Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Advanced Members
    • Content count

    • Joined

    • Last visited

    Community Reputation

    3 Neutral

    1 Follower

    About heathenly

    • Rank
      Community Member

    heathenly's Activity

    1. heathenly added a topic in Celiac Disease - Coping With   

      Please Cancel My Optimism
      I started out optimistic and positive about eating gluten-free, based on the immediate and significant benefits I received once I stopped eating it. Even though I didn't test positive for Celiac (which made all of my gluten-eating friends happy, because they thought I could cheat once in a while with no long-term repercussion), I have never caved to temptation to eat even a little gluten. I thought being so conscientious and well-behaved would translate into feeling better. That hasn't happened like I thought it would. Now, I just feel hopeless and frustrated.

      Whole foods: Kinda expensive, huh? I'm doing my best, but the cost of food is killing me and I'm running out of both food and food money before payday.

      Accidental glutening: no good dietary deed goes unpunished, it seems. No matter how conscious I am with food choices, I seem to have a small but miserable reaction almost on a weekly basis, and I can't pinpoint what I ate that secretly contained gluten (or something else I'm sensitive to?). Frustrating.

      More food sensitivities: I can't help but notice that dairy and possibly corn seems to be a problem. I want to stay in denial so that I have more foods to choose from, but... yeah. The thought of having to limit my diet further makes me want to go lie down in a busy street.

      Food paranoia: it's exhausting. I don't feel I can trust anything I eat anymore. Even/especially items labeled "gluten-free."

      Sigh. What I would give for those carefree days when I could eat anything prepared anywhere...


      One cute thing: When I prepare a sandwich for my eight year old, she reminds me to wash the gluten off my hands.
      • 4 replies
    2. heathenly added a post in a topic Celiac Tests Negative.   

      My doctor at least believes in gluten sensitivity, so he told me not to eat gluten if I do better off of it. Truthfully, even if he thought sensitivity/intolerance was bunk, I wouldn't care. I wouldn't eat gluten again if someone paid me.
      • 0
    3. heathenly added a post in a topic Celiac Tests Negative.   

      I have to keep in mind how miserable I was eating gluten. It was so not worth it. I also don't want to test the theory that gluten intolerance is "pre-Celiac"-- don't want to have full-blown Celiac down the road.

      KMM, I think it really helped me to get rid of everything with gluten in my house. No temptation to eat anything with gluten. Also, it helped me to tell all my friends and family-- they're very vigilant on my behalf. If they see me eating something that looks like it has gluten, they jump in. I'm never eating gluten, but I'm glad that they're aware. If I ever did intentionally eat gluten, I'd have some 'splaining to do.
      • 0
    4. heathenly added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Celiac Tests Negative.
      Guess I'll just keep on not eating gluten and feeling better!
      • 9 replies
    5. heathenly added a post in a topic Stupid Family   

      I understand why it bothers you, believe me. There's not a whole lot of wiggle room with apathy and abject despair.

      And there are so many doctors out there that just aren't helping.
      • 0
    6. heathenly added a post in a topic How Many Do Whole Foods Only?   

      Preaching to the choir. I'm just under 5' tall. My 15 lb weight gain has been devastating.

      But cutting out wine?? Don't get carried away!
      • 1
    7. heathenly added a post in a topic Being A Girl Sucks   

      I'm really hoping that a good chunk of time without gluten will straighten my PMS and periods out some.

      Another bad side effect of PMS: insane gluten craving. I had to drive halfway across town today to the only gluten-free bakery to get a freaking chocolate cupcake.
      • 0
    8. heathenly added a post in a topic Nervous About What To Say When Ordering   

      I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...

      But I think I'll be sticking with "wheat allergy," because I have noticed how few people know what gluten is or where it comes from.
      • 0
    9. heathenly added a post in a topic Stupid Family   

      I hear ya. I think others in my family may have gluten issues to go along with their other autoimmune issues, but the only one who has any interest in my observations is my son, who has Crohn's. The rest are, oh, how interesting, but I don't think that's MY problem. And thanks for those articles you sent me, but I didn't have time to read them.

      The worst thing about depression, from personal experience, is the hopelessness. The disbelief that ANYTHING (much less something as simple as a change in diet) could REALLY help. And the frustration with people who offer solutions, no matter how much their heart is in the right place. It's really just easier to wallow in misery than to try to find a way out or consider options that may help. Depression is so exhausting, it often seems that all one has the energy to do is be depressed. And when you're depressed, you do sense that people are frustrated with you. And then you reflect that right back onto them. So, I do get that apathy and prickliness. And it's also hard to be on the other end, just trying to help. And it's a whole lot of that old adage about leading a horse to water.
      • 0
    10. heathenly added a post in a topic Going Gluten Free...welcome Day 40!   

      I'm a week in-- can't wait for 40 days! Congrats on the new you.
      • 0
    11. heathenly added a post in a topic 1 Wk. Gluten-Free: Lack Of Appetite Normal?   

      Nope. Feel great. Just waiting for that increased energy that I had last time I went gluten-free.
      • 0
    12. heathenly added a post in a topic Calling All Cat Owners   

      Hahahaha! I bet!
      • 0
    13. heathenly added a post in a topic Calling All Cat Owners   

      Your visit is probably over, but: Zyrtec. The only one that ever worked for my cat allergy. Hope you survived!
      • 0
    14. heathenly added a post in a topic No Appetite   

      How weird-- I just posted this same topic in the "coping" forum. I'm one week gluten-free too, and have no appetite. In my case, I figured out the gluten issue because I was uncharacteristically eating ravenously, so I have a little gluten weight to lose. But I'm not used to having no appetite.
      • 0
    15. heathenly added a post in a topic 1 Wk. Gluten-Free: Lack Of Appetite Normal?   

      That sounds like something I can handle! I have to stop waiting until I get shaky before I eat something...
      • 0

    Ads by Google: