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suziegp

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About suziegp

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  1. I eat before I go and then just have a glass of wine. What made a difference with my mom is when I said, "I am comfortable with it. What I need is for you to be comfortable with it." To the server, I say I already ate, but want to visit with my friends, so I'll just have a glass of wine. Some extended family members have talked behind my back (is she anorexic? do we need to to an intervention?), but if it wasn't that it would probably be something else. It is what it is. We're going on a 3-day trip soon and I will be packing my own food. I've been surprised how much I can enjoy going to a restaurant without eating. I can focus on the conversation and relax. It's also a money saver LOL. Thanksgiving, Easter, whatever, I bring my own food. (Christmas is at my house - yay!) Printing out info on cross contamination may help. That's what I did for my husband.
  2. After three bad restaurant experiences while on vacation a year ago, I could not recover. I lost 15 pounds,and it has taken me the full year to gain it back. I was totally scared of restaurants. Although I had never had a bad experience at Outback, I wouldn't even eat there. I developed a fear of eating out - period! I still want to be a part of celebrations, etc., so I eat before we go and just have a glass of wine. I'm surprised at how enjoyable this can be. I pay no attention to what others are eating and can enjoy the conversation. We've done two vacations this way. I also carry cheese and pepperoni in my purse. However, I wanted to celebrate Valentines Day and I got up the nerve to eat at Outback. I had a very good experience. The manager and server both reassured me. The meal was great and I had no repercussions.
  3. Hi, My son and his fiance are getting married in September of 2013 in the Newport Kentucky area. I'm looking for a place to host the rehearsal dinner. I was planning to eat before the event - I'm super-sensitive and paranoid about restaurants after taking a vacation and being sick for 3 months - I got glutened a few times in a row and just could not stop the nausea and diarrhea. So I never eat in restaurants. I have a glass of wine and enjoy the company. However, my son wants me to enjoy the meal too and asked me to at least look for a place that can accommodate my needs. And he's right, this will be different from the norm - I can't come late or leave early and it will be a long evening. I need a place that has a separate room for around 30 to 40 people. Thanks for any suggestions!
  4. Thank you so much. I feel so much better knowing I'm not doing something wrong and that my hard work has paid off. Yes, he's an MD, but a general practitioner. Celiac is not his specialty. Guess I'd better go on a search .... Thanks again!
  5. I tried posting in another forum, but I don't think I gave enough info and maybe it was the wrong forum. I would appreciate any help. I was uninformed when my journey began in 2006. I just knew that if I didn't eat wheat I felt better. I stopped gluten, with an occasional cheat and if I didn't cheat too often I didn't get sick. After six weeks on a gluten-free diet I had an endoscopy which, of course, was negative since I had been gluten free. In 2009 I cheated and ended up in so much pain I went to the ER where I was diagnosed with colitis (CT scan showed inflamed colon). A year later a different doctor diagnosed me with celiac using blood tests and I am also positive for the celiac gene. He is monitoring my blood and says I am still getting gluten somewhere. The day before my latest blood test I was sick. I had eaten out - a supposedly gluten-free meal, but that was 2 1/2 days prior to being ill. The results were still in the normal range, however my doctor interprets the test as showing I had gluten. If I had gluten in my system, would the antibody numbers be higher than they are? Do IGG and IGA test out zero when you've been gluten free? Should I be aiming for zero? I really don't understand the results, as it looks like they are 5 and 6, but he says 6/30, 5/30. I don't know what that means. Here is what he said: I am writing in regard to these suboptimal antigliadin test results, since at 30 =100%; IGA 6/30 which reflects > 20% impact from gluten on the immune system. IGG 5/30 which reflects > 16.6% impact from gluten on the bowel lining Component Latest Ref Rng 6/19/2012 GLIADIN AB, IGG <11 U/mL 5 GLIADIN AB, IGA <11 U/mL 6 These levels do document that these % of damage are happening to your immune and intestinal systems at this time. I've worked so hard to be gluten-free, being extra diligent since February. I've only eaten out 3 times in the last 4 months and was extremely careful. I eat a very limited diet. I don't even eat gluten-free breads, pretzels. etc. I'm getting very frustrated and down. Thanks so much for any help!
  6. I'm hoping you can give me some insight. I interpret my IGG IGA test results as negative, yet my physician does not. Here is what he sent me with his note: I am writing in regard to these suboptimal antigliadin test results, since at 30 =100%; IGA 6/30 which reflects > 20% impact from gluten on the immune system. IGG 5/30 which reflects > 16.6% impact from gluten on the bowel lining Component Latest Ref Rng 6/19/2012 GLIADIN AB, IGG <11 U/mL 5 GLIADIN AB, IGA <11 U/mL 6 These levels do document that these % of damage are happening to your immune and intestinal systems at this time. Should I expect results of zero if I haven't been exposed to gluten? Thanks so much for any insight!