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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About RonSchon

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    • Birthday 10/11/1965

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    1. RonSchon added a post in a topic My Frustration Level Is At An All Time High   

      Just an update....

      Another thing from the short food list is now on the long list of things I can't have...

      Ocean Spray (as well as every store knockoff brand) CranApple switched from HFCS to Cane Sugar.

      I was totally getting reactions from Hansens All Natural Cane Soda, and thought it must be the natural flavors or caramel coloring.

      I've drank Ocean Spray with no problem for 25 years, the change to Cane Sugar was just recently and that an immediate poison to me.

      After the Ocean Spray got me, and I saw the cane sugar on the ingredient list I searched on cane sugar intolerance and found a plethora of sites discussing this. Evidently cane sugar is very similar to wheat.

      Slowly I'm getting a good definition of all of the things besides gluten that affect me.

      I checked the website "LabelWatch" for Ocean Spray and they still listed them all as HFCS, when in fact they are all now Cane. I sent them an email about the change but they never responded.
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    2. RonSchon added a post in a topic Am I Re-Glutening Myself With Something Every Day Or Is This A Super Long Glutening?   


      Yes, I will hope to one day be tolerant of more things.

      Life can only be understood backwards, unfortunately it is lived in forward....

      I think that what may have happened when I took all things gluten from my diet, I ended up overloading myself on other things - like the lectins (GottaSki has been a great educator for me as her experience has been similar to what I'm experiencing).

      Right at first, eggs and cheese and milk and potatoes were fine for me. It took almost a month before I started reacting to them.

      The first few times I reacted to them, I was dining out and blaming CC for the reaction.

      The diary is key. It lets you play back your last ingestions and single out possible culprits.

      It is important to figure out what your core food can be. You may have to narrow that core as you go.

      For me, I don't know how I'll go about bringing things back. This is a challenge I didn't know I would have to be up for a few months ago.
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    3. RonSchon added a post in a topic Am I Re-Glutening Myself With Something Every Day Or Is This A Super Long Glutening?   


      What I found with my own body, once I was clean of gluten I felt amazing. That was short lived. I next found that potatoes gave me all of the symptoms of gluten. Removing them helped, but a few days later I was coming up with symptoms. I removed cheese, that seemed to help marginally. Then I removed my beloved frothy latte and I again started getting better.

      Right now I'm eating only a few root vegetables and meat. This is all I can eat to maintain any kind of good feeling. My biggest complaint is drinks - many drinks affect me such as soda pops and gatorade. I am even a little suspicious of cranberry juice if I have more that just a few ounces. Luckily plain coffee is still working for me.

      I don't know if this helps you at all, but it kind of confirms what you are going through I guess.
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    4. RonSchon added a post in a topic Taco Bell?   

      You didn't mention if they affected you?
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    5. RonSchon added a post in a topic Am I Re-Glutening Myself With Something Every Day Or Is This A Super Long Glutening?   

      What I found when I removed all gluten was that several other things affected me with all of the similar symptoms.

      That has led me down a road of discovering many of the things that provoke symptoms are "histimines".

      The emotional roller coaster is the worst.
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    6. RonSchon added a post in a topic It's Only 9:30...and I've Already Run To The Bathroom 3 Times!   

      I have issues like that when I have an unexpected glutening - or in my case, one of the several other things that now affect me in similar fashions as gluten (dairy, histimines).

      Are you gluten intolerant/celiac, or are you gluten free for general health reasons?

      Is it possible you unintentionally had gluten or cross contact?
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    7. RonSchon added a post in a topic My Frustration Level Is At An All Time High   

      If you haven't tried the Applegate Organic Grass Fed beef hot dogs, I highly recommend them... They are pretty unbelievable for a hot dog...

      ingredients: Organic Grass-Fed Beef, Water. Contains Less Than 2% Of The Following: Sea Salt, Organic Spices, Organic Dehydrated Garlic, Organic Dehydrated Onion, Organic Paprika, Celery Powder.
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    8. RonSchon added a post in a topic My Frustration Level Is At An All Time High   

      Wanna take a look?
      I hope you can get this sorted out. It sure is tough...

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    9. RonSchon added a post in a topic My Frustration Level Is At An All Time High   


      You have hit on several items that "out of the blue" just started affecting me.

      It all started on a post i did several weeks back where I thought I was CC'd, but I wasn't - it was the french fries. I figured that out several days later when I made a baked potato at home - no CC possibility - but I did put ground black pepper on it. When I balanced my experience at a couple of restaurants and the baked potato from home, the only thing all 3 experiences had was potato (one of the places didn't have any pepper involved with the food or fries).

      I haven't tried buckwheat, but potatoes and bananas I am completely sure are causing me all of the symptoms that gluten causes for me.


      Yes - no shared anything. My own fridge, even. My vitamin levels are fine - I've checked them through 2 blood tests in the last 10 months.

      I would love to take a multivitamin, but I've had so many reactions from them over the years (before gluten was a known issue for me), that I try not to take the MV's. I have been thinking of trying one again for the obvious reason of how limited my intake has become. I was all giddy when I was able to take a sublingual B-12 and actually realize the kick, but that was short lived as B12 is now instantly bringing on gout. If I take one tab, I have gout within 4 hours. I take a vitamin C, gluten-free, and probably only take one 3 times a week.

      I'm perplexed, and have spent so much money on Dr's with no results.
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    10. RonSchon added a post in a topic My Frustration Level Is At An All Time High   

      Thanks for the response, IrishHeart.

      I haven't eaten out since that post of many weeks ago.

      Since then, I have eaten ONLY steamed, unseasoned, broccoli & cauliflower, fresh unseasoned beef, chicken, and pork, and Applegate organic, grass-fed beef hot dogs that are labeled as gluten-free, as well as casein free, Ocean Spray Cranapple juice, in addition to water.

      I have an incredibly small possibility of CC. I have my own cooking utensils, dishes, and flatware. My roommate uses the kitchen almost not at all - but when he does he is respectful of my space.

      Out of the blue, last week, I suddenly was getting symptoms from my daily latte made with 3 ounces of whole milk. I cut that out and recovered. Since cutting that out last Friday I have been back on track until yesterday when I had a banana and my body reacted as if I'd eaten a gluten pizza.

      My reaction was just what I listed - brain/vision fog, severe joint pain, very tired, bloat, constipation. In the research I did last night, I noticed the list that you mention - I'm not having those symptoms.

      That is my frustration, I guess, I am very confident that there is not a possibility of gluten contact, yet my reaction (in a very very limited diet)is in line with a gluten contact.
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    11. RonSchon added a topic in Celiac Disease - Coping With   

      My Frustration Level Is At An All Time High
      I have no idea how I can go forward.

      I'm eating almost nothing, and came up poisoned by something.

      Since I'm only eating about 4 things, the one thing that seems most logical since I don't have it every day would have been the banana I had.

      When I was in deep fog and pain over the rest of yesterday, I totally forgot I ate one, but last night I remembered that I did eat a banana.

      So I google'd banana intolerance and came up with this whole "histamine" class of food that I had no idea even existed.

      When I look at the list of foods - many of them are things I have known I was intolerant of - this is the first time I've ever had a problem with a banana.

      My reaction to the banana was the same as my reaction to gluten - brain/vision fog, severe joint pain, very tired, bloat, constipation.

      I had an allergy test about a month ago - in that test I was pricked for about 40 food items. Non-reactive to all of them, and many on the list are on the histamine "avoid" lists.

      I don't know what to do with this new issue.

      I read some posts that suggest my intestinal system could recover and these foods might become tolerable once again.

      I don't know what bothers me more, just being poisoned again or having another full set of items I have to avoid.
      • 27 replies
    12. RonSchon added a post in a topic Books On Gluten Free Product   

      A book might be a challenge for specific branded products due to ingredient changes that happen frequently.
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    13. RonSchon added a post in a topic Domino's In Leesburg, Virginia   


      It is great to hear about your super positive experience.

      It is always refreshing to hear about businesses that execute effectively.

      I know how painful the CC's are for me to deal with, I can only imagine how hard it must be to watch it poison your daughter.
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    14. RonSchon added a post in a topic Probiodics   

      I don't know, but I had to chime in on probiotics.... Today, for the 3rd time, the capsule popped before the pill pushed through the foil wrap (culturelle).

      That is a ridiculous way to package something so expensive. I'm as careful as I can be, but if the foil doesn't break I have to push harder.

      I'm going to start looking for a probiotic that doesn't have such a product loss factor.
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    15. RonSchon added a post in a topic Rudi's Expiration Date Question?   

      Many places/company's go as far as to say "Use/Freeze Date", meaning use it or freeze it by that date.
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