Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

16 Good


About flowerqueen

  • Rank
    Advanced Community Member
  1. Weird Reaction

    Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'.
  2. Weird Reaction

    Hi Richie, I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid. There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease. (Our labelling laws in the UK changed a couple of years ago). You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts. I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time. (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though, have you checked the ingredients to see if there could be anything else in it which you may be intolerant to?
  3. Hi Moff, 'Three months in, is still early days, your body may just be withdrawing from gluten (which can cause symptoms) or you may be intolerant to something else. I have been having stomach cramps, not just at night though, and an urgency to rush to the bathroom after eating. I have been gluten free for about 4 years now, and I have started to react badly to other foods. My latest have been soya and xanthan gum, I'm still playing detective to see if there are other food intolerances. Hope you get somewhere with your dietitian, let us know what they say.
  4. Condition worse than before

    Hi Nelly, I have to agree with Cycling Lady, you need a follow up, to see how you are healing. Most people that have had an endoscopy to get a diagnosis get a follow up one about a year later. I notice you didn't get one. If you have had coeliac disease for a long time, it is going to take longer for your health to be restored. I also think it's possible that you could have another auto-immune disease; with coeliac disease, (which is itself an auto-immune disease)there is an increased chance of you developing another. Maybe for the time being, you could stop visiting the gym, you need all your energy reserves for getting better, you need to be kind to yourself. It's good you are taking supplements (have you double checked that they are totally gluten free?) You are certainly not alone in developing other food intolerances, I for one have developed food intolerances since my diagnosis, including soy and now possibly xantham gum, which seems to be in a lot of gluten free foods, as it acts as a binder, to replace gluten. (Some of my food intolerances started before diagnosis, like dairy, for example). Keep a food diary, write everything down you eat and drink and any symptoms you experience afterwards, but do go back to your doctor for further investigation. Take care and hope you feel better soon.
  5. caution: good belly juice NOT gluten-free.

    I'm confused. You had barley malt in your probiotic juice? You mustnot have barley malt on a gluten free diet, this wouldnot make it agluten free diet. Sorry if I've misunderstood you.
  6. caution: good belly juice NOT gluten-free.

    I think it is more likely to be the opposite. I have diabetes as well as coeliac disease and due to my diet I find that I get glucose lows quite a bit and need to test my glucose before driving, to make sure it doesn't go too low. However, this might not be the same for everyone, but it is something to take into consideration, for exampleI personally cannot tolerate dairy produce, and dairy can slow down the rate of absorption.
  7. caution: good belly juice NOT gluten-free.

    Just a thought, but maybe the mixture was high in sugar. If you have a lot of sugar, no matter what the source of it was, it can make your blood glucose skyrocket. You said you only added a little whey protein mix, maybe by adding a bit more or just adding some yogurt to the mix, itwould have slowed down how quickly your body processed the juice. If you can't/don't eat gluten for what ever reason, your body processes your foods at a different speed to those who can/do eat gluten. Also, have you ever had a glucose tolerance test? (This is how they find out if you have diabetes).
  8. Other food intolerances

    Hi Cyclinglady, I've just watched the lecture in your link. I agree it is fascinating, the mind boggles as to where this is all leading. I take acidophilus on a regular basis, but judging by what was said in the lecture, we all need it tailoring to our specific needs and genes. I recently read a book on microbiology and this was equally interesting, it's called Missing Microbes by Martin Blaser (a doctor and scientist) hetalks of how killing bacteria creates modern plagues. Ibelieve Dr Blaser was one of the earlier discoverers of the effects of removing 'good bacteria'.
  9. Other food intolerances

    AHi Cyclinglady, ayear after my diagnosis, I had another endoscopy and there was no damage and theywere quite happy all was healing. I agree though, that otherbiopsies need to be taken, and cannot rely on blood tests alone.My blood tests weren't positive any way, only the biopsies.
  10. Other food intolerances

    It sounds like we all have different intolerances though, so not sure how this would work. I'd be interested in the opinion of others though.
  11. Other food intolerances

    Thanks Cristiana, I will look for it on BBC iplayer as I've only just read your post. I try wherever possible to make meals from scratch, like you say, as that way Ican control what goes into myfood. It's not difficult to see why so many people have food allergies/intolerances these days.
  12. Other food intolerances

    Hi Fergus, Thanks for your input. I pretty much make everything from scratch these days too, as Iagree with you about processed foods. Idon't eat take away foods either, as it's almost impossible trying to find one that excludes all the things I'm intolerant to as well as being gluten free and wheat free. Like you say, most gluten free processedfoods contain large quantities of sugar, so it doesn't make for a healthy diet.
  13. Other food intolerances

    Hi Jonathan, I know what you mean when you say you want your old life back. I feel that way too. I almost forgot, I can't tolerate quinoa as well. I found some interesting facts on the internet regarding quinoa, it saidthat the protein in it can cause a similar immune response as gluten in some coeliacs. It's really odd that it isn't the same for all coeliacs though. (A bit like oats.) You make a very interesting point regarding high homocysteine levels! I will definitely look into this. It's particularly important if we want to reduce our risk of heart disease! I usually take vitamin B too, except with all the confusion I stopped taking them the other day, as I suspected them being a culprit of some of the symptoms, but I guess it was due to other things instead. (It's all turning into a mine field of pitfalls.) I wish you luck in your quest for some semblance of normality.
  14. Other food intolerances

    Thanks for the info Icelandgirl. It sounds like there are more people than I originally thought, with the same problems and frustrations that I'm going through. It's such a pain as there are so many foods that need eliminating, which begs the question, what on earth is there left to eat? It's hard to eliminate these foods and replace them with others and still get the rightnutrition. I take a lot of supplements to try and rectify this.
  15. Other food intolerances

    Thanks Lorri, Inwill take a look at that