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rekua added a topic in Celiac Disease - Coping WithFeeling Worse After Feeling BetterHi Everyone,
I've been reading the forum a lot since this summer when I got the suspicion that I have celiac. It's always helped a lot to read about stories similar to mine. Thank you for that!
I've had an eczema type of rash on my hands for 4 years and that is what made me look for answers for the last few years. The rash actually started at the same time as an occasionnal bloating and some pain on the left side of my belly button. Doctors didn't say anything helpful and the mild symptoms didn't bother me much for the first two years. Then my rash got worse and I got into a long depression which I thought was due to me moving abroad and being lonely. In the last year or so additional symtoms arised, like UTIs and tonsil inflammation which both would go away and come back often. I've had trouble getting up in the mornings for 6 years now and I used to sleep 9-10 hours and wake up as a zombie.
So in the summer I read about celiacs and realized that it might be the answer for all my symptoms. I went through testing. Everything came back negative but I was already gluten free when tests were done and my health was improving. I definitely have a reaction to gluten. My UTI comes back every time I accidentaly eat it and I have GI symptoms, too that I didn't use to have before going gluten free or at least I didn't notice them...
I've been gluten free for 4 months and at the beginning everything seemed fine. Eventually. I got rid of lactose, too because it seemed to be bothering me. Exactly a month ago I bought some muffins that were on the gluten free shelf in the supermarket. After eating all 6 of them I realized they were made of wheat flour. I got my UTI symptoms the next they (with blood in my pee) and they lasted for about two weeks. My problem is that since the glutening I don't seem to get back to my improved state. Even though the UTI is gone, I am having GI symtops, mostly bloating and pain on the left side of my stomach and I'm sleeping a lot again and don't have much energy. Before the glutening I've been eating lactose again and now I'm trying to get rid of it at least for a while and I'm also not sure whether grains are good for me.
Anyways, I would appreciate any ideas on my situation or even just supporting words because the last month have been really difficult waiting for all the glutening symptoms to go away. Do you think it's possible that the glutening brought back my lactose intolerance? Does it happen to any of you, too?
Thanks so much for taking the time to answer!
- 3 replies
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rekua added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCould Juice Fasting Make My Results False-Negative?Hi,
I've suffered from eczema for the last 4 years and in the last few years I started to go on juice fasts from time to time to heal my skin. I did a 10-day juice fast from 8th July to the 17th. After I broke the fast, I didn't eat much food that could possibly contain gluten but still I know that I ate a little bit of them because I had no idea that I could have celiac disease. On 24th July I ate a huge piece of bread with vegetables and suddenly I felt sick. It felt like my UTI was coming back, too immediately. So I started to research my symptoms and it became clear to me that I have celiac. I found that all of my symptoms, even the little ones could be caused by celiac. On 28th July I tested negative to TransGlutaminase igA blood work, even though I ate to slices of pizza the day before to make sure I was gonna have antibodies in my blood. On the contrary, my Immunoglobulin A test came back with 415 mg/dl while the range is 70 to 400.
Does anyone know what the difference is between these two types of tests? And do you think there's a chance that I tested negative because of the fasting prior to the test?
- 3 replies
- 546 views