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flowerqueen last won the day on May 1

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  1. I agree with Chocominties, eating 4/5 bars of chocolate is enough to cause your symptoms, even if you don't have coeliac disease. One thing that puzzles me, why are you eating gluten free if you are still waiting for a colonoscopy? You need to be eating gluten a regular basis (daily) until after your colonoscopy because your body will not produce the antibodies when not exposed to gluten.
  2. I can't say I've heard of these, but as already has been said, if they're gluten free, it's worth a try. I'm interested in the fact you have cramping though. I had the same thing after being gluten free for a while, and it turned out I had become intolerant to soya (I was already having a problem with dairy), this worked for a while then had more problems, I kept a food diary and by process of elimination found I couldn't tolerate mustard, xanthan gum and E464 (which is a type of cellulose) and a big problem with Quorn (having become vegan). Perhaps you could use a food diary too, to see what is causing the problem, instead of masking it with tablets.
  3. I also agree with what's been said, but I would not under any circumstances use a wooden spoon, as they are porous and would absorb any gluten, for example, in washing up water that may possibly have glutened pots/pans in and also definitely not a wooden cutting board. The tin foil is good advice too, I would cover up any gluten free food up with it before putting in the oven, as you never know if any gluten has touched the top of the oven and then when heated, may drop down into your food - no matter how carefully you wash the top of the oven, things can be missed.
  4. You are right Dania, you cannot have "mild Coeliac disease and you cannot eat "a bit of gluten here and there" if you've been gluten free for a while. Coeliac disease is a lifetime commitment to being gluten free, even if you don't have symptoms, it is still damaging the villi in the gut, which can lead to more serious health problems, (not that Coeliac disease is not serious, because it is). Some people may question whether it is safe to use the same colander as those cooking gluten, but it depends how well it is washed up as it is quite easy to miss bits. Personally, I bought a new one and I would definitely not use the same sieve as the mesh is far too tight not to collect small amounts of gluten. I'm not too surprised at doctors not knowing all they should know about Coeliac disease, it's the same here in the UK where Coeliac UK actually advise doctors on the disease.
  5. I have to agree with Gemini, you must not go gluten free until you've had an endoscopy with biopsies (first you get the blood work done, then you get your confirmation by a follow-up endoscopy), it's the reaction to the gluten that creates the antibodies' you won't get that reaction if you don't eat gluten. It might seem inconvenient, but in the long run it will be worth it.
  6. Hi Kam, I'm sorry you are having problems, but unfortunately I think you will find that when you finally get to see the consultant, they will probably want to do an endoscopy to confirm you have coeliacs, which will involve you eating gluten for at least six weeks, prior to the test. (Most people don't give up gluten until after this stage - did your doctor tell you to start a gluten free diet? As for you still having symptoms, it may be that your body is still de-toxing, as it can take sometime. Is it possible for your doctor to get you in to see a consultant at another hospital? _ as the NHS usually have more than one hospital to chose from for you to get seen at. Another point I'd like to make is that you may also have food intolerances, for example diary/soya etc., or your symptoms maybe caused by something else. I hope your doctor manages to get you seen by someone soon.
  7. Hi Kam, I second everything that Cyclinglady has told you, but just to let you know that I be me intolerant to dairy before my diagnosis for coeliac disease. The 2npositive tests, were they both blood tests or one blood test and one endoscopy? If you are waiting to see them in the Endocsopy department, I think they will want to do one if you haven't had one already and in order to do this and get the correct result, you must eat gluten for at least 6 weeks before you can have the test done, because it is the gluten that causes the auto-immune result. I too have a thyroid disorder, which was diagnosed long before I had been diagnosed with coeliacs disease. Also a couple of years after diagnosis I became intolerant to soya and xanthan gum and E464 (hydroxypropl methyl cellulose) which is quite often found in gluten free baking produce, including bread. A food diary is a good start, which has also been suggested, but don't jump the gun if you haven't had an endoscopy with biopsies yet. It is still possible to carry on with gluten free and dairy free diet if you are vegetarian, but it makes it a little harder and don't forget dairy free milk is usually fortified with vitamins and minerals.
  8. Hi CeliacMommaX2, 'Yes, you must treat oats like wheat in a situation where gluten free oats cause the same response. I would also not use pots or pans for your daughter, that you have cooked oats in, as there is always a chance that there are traces left in the pans after washing up. It's better safe than sorry.
  9. Yes, I was about to say the same as others here. The thing is, even if the oats are certified as gluten free, in a minority of coeliacs, oats cause the same auto-immune response as gluten ALSO a word of warning here, quinoa can also cause the same auto-immune response, so you might want to tread carefully in that direction as well.
  10. 'I would take a look at this before you embark on a GAP diet. Listen to your 'inner voice' you are probably anxious about going on it for a reason! I certainly would not try the diet.
  11. I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough. I have also become intolerant to xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff. Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her. I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
  12. It could be either to be honest. I'm suffering the same thing just now. Got glutened a few days into April, and still having symptoms. I've started a food diary again, to see if it's anything else causing the problem. Maybe you could also do this(?) then read through every ingredient to see what's in everything. I've recently started having problems with soya and xanthan gum as well as my pre-diagnosis intolerances. You have to act as detective most of the time. Hope this helps you.
  13. Good luck at the doctors. Let us know how you get on.
  14. I'm afraid to say I don't really think it is normal Richie, but I do recognise the shakiness and nausea you speak of, as I've been there. (Pre-diagnosis), my shakiness was so bad, my muscles were very weak and couldn't walk without the aid of a walking stick, my ferritin levels were so very, very low and had to take iron tablet every day for months. My hair was falling out, I had really bad digestional issues, amongst other things. I think you should lay off the coffee and the barley drink and all gluten/wheat, because until you do, your body is not going to repair itself properly. Damage is done to the gut even if you don't have gastrointestinal issues, as not all coeliacs have symptoms, but the damage is still being done to the gut, which in turn can cause osteoporosis, other auto-immune diseases and also cancer. If you ever get a test for coeliac disease, you need to be eating gluten/wheat for at least 6 weeks on a daily basis in order for it to set of the immune response in your body, which will cause a positive result. (Blood tests are less reliable than endoscopy with biopsies - bare this in mind). You may decide of course not to have a test for coeliacs because of how ill it could make you feel by eating gluten etc. In which case, you need to avoid all gluten and wheat forever! (By the way another symptom of coeliac disease is dairy/lactose intolerance- which could be causing your nausea). Sorry to be blunt, but you need to know the dangers and there's no point in sugar coating it. What is your fasting blood test for?
  15. Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually). Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.