This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Hi, I know the feeling! I've been like this again for a few months - I've been gluten free for a few years now, but have recently had problems again. I'm pretty sure I haven't had any gluten, but a, keeping a food diary to see if any other food intolerances have come to light. So far the suspects are yeast and soya (I am already dairy intolerant). It might be worth while to keep a food diary too, make sure you write down everything you eat and drink (and the brand names, if any), write down any symptoms you experience after each meal etc.
I agree with Cyclinglady though, with what she has said. Hope you get some answers soon.
Most definitely keep off the wheat/gluten, it's so not worth it. Good luck with the other implant. It will take a few months before the supplements start to work, so don't feel despondent if it doesn't help right away.
Having recently given up eating meat. I was pleased to find at the Christmas holidays that a lot of Quorn products were gluten free, I even had some for Christmas dinner. Over the next few weeks I noticed I was having a lot of stomach cramps, and wondered if I had eaten any gluten by mistake. This has gone on intermittently for about 3 weeks. Then on Monday, I felt extremely unwell about 45 minutes after eating Quorn (which I understand is now available in the States - I'm from the UK). It was then that the penny dropped, and that it was every time I'd eaten Quorn. The symptoms I had were very similar to being 'glutened', cramps, extreme nausea, constantly needing the bathroom, extreme fatigue etc., and I don't feel like I've fully got over it 4 days later. I have since found out, that some people can be allergic/intolerant to Quorn, I was also shocked to find it is derived from mold). I was wondering if it is more likely that someone may have a reaction if they are already coeliac. (With it being an auto-immune disease). The products I've eaten are clearly labelled "gluten free".
I asked a similar question years ago when I was first diagnosed with coeliac disease. I was unable to find anything though. All I do know is I was very ill, my symptoms had been diagnosed many years ago as IBS. It was decades later when I was walking with a stick because I was so weak I could barely walk. My muscles were weak even when sitting or lying down I felt shakey on the inside. (Like a bag of jello). I had blood work which found extremely low ferritin levels and general malnutrition. It was then that I underwent biopsies etc. It was a long drawn out process as I had already suspected coeliacs and had given up gluten (not realising that you need to be eating it to get a diagnosis - I'm older and wiser now.
I hope someone else on here can give you the information you need.
I agree with "Looking for answers" there is a lot of sugar in gluten free foods, there seems to be more substitute for sweet treats and deserts more than savoury. I am still intolerant to all dairy products after a few years of gluten free eating, but I was ill for a very long time before getting a diagnosis, so I'm presuming that it takes longer to totally heal.
You definitely need your own toaster, as crumbs will contaminate your bread if you use a toaster that a non-coeliac uses. You also need your own spread/butter, jams etc., to prevent cross-contamination. All these things will be explained to you if you contact Coeliac UK.
Hi, I'm also from the UK. The above links are very useful for newly diagnosed coeliacs but if you join Coeliac UK, you will also get a lot of help which is more relevant to UK and Europe. (e.g. Shopping for food and restaurants etc., as the laws have recently changed regarding food labelling and eating out in restaurants, fast food places and other things). Membership is free for the first six months after joining, to help you 'find your feet' so I would encourage you to contact them. Their phone number is 0333 332 2033 or you can contact them by their website www.coeliac.org.uk they even advise doctors on Coeliac disease.
You do need to cut out all gluten in order to get well; you could ask your doctor to refer you to a dietitian as well, they will help you with tips and advice. Good luck.
Hi, I had a similar problem to you. When they wanted to do a biopsy, I told the nurse at the clinic I had not been eating gluten long enough for the results to be accurate but she insisted that there was 'hidden' gluten in products and I was probably still having gluten. I told her I made everything from scratch and in no way was I having gluten. She went ahead and admitted me anyway, refusing to listen to what I was saying and as suspected (by myself) the result only showed boarder-line results. When I told my consultant what had happened, he realised straight away and booked me in for another one, and was told to eat gluten every day before the tests. (which was booked for 6 weeks ahead). I had been having problems for many years before this, so I had not just developed the disease so the damage was bieng done to my body, including malnutrition (I was extremely ill by that point). This time the results showed a lot of damage to the villi in the gut.
I am only telling you this because I would hate for you to have to go through an endoscopy only to get inaccurate results. Obviously, it is your choice whether you want to postpone and start eating gluten again, as I know how painful this is, but I felt it was only fair to warn you that you may not get an accurate result, regardless of the comments above, sadly, you may find it a waste of time, not to mention the discomfort of having to go through the procedure.
According to information I was supplied with when I was first diagnosed, the gluten in whiskey is removed in the distilling process, so it shouldn't be a problem. Is it possible you could have been contaminated from something else?
Hi! How were you tested for coeliac disease? If it was a blood test, they are not very reliable (and you may still have coeliac disease - although you need to be eating gluten for at least 6 weeks on a daily basis for you to get a reliable result. The best way of getting checked is by having a biopsy.
Not everyone feels better overnight. Some people that have had problems for years and then go gluten free, a lot of damage has already been done, so it makes sense that it takes longer to improve their health. In the case of coeliacs, which may or may not be the same for you, damage is done not only to the gut, but other areas are affected, for example, anaemia, malabsorption of nutrients, hair loss, bone thinning, muscle weakness etc., and these things don't disappear overnight.
I found my gut problems improved, but also had withdrawal symptoms, including vomiting after meals.
Everyone is different and you can't compare yourself with others. Carry on with your gluten free eating plan as things should settle down eventually.
When you say the stock contained glutamate, do you mean monosodiumglutamate (MSG?) because that usually is derived from wheat and not suitable for a gluten free diet.
Also, if you have not been on a gluten free diet for long, it could just be your body detoxing. When I first went gluten free I felt great but then every week or so I would throw up everything I ate at dinner. Eventually this stopped happening, I believe my body was going through a detox at the time.
I agree with the comments made above. You need to take coeliac disease seriously and cut out all wheat and gluten, as well as avoiding all cross contamination of gluten etc too. The way you'd phrased the questions, I get the feeling that you had already given these issues serious thought and that you just wanted someone to confirm what you'd been thinking. It can seem a little daunting when you are first diagnosed; I think you just need a little time to get your head round it.
It took a few months for my body to settle down after giving up gluten and wheat. It won't be an overnight miracle; think of all the damage that the gluten has done to your body over time, so it may take a while before you start to feel anywhere near 'normal'. I found that my body went into detox mode after giving up gluten and wheat, and that can take its time to resolve itself.
We are all different though, so bear this in mind. I was also like you, I was malnourished after all the years of not absorbing vitamins and minerals. My ferritin levels were rock bottom and I was so weak, I had to walk with the aid of a stick. Don't be too disheartened, you are just starting out, the good thing is, you've had your condition diagnosed, now give your body a little time to heal.