I will get the old results. I will look for my thyroid labs later, but I know the doctor has only been checking TSH lately. Last month it was 4 and he just bumped up my levothyroxine from 100 to 112 mcg. My mother had Type II diabetes, and I know my maternal grandmother died of "stomach cancer", but that was in the 1930's and the diagnosis might be questionable. My sister had rheumatoid arthritis from the age of 18 years. The anemia, which actually happened twice, was due to a very slow bleed. The second time it happened, my doctor put me on daily omeprazole, and it did resolve. Last month my Hemoglobin was 14. I will post later after my appointment when I have more info. I am really impressed with the amount of help the veteran people are giving the newbies on this forum!
  12. Thank you for asking, and, in fact, I had forgotten about it. I had a colonoscopy at that time because I was anemic. The doctor found gastritis which was causing the anemia and tested for celiac, but the test was negative. I was not concerned and assumed that the testing was just routine. I had had some bouts of "irritable bowel", but it would always resolve in a few days. Now I am beginning to think the doctor might have seen some damage at that time. I will call him in the morning, but I don't know how quickly they can see me. I might be able to see my internist quicker, and he can order the tests.
  13. I am a 62 year old woman who has been having severe diarrhea and stomach cramps for 2 weeks. The diarrhea usually wakes me up at night and I go from 2 to 4 times during the night, then a couple of times in the morning with stomach cramps for a long time afterward. I was tested for celiac about 8 years ago with negative results, and I also had a colonoscopy and endoscopy 1 1/2 years ago with normal results. I also have hypothyroid and migraine headaches which can be related to celiac disease. Does this sound like it could be celiac disease? I am going to call my doctor first thing tomorrow morning, but was wondering if I should call my internist or my gastroenterologist who I haven't seen in a long time? I have reading many of the forum posts, and this community seems very knowledgeable. Any advice would certainly be appreciated as I am daily getting weaker and more fatigued. Thank you, Carolyn