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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About PennyH

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    1. PennyH added a post in a topic Soy Lecithin...?   

      This was written in 2011 on the Livestrong website but raises concerns to me. Does anyone have any more info on this?

      Soy, or soya, lecithin is a gluten-free food because it is not made from wheat, rye or barley. While soy lecithin by itself does not contain gluten, additives to lecithin may contain gluten. Consumers must do their own research into ingredients and gluten content, which can sometimes be confusing.

      Read more:

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    2. PennyH added a post in a topic Dehydration   

      This forum is wonderful, just when you're feeling weird, you see others are having the same issues! I've been fighting dehydration for years. It makes me very tired and my lips and mouth are always very dry. I hope someone can chime in on the reason.
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    3. PennyH added a post in a topic Swollen Hands After Waking Up   

      When I wake up I can't even move my fingers they are so stiff and painful. It takes a few minutes to slowly limber them up. They are mostly pain free for the rest of the day but by the end of the day they are sore again. I've had this for almost a year and it's the same after 6 weeks of gluten-free diet. I have very painful feet as well. I'm looking for answers, too!
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    4. PennyH added a topic in Celiac Meeting Room   

      Gluten Free On Cape Cod?
      Is there anyone else out here on Cape Cod dealing with Celiac?
      • 0 replies
    5. PennyH added a post in a topic Kissing And Cross Contamination   

      Thank you for the support. This is tricky. I'm a mature woman finding myself back out in the dating world so there is a lot to discuss on first dates!
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    6. PennyH added a topic in Celiac Disease - Coping With   

      Kissing And Cross Contamination
      Kissing can gluten us?! I'n a newbie and just learning new things. My niece had been very sick after years of gluten-free relief. After much research, and then self testing, she figured out that when she kissed her boyfriend after he ate gluten the cross contamination would make her sick. I've also read this on the internet. This is scary news. I'm dating - how do I protect myself and communicate this without sounding like a crazy person? Bring my date a tooth brush with gluten free toothpaste??? Anyone else dealing with this? This gets overwhelming, I keep finding out more dangers. I'm new to this and I find I can only research a little bit each night without getting anxious.... friendly support out there?
      • 20 replies
    7. PennyH added a post in a topic Accidental Exposure   

      I'm five weeks into this and I am terrified to eat out! I've been sick for so many years I don't want to take any chances. Do you ever get over this fear? I recently learned that if you kiss someone who just ate gluten that that's cross contamination! My niece found that out the hard way with her boyfriend. She was sick for weeks before they figured it out. I'm single and can't even imagine how I deal with that on new dates. It's embarrassing enough to make the fuss to get a gluten-free meal..... yikes. anyone have advice? Penny
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    8. PennyH added a post in a topic Fibromyalgia And Chronic Pain - Anyone Else?   

      It's so good to hear that someone has had success with gluten-free and chronic pain. Your pain areas sound so much like mine. Going gluten-free is really my last hope right now. If I have full-blown Fibro AND Celiac, that will really through me. Here's hoping!
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    9. PennyH added a post in a topic Gluten Free Toothpaste   

      I was just on the Colgate web site and they don't guarantee that their products are gluten free....
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    10. PennyH added a post in a topic Fibromyalgia And Chronic Pain - Anyone Else?   

      You are wonderful to reach out, thank you. I have lived with pain most of my life but 4 years ago it became crippling. I push through because I have to but much of the time I'm too sore and tired!!! Fatigue is awful. I have absolutely no social life as I can't even imagine doing anything but go straight home to the couch after work. My life is severely limited. It is depressing and I try and fight that but I am, as they say, sick and tired of being sick and tired. The Celiac is the added bonus I got two months ago after being sick all winter. I hear the gluten-free diet can help all this pain but I hope to find someone who can attest to that. It was great to hear from you, I hope you feel better. Penny
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    11. PennyH added a post in a topic Fibromyalgia And Chronic Pain - Anyone Else?   

      Very interesting information, thank you. I'll try anything at this point. I own and run two stores and a design loft so I can't stop for pain, no matter how crippling. So that has resulted in pushing my body beyond the beyond. I have trouble staying on my feet (they really hurt) and I can't get into the shop until 11 in the morning because it takes so long to get my body going. I never do anything after work but go straight home. I never have food in the house because I'm too tired to shop. I will try all those ideas! Thanks again. Penny
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    12. PennyH added a post in a topic Fibromyalgia And Chronic Pain - Anyone Else?   

      Thank you for your advice. I have been checked out for everything that is why we are at Fibromyalia. But I've heard hopeful stories that Celiac's often have the same type of pain that can go away with the gluten-free diet...
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    13. PennyH added a post in a topic Tax Break For Celiacs   

      You can deduct the difference between regular food and gluten-free food. For instance, My gluten-free bread is $6.50. If regular bread is $3.50 then you can deduct $3.50. You do need to keep receipts. You can also deduct the mileage for gluten-free shopping and doc appts and nutritionists. Hope this helps.
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    14. PennyH added a topic in Celiac Disease - Related Disorders & Research   

      Fibromyalgia And Chronic Pain - Anyone Else?

      I'm 5 weeks new to having Celiac Disease. For over 3 years I've had crippling chronic pain over my body and was diagnosed with Fibromyalgia. I've gotten shots in my hips and spine, been on Neurotin, Cymbalta, pain meds, you name it. Nothing worked. Does anyone have experience or clear info on whether Celiac can mimic Fibromyalgia? I also have horrible stiffness and pain in my hands and my feet. I am hoping and hoping that a gluten-free diet will help but I don't want to get my hopes up too much. I would love some feedback/encouragement. 5 weeks on the diet and I haven't noticed anything yet.

      • 12 replies

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