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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About flowerqueen

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  1. Oat Flour making me sick?

    Yes, I was about to say the same as others here. The thing is, even if the oats are certified as gluten free, in a minority of coeliacs, oats cause the same auto-immune response as gluten ALSO a word of warning here, quinoa can also cause the same auto-immune response, so you might want to tread carefully in that direction as well.
  2. GAPS diet 'I would take a look at this before you embark on a GAP diet. Listen to your 'inner voice' you are probably anxious about going on it for a reason! I certainly would not try the diet.
  3. Week late aftershock!?

    I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough. I have also become intolerant to xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff. Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her. I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
  4. It could be either to be honest. I'm suffering the same thing just now. Got glutened a few days into April, and still having symptoms. I've started a food diary again, to see if it's anything else causing the problem. Maybe you could also do this(?) then read through every ingredient to see what's in everything. I've recently started having problems with soya and xanthan gum as well as my pre-diagnosis intolerances. You have to act as detective most of the time. Hope this helps you.
  5. Weird Reaction

    Good luck at the doctors. Let us know how you get on.
  6. Weird Reaction

    I'm afraid to say I don't really think it is normal Richie, but I do recognise the shakiness and nausea you speak of, as I've been there. (Pre-diagnosis), my shakiness was so bad, my muscles were very weak and couldn't walk without the aid of a walking stick, my ferritin levels were so very, very low and had to take iron tablet every day for months. My hair was falling out, I had really bad digestional issues, amongst other things. I think you should lay off the coffee and the barley drink and all gluten/wheat, because until you do, your body is not going to repair itself properly. Damage is done to the gut even if you don't have gastrointestinal issues, as not all coeliacs have symptoms, but the damage is still being done to the gut, which in turn can cause osteoporosis, other auto-immune diseases and also cancer. If you ever get a test for coeliac disease, you need to be eating gluten/wheat for at least 6 weeks on a daily basis in order for it to set of the immune response in your body, which will cause a positive result. (Blood tests are less reliable than endoscopy with biopsies - bare this in mind). You may decide of course not to have a test for coeliacs because of how ill it could make you feel by eating gluten etc. In which case, you need to avoid all gluten and wheat forever! (By the way another symptom of coeliac disease is dairy/lactose intolerance- which could be causing your nausea). Sorry to be blunt, but you need to know the dangers and there's no point in sugar coating it. What is your fasting blood test for?
  7. Weird Reaction

    Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually). Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
  8. Weird Reaction

    Hi Richie, Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
  9. Weird Reaction

    Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'.
  10. Weird Reaction

    Hi Richie, I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid. There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease. (Our labelling laws in the UK changed a couple of years ago). You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts. I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time. (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though, have you checked the ingredients to see if there could be anything else in it which you may be intolerant to?
  11. Hi Moff, 'Three months in, is still early days, your body may just be withdrawing from gluten (which can cause symptoms) or you may be intolerant to something else. I have been having stomach cramps, not just at night though, and an urgency to rush to the bathroom after eating. I have been gluten free for about 4 years now, and I have started to react badly to other foods. My latest have been soya and xanthan gum, I'm still playing detective to see if there are other food intolerances. Hope you get somewhere with your dietitian, let us know what they say.
  12. Condition worse than before

    Hi Nelly, I have to agree with Cycling Lady, you need a follow up, to see how you are healing. Most people that have had an endoscopy to get a diagnosis get a follow up one about a year later. I notice you didn't get one. If you have had coeliac disease for a long time, it is going to take longer for your health to be restored. I also think it's possible that you could have another auto-immune disease; with coeliac disease, (which is itself an auto-immune disease)there is an increased chance of you developing another. Maybe for the time being, you could stop visiting the gym, you need all your energy reserves for getting better, you need to be kind to yourself. It's good you are taking supplements (have you double checked that they are totally gluten free?) You are certainly not alone in developing other food intolerances, I for one have developed food intolerances since my diagnosis, including soy and now possibly xantham gum, which seems to be in a lot of gluten free foods, as it acts as a binder, to replace gluten. (Some of my food intolerances started before diagnosis, like dairy, for example). Keep a food diary, write everything down you eat and drink and any symptoms you experience afterwards, but do go back to your doctor for further investigation. Take care and hope you feel better soon.
  13. caution: good belly juice NOT gluten-free.

    I'm confused. You had barley malt in your probiotic juice? You mustnot have barley malt on a gluten free diet, this wouldnot make it agluten free diet. Sorry if I've misunderstood you.
  14. caution: good belly juice NOT gluten-free.

    I think it is more likely to be the opposite. I have diabetes as well as coeliac disease and due to my diet I find that I get glucose lows quite a bit and need to test my glucose before driving, to make sure it doesn't go too low. However, this might not be the same for everyone, but it is something to take into consideration, for exampleI personally cannot tolerate dairy produce, and dairy can slow down the rate of absorption.
  15. caution: good belly juice NOT gluten-free.

    Just a thought, but maybe the mixture was high in sugar. If you have a lot of sugar, no matter what the source of it was, it can make your blood glucose skyrocket. You said you only added a little whey protein mix, maybe by adding a bit more or just adding some yogurt to the mix, itwould have slowed down how quickly your body processed the juice. If you can't/don't eat gluten for what ever reason, your body processes your foods at a different speed to those who can/do eat gluten. Also, have you ever had a glucose tolerance test? (This is how they find out if you have diabetes).