This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It took a few months for my body to settle down after giving up gluten and wheat. It won't be an overnight miracle; think of all the damage that the gluten has done to your body over time, so it may take a while before you start to feel anywhere near 'normal'. I found that my body went into detox mode after giving up gluten and wheat, and that can take its time to resolve itself.
We are all different though, so bear this in mind. I was also like you, I was malnourished after all the years of not absorbing vitamins and minerals. My ferritin levels were rock bottom and I was so weak, I had to walk with the aid of a stick. Don't be too disheartened, you are just starting out, the good thing is, you've had your condition diagnosed, now give your body a little time to heal.
Last week I did my usual root touch up with a water soluble hair dye; but in the mixing process I accidentally spilled it and I accidentally inhaled the powder. Later that day I noticed the familiar gluten contamination symptoms. Feeling sick, stomach cramps, extra trips to the bathroom. I am wondering whether there was any wheat derivatives in the hair dye. (I am still suffering).
In the past I have had gluten contamination through eye drops and eye ointment that has drained into my stomach, so I am presuming this has happened through the hair dye. Has anyone else had these kind of problems?
What stood out from your post, was the fact you are eating Quinoa. For all it is supposed to be gluten free - technically. It can actually mimics the protein found in wheat and gluten and some coeliacs can't actually eat it, as it makes them suffer the same symptoms as when consuming gluten/wheat. This happened to me and I stumbled up information on the Internet by pure fluke and was able to eliminate it within a week of consuming it, it took more than a week before I improved though. Obviously, it may not be the same for you, but I suggest you take it out of your diet and see if you get any improvement.
Other than that, I would keep a food diary, and write down everything you eat and drink (at the time of eating it, not later in the day, as it is easy to forget things). Hope this helps.
One last thing, dairy intolerances can also cause similar symptoms to what you have described- I can't consume any dairy products.
Whilst I had bad symptoms before being diagnosed, I also had problems for a while after giving up gluten. It is the body's way of detoxing from what it perceives as poison (which it is to people with coeliac disease). Hang on in there, it will improve soon. I believe that it can effect any part of the body including the skin, as after all, it is the largest organ of the body.
That is extreme! We get our groceries delivered to the door and we get the gluten free stuff packed in with the gluten things all the time. If I rang up and asked them not to do that they would think I was a sandwich short of a full picnic
I agree with the other comments, it's only a week! Do you not eat the same meals? If I prepare a meal when family stay, everyone eats the same thing (and if anyone staying has an allergy I always respect that and cater for their needs). I would feel terrible if I'd made someone else ill through not catering for their intolerances or other dietary problem.
Last week I had some gluten free crackers that were made with quinoa (from my local health store) I have been in pain ever since, it took me a couple of days to work out what was making me ill. By that time, I had eaten them 3 days in a row. I have had terrible stomach cramps etc. When I read an article about the protein in quinoa mimicking the protein found in wheat, barley and rye I was astounded that it can be classed as safe for Coeliacs to eat. I know a few people have said they don't have a problem with quinoa, but it may be they don't have symptoms, but it still maybe damaging their gut.
I can understand that. I have found that I need to take supplements all the time, as I don't absorb enough if certain vitamins and minerals. Before you get pregnant you should get all the levels checked, and take your doctor's advice on which supplements you can take whilst pregnant.
Mine used to be low too. How long have you had celiac disease? It can take a while to build yourself up again from a host of deficiencies (vitamins and minerals). I wouldn't advise a tanning bed, these carry their own health risks without adding to what you have already. Supplements are a much safer alternative.
So I'm now a member of the wonky blood test results brigade . I will be speaking to my doctor on Monday, so hopefully I will find out then if it's the same as elevated blood protein.
It seems we all learn from each other when we pool our resources. I would have hoped that by now though, my test results would have improved, being diagnosed in November 2011, but there again, it might be that I was misdiagnosed with IBS in 1983 and my gut has not fully repaired. All in all, the posts on this thread are quite enlightening.
Hi Cristiana, I don't recall having elevated protein levels, (or not that I've been told), but have had other abnormal results, one in particular is liver enzymes (waiting for an appointment with doctor as I write this).
Gemini, where did you go in Britain? In my neck of the woods, there's not many that specialise in gluten free
I wish I had the answer to this and hope someone on here is able to throw some light on it. I also feel the same way about the blood tests and am always apprehensive while waiting for results. The tests they carry out in UK seem different to the ones in US, I don't know whether it's because we call them something different or what.
Hi, I would just like to add to what cyclinglady has said, as she's pretty much covered everything:
You said you were feeling much better after a week of not eating gluten, but not 100%. When I came off gluten, I started to feel better gradually, not overnight, in fact, I went through a detox phase, which brought on vomiting bouts etc., for a few months until all the gluten was finally out of my body. So don't expect to feel fantastic straight away. Obviously everyone is different, so that isn't to say that you will have the same issues that I have had.
I can understand you not wanting an endoscopy, but they are not that bad, and you would find out how much damage has been caused to your gut by having one. At the end of the day, it's your call, but if you decide on an endoscopy, you need to eat gluten for at least 6 weeks before it is done. Good luck.
Last year I read a book which was all about the dangers of hidden gluten within food, things you would not necessarily associate with gluten. One of them was blue cheese! It said, apparently, the wires that are placed within the cheese to make it blue, can be coated in flour, to stop the wires sticking to the change.
Regarding the lactose intolerance. It was this that first alerted my doctor to the fact I may have coeliac disease. (Which was later confirmed by biopsy). I thought that once my gut settled down I may be able to eat cheeses and yogurt with the lactose taken out, but it turned out to be all dairy that I was intolerant to, not just the lactose. My dietitian had recommended I tried eating some to find out, and within 30 mins of eating a spoonful of yogurt my stomach blew right up, along with the other usual symptoms following on later.