This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I started out optimistic and positive about eating gluten-free, based on the immediate and significant benefits I received once I stopped eating it. Even though I didn't test positive for Celiac (which made all of my gluten-eating friends happy, because they thought I could cheat once in a while with no long-term repercussion), I have never caved to temptation to eat even a little gluten. I thought being so conscientious and well-behaved would translate into feeling better. That hasn't happened like I thought it would. Now, I just feel hopeless and frustrated.
Whole foods: Kinda expensive, huh? I'm doing my best, but the cost of food is killing me and I'm running out of both food and food money before payday.
Accidental glutening: no good dietary deed goes unpunished, it seems. No matter how conscious I am with food choices, I seem to have a small but miserable reaction almost on a weekly basis, and I can't pinpoint what I ate that secretly contained gluten (or something else I'm sensitive to?). Frustrating.
More food sensitivities: I can't help but notice that dairy and possibly corn seems to be a problem. I want to stay in denial so that I have more foods to choose from, but... yeah. The thought of having to limit my diet further makes me want to go lie down in a busy street.
Food paranoia: it's exhausting. I don't feel I can trust anything I eat anymore. Even/especially items labeled "gluten-free."
Sigh. What I would give for those carefree days when I could eat anything prepared anywhere...
One cute thing: When I prepare a sandwich for my eight year old, she reminds me to wash the gluten off my hands.
My doctor at least believes in gluten sensitivity, so he told me not to eat gluten if I do better off of it. Truthfully, even if he thought sensitivity/intolerance was bunk, I wouldn't care. I wouldn't eat gluten again if someone paid me.
I have to keep in mind how miserable I was eating gluten. It was so not worth it. I also don't want to test the theory that gluten intolerance is "pre-Celiac"-- don't want to have full-blown Celiac down the road.
KMM, I think it really helped me to get rid of everything with gluten in my house. No temptation to eat anything with gluten. Also, it helped me to tell all my friends and family-- they're very vigilant on my behalf. If they see me eating something that looks like it has gluten, they jump in. I'm never eating gluten, but I'm glad that they're aware. If I ever did intentionally eat gluten, I'd have some 'splaining to do.
I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...
But I think I'll be sticking with "wheat allergy," because I have noticed how few people know what gluten is or where it comes from.
I hear ya. I think others in my family may have gluten issues to go along with their other autoimmune issues, but the only one who has any interest in my observations is my son, who has Crohn's. The rest are, oh, how interesting, but I don't think that's MY problem. And thanks for those articles you sent me, but I didn't have time to read them.
The worst thing about depression, from personal experience, is the hopelessness. The disbelief that ANYTHING (much less something as simple as a change in diet) could REALLY help. And the frustration with people who offer solutions, no matter how much their heart is in the right place. It's really just easier to wallow in misery than to try to find a way out or consider options that may help. Depression is so exhausting, it often seems that all one has the energy to do is be depressed. And when you're depressed, you do sense that people are frustrated with you. And then you reflect that right back onto them. So, I do get that apathy and prickliness. And it's also hard to be on the other end, just trying to help. And it's a whole lot of that old adage about leading a horse to water.
How weird-- I just posted this same topic in the "coping" forum. I'm one week gluten-free too, and have no appetite. In my case, I figured out the gluten issue because I was uncharacteristically eating ravenously, so I have a little gluten weight to lose. But I'm not used to having no appetite.