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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About marythemom

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    1. marythemom added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Not Celiac
      We've recently determined that my son does NOT have celiac disease, and if he had a wheat allergy he's outgrown it. We're still barley free, but I have tons of cookbooks, flours, mixes, etc. I live near Austin, TX. I would love to sell/ give away to someone who needs them all of our many pounds of flour, and scarcely used cookbooks. Any suggestions? You can e-mail me at mbrush (remove parenthesis) @ Hope noone considers this spam. I just don't want all this stuff to go to waste.
      • 0 replies
    2. marythemom added a post in a topic Totally Confused   

      I have to admit I'm still totally confused. Sometimes I think I just picked Celiac disease because it was there. Allergies run in my family, and my son does not have any of the classic symptoms ( then again, there's asymptomatic... ).

      Only my son has been on the diet. My husband tried it for a couple of weeks, and found improvement, but discovered that he was also eating less, and eating out less which contributed more to the lessening of his acid reflux disease. He's back to eating a regular diet, and only has problems when he eats too much. The doctors were adamant that he did not have celiac disease. Myself and my 7 year old daughter seem to be doing fine on a regular diet (she craves carbohydrates even more than I do, but doesn't seem to be having any adverse reactions).

      My son has been on a "normal" diet for about a month now. The first week he complained of tummy aches (which surprised me because he NEVER complained about anything before, even raging ear infections). We decided that since the tummy aches stopped it had probably been due to his radical change in diet (I'd have a tummy ache too if I was trying donuts and pizza for the first time). About 2 weeks into this he got diarrhea and a fever for 24 hours, but stomach flu was going around. Now he seems totally fine and has been off the diet for a month. He seems to naturally avoid bread products although he eats them, but he's always been that way. At 18 mos he ate an entire package of hotdogs and an entire cantelope in one sitting. He's always preferred fruit and protein - we called him monkey boy. Now he eats more balance meals, but still loves fruit. On Tuesday, he goes to see his new pediatician for his 5 year well check. I've been told to go ahead and make an appointement to see a gastro-interologist, but haven't had a chance yet.

      Several family members have shown signs of wheat allergies as children and have apparently outgrown them. I just don't know enough about the differences between celiac disease and food allergies/intolerances to say if he's classic or asymptomatic or what. Most of the testing seems so severe, but maybe the genetic test is not?

      I want to thank all of you who have responded! I checked back once and didn't see more than the one reply, so thank you to the person who sent me an e-mail letting me know that more of you had responded. I will definitely keep everyone posted, and if anyone has any ideas where I should go next I would like to hear them. Thanks again!
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    3. marythemom added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Totally Confused
      My little boy will be 5 next month. At 10 days of age, he was hospitalized with RSV. At 7 months he had had so many ear infections that he had his first set of ear tubes. His body rejected the tubes in only 4 months. At 13 months he had his second set of tubes and his adenoids removed (he'd had over 20 ear infections before he was a year old!). Four months later they'd fallen out again (probably pushed out by yet another ear infection). He'd also been hospitalized with wheezing attacks and had to have 2 consecutive nebulizer treatments in the hospital.

      At two, he was eligible for his 3rd set of tubes, but through a string of circumstances we'd started him on an elimination diet (removing ALL possible food allergens). I went to an allergist since this seemed a bit extreme for a two year old. The allergist took one look at his problem sheet and said, "It's wheat or milk." It wasn't milk. The ear infections stopped. The frequent bowel movements (NOT diarrhea, just 3-5 times a day) that we had assumed were because he was breastfed up to that point, stopped. A couple of months later, he started wheezing again, and we took him off barley. The asthma stopped. Through all of this he NEVER complained about anything hurting so we couldn't use self reporting to tell if things gave him a tummy ache or had an ear infection, etc.

      After 18 months of a strict gluten-free diet they said he was old enough to let us do the scratch allergy test. We put him on wheat for a week. It came back negative. They ruled out celiac because it's usually genetic. Daddy realized that his stomach problems improved when he went on a gluten-free diet. Daddy had a colonoscopy. He's not celiac. He has GERD (acid-reflux disease). They said my son might grow out of it at age 5-6 years. We decided to let him try glutens again last week. He complained of a stomach ache. He got a fever, but it went away before we could take him to a doctor. Stomach flu is going around, and he's been "fine" for a week now.

      So if you got this far, here's my dilemma. His 5 yr. well check (with a new doctor who believes in food allegies, and has at least heard of celiac disease). is in 2 weeks. The nurse suggested leaving him on glutens for that length of time, and making an appointment with a Gastro-interologist (since it can take months to get in) so he can take the test after having been on glutens for 2 months. Do I need to put him back on Barley too? Every time he has vinegar or things flavored with vinegar he gets sick (can vinegar have barley? I know it can have wheat). He doesn't seem to be suffering on the wheat, but I've been afraid to introduce the barley. I just can't figure out if these are classic allergy symptoms or atypical celiac symptoms. I just don't know where to go from here, but I'd like a diagnosis before he starts public school! He's been on a gluten free diet for 3 years so he isn't craving a "regular" diet. He doesn't even know what that tastes like. At this age, he's totally compliant, and children don't start teasing other children about differences until they're in 2nd grade. Still, he's growing up fast. I would love any support or suggestions. I have friends who's children are gluten-free or Gluten-free Casein-free, but none of them are for celiac or allergy related reasons.

      Would really love some advice!

      Mary (mother of 2, one gluten-free boy (almost 5), and one non-gluten-free girl (7.5 yr.)
      • 9 replies

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